Post hysto story/Progress

Body: 

I am new to this forum and was hoping to find stories of women who had used these exercises who had had a hysterectomy. That being said, I decided to start a thread, tell my story, and then document my progress.

I am 54. My prolapse started very, very young. I believe, based on what I've read that it actually started pre menstruation. When I was in high school I had major difficulties and was diagnosed with a rigid spine (which has since been debunked) I had my first child at 20 yrs and based on the position of my uterus it was very difficult for them to determine a due date.

At 21 years old I was diagnosed with endometriosis and a beginning of a prolapsed uterus. Dr wanted to do a COMPLETE hysto. I said absolutely not, I want a second opinion. To which he went down the hall and brought in 2 of his colleagues, who both concurred. I was outnumbered, so I shut up. When my exam was over, they already had me scheduled when I got to the front desk. I politely told them no.

I found a naturopathic Dr who agreed to work with me. During the course of the next 2 years we dealt with the endometriosis and ovarian cysts the size of grapefruit, and no further mention was made of a prolapse.

I did not go back to an OBGyn until I was pregnant with my 4th child and went into premature labor. I was hospitalized, threatened, given drugs I shouldn't have received and ultimately I lied to get out of the hospital without an emergency C section and hysterectomy, I was 26 weeks pregnant. I found a new OB and she was wonderful. I had a midwife deliver my baby full term at the hospital. I hemoraged because of the drugs I had been given but all seemed well. Their best explanation of what "went wrong" was I had an irritable uterus and they felt strongly that I needed a hysterectomy

I went back to a different naturopath and he felt I had a systemic infection that was rooted in my uterus so we did herbal vag packs and ultimately 3 months of antibiotics. By now I was in full blown uterine prolapse. It was difficult to walk, urinate, defecate. The whole time the only solution was a hysterectomy. I found a massage therapist that would dig into my abdomen and pop my uterus back in place. You could actually feel it and hear it! We did this for 2 1/2 years. Every 3 to 4 weeks I went back to have it put back!

At 32 I did not want a hysterectomy, but I was raising 4 children, working full time and I was exhausted. I finally agreed to just my uterus and only if we could do it vaginally. No bladder repair! The surgery took much longer than anticipated and when the dr came to talk to me he was very upset, they had sent chunks off to be tested for cancer. He said my uterus disintegrated and it was very difficult to get all of the pieces out. He almost had to do an incision but knew how badly I did not want that to happen, so that's why it took soooo long. It wasn't cancerous, it was completely consumed with infection!

I did great, even the bladder seemed happier until 5 years ago. I had a bulge! I did NOT know what was going on, actually thought I might have colon cancer! I could feel it was connected to bowl movements. I went to a naturopathic OB. She chastised me for not doing enough Kegals, told me this situation was entirely my fault, that if it had been doing my Kegals and either having sex or masturbating (what!) my vaginal wall wouldn't be in this condition! I was mortified! Then she measured me for a pessary drew some blood and told me to come back in a week. I never went back.

I've lived with this situation for the last five years. Using my finger (sorry to be so graphic) to insert and press against the bulge to have a bowl movement. 2 weeks ago I experienced another bulge. I decided it was time to deal with this but wasn't even sure what kind of Dr to go see so I did some internet research and found this site.

I'm starting the exercises today. My intention is to chronicle my progress or lack thereof. I'll keep you posted!

Wow gypsygranny! Thank so much for telling us your story! It seems as though you have tried everything. I for one, really look forward to hearing how whole woman practices work for you.
Best wishes to you!

Go gypsygranny! Let us know things are going.

I did not see the word "posture" anywhere in your post. I want to make sure you realize that WW is not just an exercise program. It is a complete change in your posture every waking moment. In fact, you can exercise until the cows come home, but if you are not exercising in the posture, as well as living in the posture all the rest of the time, you are not doing the WW work. So make sure that you understand exactly what this posture consists of. It can be a different experience for the post-hyst woman for a number of reasons. One is that you are trying to pull your organs forward into the relaxed lower belly, and the round ligaments of the uterus (which you no longer have) are part of what makes this happen. Even without them, you still need to work towards that goal. Also, 20+ years after hyst, there will have definitely been some shifting of the muscles, ligaments, and bones in the absence of the "hub of the wheel". This means you may need to take it slow with the posture as you could experience different sensations as you progress, than will those of us with all our parts.

As for Kegels, that doc was about as wrong as wrong can be. I kegeled religiously for decades, so I just laugh out loud when I hear statements like that. In fact, I want you to go over to the Blog page, and search for two things: Kegels (look for the article "Just Do Yer Kegels" and hysterectomy (look for the article "Hysterectomy and the Whole Woman"). Welcome aboard Granny!! - Surviving

So, you are right, Surviving, I did not mention posture even though that is what I decided to focus on first! I usually walk @ 2 miles a day and the result is usually coming home tired and sore. Nothing significantly worse prolapse wise, but sore none the less. My naturopath had me buy inserts for my shoes as he noticed that I was "loosing my arch". Funny how all of my experiences are tying up with this new knowledge, thanks to Christine!

So, I practiced the posture, a lot this morning and being a massage therapist, I know my body/muscles pretty well and feel pretty confident that I got the posture correct. As a matter of fact, I've been resisting the "correct" posture for virtually all of my adult life because it didn't feel right! So, I've got this new posture and I leave for my walk. The first 1/4 mile was difficult, lots of starts and stops trying to focus on keeping my posture. Finally, it started to feel familiar and I found by mile 2, I didn't have to think so hard. That's when I realized I felt great and added an extra mile! I'm home and the only thing that's sore is my shoulders and I think that's because they are learning to release! My shoulders have been "in my ears" forever! I'm loving this already and haven't even tried the "exercises"!

I noticed that my breathing Is significantly better when I am in posture as well. One thing Drs have been forever trying to correct for me is my shallow breathing. Another interesting point addressed by Christine's work.

As for the Kegals, funny how that was the first place I went to, because I have felt for 25 years that they were useless. I've also read pretty much everything here on hysterectomy. Thanks.

I believe some of my experience with diet and essential oils have helped me to manage better than most and that managing stress also plays a significant role as my situation is worse when I don't.

I also have a hypothesis about my particular situation and wonder if anyone else might have the same connection. I was sexually abused for a year at 4 years old. After watching Christine's video about the development of the woman's body, it makes sense that exposing those organs to sexual activity before maturity could very well begin the prolapse cascade? Thoughts?

You have made some very good observations about your body, Gypsy. There is no doubt that child sexual abuse leaves deep scars on a person's psyche. This inappropriate treatment may or may not have left physical scars, but it may have, for example, made you carry your body curled in self-protection. We all carry our past with us into the future. Hopefully yours will now be brighter as a result of the discovery of proud Whole Woman posture.

Louise