Wouldn't it be nice ...

Submitted by ATS on January 20, 2008 - 3:24am
Body: 

... if we all lived closer to each other and could meet up. Someone in the same sitation to go walking with and to talk face to face with. I feel very alone in my neck of the woods with this. I know its not life threatening but I almost wish there were support groups for this sort of thing. Its a very hard thing to deal with emotionally. I know doctors brush it off saying its not so bad and can't understand what all the fuss is about but one can really feel isolated.

I'm just rambling.

Anita

ronshel30

January 20, 2008 - 3:30am

non prolapsed people just dont know and to talk face to face with these ladies would be brilliant!!! im in ireland and have never heard of any kind of support here exept this great site, at least we can talk to each other in this day and age, if it was 20 or 30 years ago we would be stuck in silence as doctors dont know or help.. i look forward to loggin on just to hear how people are and hoping for the best for all

ATS

January 20, 2008 - 3:50am

When I went to the doctor I was clearly very upset by all this but no support, advice or PT were offered to me.

I've come to realise that whenever I need something doing I need to find ways of helping myself.

I agree that the internet has brought so many of us closer. If it was not for this site I would have had surgery by now as I would not have known any different.

kiki

January 20, 2008 - 4:37am

i've really realised teh reaction you get from health professionals is just plain luck. i'm so fortunate to have great doctors, who are really supportive. no one advocated surgery (inlcuidng the surgeon!) even when i had a golf ball bladder showing itself! instead i got a lot of reassurance of how much better things would get, and that i'd be fine.
but it's crazy that it should be luck.

where in the UK are you Anita? we could do a UK meet up... ;-)

i have to say re support that i am VERY open about this, and that's really helped. largely i do it because i think women need to know it's okay to talk about this stuff--that we shouldn't hide it. the result is lots of people tell me "actually, i have this problem" and i can offer support, and we both know we aren't alone.

ATS

January 20, 2008 - 4:52am

Hi Kiki,

I'm in the Berkshire area - you anywhere near there on in the South East?

The only woman I have had the guts to tell just looked really sorry for me when I told her. It is not something she has a problem with and she only asked me on Friday whether I had resolved my medical issues. I said nope, they are not going anywhere, they are here to stay and I am learning to live with it. She didn't know what to say. It wasn't the best time to ask either as it was a bad day as the last few have been. I really do hope things improve again.

ronshel30

January 20, 2008 - 9:12am

i hope you are able to meet up with some of the ladies that are from england, i would like to talk to some irish ladies, i have one female friend and she doesnt understand or have much time to talk i would like to have more time to talk, sometimes we need it.

thrlxjodi

January 20, 2008 - 1:09pm

Any one in NY here?

ATS

January 20, 2008 - 3:07pm

I think Granolamom and Stella are in NY. There's a post somewhere around here headed "Where are we all from".

stella

January 22, 2008 - 10:51am

I'm sorry that you are having such a rough time, Anita. I have been taking a little break from being here because I am feeling so overwhelmed and depressed by my situation right now that I thought it might be good to think as little about it as possible for the moment. But now I feel connected to you all and care about how you all are! So I am torn. I do think that I will take a little break and pop in to read a few threads but want to apologize to you all for not totally being here for those of you who are needing support. I just need to get my head out of this a bit. I am so delicate right now that reading about how bad some of you are feeling is bringing me to tears...
I will be back soon. Please keep me in your thoughts!
love,
Stella

ATS

January 22, 2008 - 11:20am

...what you need to do Stella, and if taking a break helps then do just that. You were sweet to leave me a post and I know where you are coming from. Sending BIG (((((HUGS)))).

Take care,

Anita

stella

January 22, 2008 - 11:24am

big hugs!

granolamom

January 26, 2008 - 8:59pm

hi thrixjodi, I'm in NY, but no so close to you. I'm on LI

and ((((((Stella)))))) I'm thinking about you

stella

January 29, 2008 - 3:54pm

thank you granolamom! Nice to pop on here today and see that....been such a crappy day/week(s)! I'm usually a pretty up person, but needing all the support I can get these days. I grew up on LI but left there many years ago and now am upstate...

thrlxjodi

January 30, 2008 - 10:46am

I grew up on LI too! Sayville, Connetquot HS.
I am now living upstate too! near Kingston NY.

stella

January 30, 2008 - 8:07pm

Hey thrixjodi,
I live just on the other side of the river(columbia county)!
S

thrlxjodi

January 30, 2008 - 8:54pm

Well I made a friend!!!