When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
granolamom
May 6, 2007 - 9:09am
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(((sister)))
therese, I don't know anything about that, just wanted to send hugs and healing vibes your sister's way.
Therese
May 6, 2007 - 2:08pm
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Thanks
Thank you for the kind thoughts!
I am worried I guess. She had the first ovary removed at age 27 during her pregnancy with my niece and now this one last night.
Thanks for the good thoughts and give that baby a big squeeze!
My Lily is 6 months now...prolapses are really so much better--unnoticable (hard to believe!!! thank GOD for this place and Christine!!!)) ...but I am looking for her stop growing button and can't find it!!!! I need her to stop because she is such a good baby and I don't want this to END!!
I hope if anyone has advice they will post...I am clueless!
Christine
May 6, 2007 - 2:28pm
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hers foundation
Nora Coffey at the HERS Foundation (hersfoundation.org) is the world's expert on post-hysterectomy. Why was the surgery performed, Therese???
Christine
May 6, 2007 - 2:35pm
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oops
post-hysterectomy and castration.
Therese
May 6, 2007 - 10:47pm
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Ovarian Removal
Thanks Christine,
The first ovary was removed during her pregnancy 11 years ago with my neice. She had terrible pain for days and they couldn't see anything and kept sending her home...finally a Dr with a brain checked her and the ovary had burst and they did emergency surgery. I was told that she had internal ultrasounds done regularly since then but they didn't catch this one either until it was gangrenous?? (I was told cysts come and go so it couldn't be their fault? That an internal ultrasound wouldn't detect this--the cysts or the endo even if it was there??)-- the tube and the ovary also was bursting. She apparently had such bad endometriosis that it was coming through her skin--by the area of the very upper thigh and the Dr couldn't do a laproscopy because the endo was so bad she couldn't cut without opening her up abdominally?? This all sounds BIZARRE to me.
She was 27 when the first ovary was removed and now is only 38.
I am concerned that she will not be treated correctly now. I am unsure as to what to advise myself since I know very little. I assume the endo will go away now? From what I have read hormone therapy would be important to have and it should be measured to see if it is enough? Normally they do not continue the therapy long enough to ward off serious health risks? I will check the site you gave with the search words...
Thanks!
Need to update...just spoke more in depth to my sister--I had the wrong info from my other sister. They had not been monitoring her condition AT ALL. The last internal ultrasound was done 2 years ago. They had been doing nothing to monitor the other ovary except normal yearly exams. She had recently gone in about the lump by her thigh and they thought it was a cyst--didn't really do much about it and now the Dr thinks it was the endo ...
I don't know what to think right now.
Christine
May 7, 2007 - 9:53am
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hugs and prayers
Gosh Therese…that is dreadful and so very rare, although the ovaries can form a variety of strange and lethal cysts. Endometriosis is treated about as crazily by scientific medicine as prolapse. Surgery seems to make it go all the more wild and what’s most astonishing are the scores of “cleaned out” women (uterus and ovaries) who continue to suffer symptoms of endo!!
Sending your sister many hugs and prayers.
Christine
Therese
May 7, 2007 - 10:04am
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Thanks Christine
Thanks for the hugs and prayers.
She could still have endo problems even without the ovaries?
I don't know...
She did mention that I could go with her to her follow up appt. I don't know if she will follow through--I think it would be a good idea to have me there just to have me to ask questions she might not ask... I am so worried they will pop her a pill and send her on her way and mark her file DONE. She has no assertiveness at all...I have to tread very carefully or be labeled the mean one for even bringing things up...sucks.
Thanks though!!
Christine
May 7, 2007 - 11:02am
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yes...
Yes, it’s not uncommon at all for endometrial cells in and around the pelvic and abdominal cavities to continue to erupt long after radical surgery. I apologize, T, for being less than sensitive in calling it castration, but that’s the term I’m used to at this point. I didn’t think about it until I saw my previous post today :'(
Therese
May 7, 2007 - 11:12am
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No need to apologize
It is castration...I was just punished for using it --not to my sister OF COURSE but when I heard the news I automatically said it after all I have read in the last six months about my own condition etc and so I was punished. It was okay that when I revealed my problem I heard the words "ICK and GROSS and the best one...is this problem why your stomach is sticking out--I didn't say no it was the baby I just had and am recovering from... ?" but I was punished for uttering the word castration when told my sister was being castrated.
This situation has revealed some real issues I guess in the family. I guess we say women are wonderful here and they are but they can really bite too...
Grandma Joy
May 7, 2007 - 11:42pm
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Hey Therese,
Just wanted to let you know I think you are a great sister! Wish I'd had a family member asking questions for me at times when I needed them! Prayers and hugs coming your way for you and your sister.
Love,
Grandma Joy
Therese
May 11, 2007 - 7:41am
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Thanks Grandma Joy
I have felt so helpless in this situation but did come up with one great idea...called my dad and let him know my sister was off work for at least 6 weeks and would need $$$$$! I told him she would feel icky calling and asking (cause I would!) and if he would call her first and let her know he had $$ and would give it that that would REALLY HELP! I found out she didn't have any disability at her job so I was at least a little helpful. Dad called that day and told her he would send $$ as soon as she told him how much. She said she knew she would have to call and it was nice he called her first--one big worry taken care of.
It sounds like the Dr is in the know...she knows about compounding pharmacies--I have read on line that they actually create the levels you need--I have no idea how this will play out. About the only thing I can tell her is that she will need to communicate with the Dr about how she feels--all symptoms and work with her.
This has brought out some things in the family--not good I guess.
Emotional. My cousin just a complete hysterectomy--ovaries, uterus etc and I was told my sister would be just fine because since my cousin had this done--she is under 40 also...even her personality is so much better now. I was told "sometimes a woman's hormone's interfere with her" I don't know what to think. I guess I am the only one in the entire family that feels this is a thing to proceed very carefully with and to worry about. I mean I worry that her life will change and she won't know why and just accept some different level of being because she is told it is no big deal and even better this way. No one else thinks that at all. The surgery was all they cared about. The surgery was one minute in a lifetime...the discovery of my prolapse was one minute of my lifetime--understanding it and living with it is my life.
I am the only one in my immediate family with a genital issue and the one that has been told to shut up--that I will hurt her if I say too much.
So I won't you know? Except to tell her to really talk to the Dr and know that how she thinks and feels is how she needs to proceed...
granolamom
May 11, 2007 - 10:12am
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(((therese)))
I've got a similar role in my family, I worry about my siblings and try to help them but if I'm saying something no one wants to hear I'm told to shut up and mind my own business. Its hard though, because I know I'd want someone looking out for me. I'm not good at shutting up though, and my siblings have each hated me at one time or another for speaking my mind. they always come around and love me again, so I can't complain. too much : )
the truth isn't always popular and sometimes maybe its better to keep it in if the listeners aren't willing/able/ready to hear.
ach, its a frustrating situation. (((hugs))) to you and your sister.
Therese
May 13, 2007 - 7:58am
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thanks granolamom...
Thanks a lot!
I don't know what I think anymore about things...!
I am just going to help with things I can like cleaning once a week and doing all the laundry for her!!!
I have been told that hormonal therapy even at 38 will be too dangerous since an aunt had breast cancer so it will be just a wait and see how she feels thing. I don't know what I would do if in the same situation as my sister. I really don't. It doesn't seem like there is any sort of corporate-or complete wisdom about it... Prolapse is easier I think. Decision making wise for me anyhow!
I don't like the comments though at all. Things like "only if you are already high strung should you feel any problems with menopause" etc.
I am wondering why we have ovaries at all after the things I have heard and why they don't just automatically drop of our bodies since we don't really "need" them.
I guess it makes my yearly appts all the more IMPORTANT to me and making sure my Dr is telling me the right info as time goes on.