bewildered

Body: 

I am a 53 year old who is suffering from rectal prolapse. I had my first daughter in 1988 via c-section at age 34. Following it, I never had an inkling of a problem. Then, 4 years later, in 1992, I delivered my second daughter vaginally. It was the biggest mistake I ever made. I requested to have a subsequent c-section because with it, I had 22 hours of labor with 2 hours of pushing, only to have an emergency c-section. You see, I couldn't dialate enough to deliver her. I have a very small pelvis (I was and am 5', 95lbs). I was told by a gynecologist when I was 18 that I should have c-sections because of my small pelvis. Well, after my first daughter, I knew that the doctor I had at 18 was right.

When I requested to have a c-section with my second daughter, the doctor (a different one because we moved out of state), dissuaded me from the c-section and stated that subsequent deliveries were EASIER. Not the case! Not only did they take her with forceps, make a tear before administering my episiotomy, but the pain (even with an epidermal) was excruciating. Also, the delivery was intense because my daughter was not responding right away. The aphgard test was low too. My husband described my hemorrhoids to be the size of 3 golf balls. They were excruciating for weeks. In addition, the difficulties of the recooperation period were much worse and much lenghthier than c-section. In the days and weeks to follow, I started to have signs of prolapse, developed a fissure, and was just plain miserable. My uterus was starting to come out - everything was not working right. I ended up getting a hysterectomy, along with a enterocele, rectocele and cystocele repair. As a result, I started to have pain upon intercourse. This was in 1993. In 2000, I ultimately had to have another cystocele and rectocele (done via a graft augmentation). As a result of those, I have had severe vaginal pain with and without intercourse. No doctor has been able to help rid me of this pain, and I have been to numerous doctors. Now, in 2007, since February of this year, I have been trying to do some therapy for my pain with dilators. As a result, the pain did subside minimally, but now my rectocele has come back. It has been gradual, but now it is like it was years ago before surgery. I guess the graft didn't hold! I also suffer from pain in my lower back, hips, thighs, abdomen and vagina. I am a mess! I feel so hopeless and depressed. I don't know where to turn. I've been to 2 doctors who say they don't see any rectocele problem upon examination. I know it's real. I emailed a specialist who said that sometimes rectoceles can only be detected by an MRI, and she also said that doctors don't seem to know what to do with these rectoceles. I get the idea that most doctors hesitate to do any kind of rectocele repair because they probably know that they don't help in the long run. What do I do now? What do I do without surgery? I struggle everyday - I feel handicapped in some ways. I've been a stay-home mom all these years. Was thinking of finding a part-time job to get out of the house, but now I don't feel comfortable to do that, physically.

I so wish I had the c-section I wanted in the first place, but I let a doctor talk me out of it. He said the cost and recooperation period of a vaginal birth would be less than the c-section. How wrong he was. He should have read my prior delivery medical records, and realized that I was too small to deliver vaginally. I resent him to this day. And I know that a subsequent c-section would have avoided me all these physical problems. I was fine for the 4 years following the c-section, right up until the vaginal delivery.

Woman know their bodies better than doctors do in most cases. Do what you think is right. Don't let a doctor tell you differently if you feel strongly about something.

Hazel

hi hazel
what a nightmare you describe!
I don't have any answers for you, just (((hugs)))

i am so sorry for what you have had to go through. i feel that it would be better to have pain and discomfort in any other part of our bodies. it doesn't seem fair. and surgery seems so invasive.
i wanted to have a c-section because i had an accident which left me with a fractured knee. however, all of the docs (three of them in the practice), kept saying to me that it shouldn't be a problem to do a regular delivery. i didn't really care which i did, i just wanted to do what would be best for my situation. so, the docs decided i should do induction because the babes head was very low in my pelvis, and being on crutches didn't help my ability to ambulate with a baby head practically coming out of my body. looking back, this was probably a sign that my pelvic floor had fallen. so i had to deliver with my injured leg being held by my husband, i was given too much epidural and couldn't feel how to push...so ofcourse forceps became the only option with a rip/episiotomy from ear to ear. so i have felt anger also. i haven't seen my doc who delievered the baby because i feel anger towards her, even though i know that it isn't really her fault..is it?? i too felt i should have stuck with my gut to have a c-section. even if the pelvic floor had fallen...at least the tissues would have been more intact, not ripped or cut, etc. etc. i am thinking about switching to the uro/gyn as my primary doc now that i have this problem. at least he will be up on any new developments on cystocele repair as they arise. for now i am just waiting for postpartum healing.

Hi Hazel

Welcome and thankyou for sharing your story. I am sorry you had such an unsatisfactory second labour. It does demonstrate how we really need to be our own healthcare guardian angels, as we are the ones who will wear the results of medical decisions about our bodies. This is not to say that we need to totally make our own decisions, but that we need to understand the decisions that are made and speak up when a decision seems illogical; keep track ourselves of what is done and why, so that we can complete the picture in the absence of other records. This is not easy when we are in a vulnerable position.

I can see that you have a clear picture of what has happened. As older women I think it is important to tell all younger women (and men) about this, so they are at least informed of the need for vigilance when dealing with doctors.

However, on the positive side, you have your life, your husband and two now-adult children and you can now use your energy to ensure this sort of thing doesn't happen to others.

Wholewoman principles have only limited use for managing POP in women who have had reconstructive surgery because the structural changes that have been made to your body work against normal function, but the principles of good diet, good posture, non-constrictive clothing and awareness of lifestyle issues will benefit your general health.

Best wishes

Louise

I don't feel like I have much of a positive side. My marriage is not and has not been going well for most of the 21 years. My daughter, who I delivered vaginally, is now 15. I have had the POP since then, and have had pelvic pain since my hysterectomy a year after delivering her (14 years). My sex life has suffered tremendously, or should I say "what sex life". Everytime my husband and I engaged in it, I would grit my teeth and cry with excrutiating pain. I always thought that the sex might "work out the pain" so to speak. Lately, I can tell the that graft augmentation I had done to fix my prolapse is letting go. It is more painful than it has ever been. Sex is out of the question. And of course, I have always loved sex! I miss it so! My husband actually seems to be okay without it - he has never really had much interest in it. We are mainly having normal marriage woes. Yes, I have my daughters, and they are really good kids. Couldn't have asked for better. I have wanted to leave my husband, but after being a stay-home mom for all of 19 years, as well as not wanting to get out into the workforce now because I feel physically, emotionally, and financially incapacitated, how can I even think of leaving. I feel so trapped and isolated. I do sew at home to make some extra spending money, but it doesn't enable me a lot of social time. I was going to find a part-time job recently when my pain and rectocele got worse. I guess you can see why I don't see much of a positive side. My girls are very aware of my POP, and because it could be a genetic thing, in addition to the vaginal birth, both of them plan to demand c-sections when they have their own children. They've seen me suffer too much - my POP is irreparable. Sorry I sound so negative, but this has been with me since I was 38, and now what do I have to look forward to?

It really has been a nightmare, and I keep waiting to wake up from it. If only I could go back and change it all. I would be a much happier person. Thank you for the "hugs".

rather than resigning themselves to future c-sections, your daughters are at the perfect age to begin learning about how to protect their bodies. why not begin showing them this posture and the exercises in the book?
many women develop a prolapse without ever having vaginal deliveries, or even before having children too.
c/s is not a sure thing either, as they dissect the pelvic organs from their supporting fascia.