When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
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Best wishes,
Christine Kent
Founder
Whole Woman
ATS
February 6, 2008 - 11:33am
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(((Stella)))
I have read many many times on this forum that overdoing the Kegels can actually make the muscles tired and some ladies have reported a worsening of their symptoms. Perhaps you need to slow down and do less. Just a few strong ones per day may make a difference. It is very disheartening when these things we do to make a difference do not help. I was praying when I arrived here that my prolapses would not worsen but they have and I am not sure how much worse they are going to get and I too have moments of pure panic over it all.
Do not not apologise for feeling that you are not being supportive, you are not expected to be. You are having a hard time dealing with your own issues right now and need to work through them. I have days where I try to help others and days where I just crumble emotionally and need help. I don't think I have ever reached a good place since discovery of my prolapse and I fear for my future with this and just how much I can take but sometimes you really have to just think about today and getting through today.
Anita
stella
February 6, 2008 - 11:38am
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thank you Anita
Thank you-it feels good to know you are always there! Even when you are overwhelmed yourself. I appreciate that. I am so sorry that you have gotten worse. My little boy just got off the bus so off I go...
hugs to you!
stella
February 6, 2008 - 11:38am
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oh and...
thanks for the kegel advice-I think I'll back off for a bit and see what happens...
MeMyselfAndI
February 6, 2008 - 11:43am
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Kegel-a-rama
My PT told me that too many Kegels will tire out the muscle and she was right (I was doing hundreds a day and it was soooooooo much worse for it) I reduced this to 20 a day or less (10 fast 10 slow) and it was so much better...
Remember that if you do ten slow holds - if you hold for 5 secs - you must release and relax for 10secs and... If you find the muscle tires - do NO more until the next day...
Just try 10 1 sec holds a day then if that is fine 10 x 2 sec holds and so on...
This will aid your muscle to become stronger - and will not tire it out and make it lax
Remember also that Kegels do not do much for Prolapse on the whole - They help incontinence issues. My prolapse will not be fixed by Kegels alone - Posture will help this
:-)
Sue
Look into the eyes - They hold the key...
http://www.bringmadeleinehome.com/img/maddy544x150Banner.jpg
stella
February 6, 2008 - 2:12pm
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kegels
thanks. she had me doing 2 sets of 10(some long hold-some quick) 3x/day(total 60/day). Guess I was too optimisitc thinking they would help the prolapse. I am learning the posture. I also started doing Chi Kung which I noticed has similarities to some of the exercises in the book. It also focus energy on sexual organs. I really need to get this posture under my belt. Wish I had someone to tell me if I was doing it right!
I am backing off on the kegels!
MeMyselfAndI
February 6, 2008 - 2:23pm
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Kegels again
Thing is - 60 a day for a very tired muscle would be like us weight lifting tons at a time...
60 a day doesnt seem many BUT - your muscle could be very weak and need working up to that... I would personally do 50 tops - But that would be after you have given this muscle a break.
I would do none for at least 1-2 days - Let it relax - When you do weight lifting and lift weight tto build a muscle you are in effects putting stress on that muscle by lifting etc. So if you think about it in weight lifting you are damaging a muscle to build it...
This is not weight lifting and you MUST let the muscle relax and regroup itself before putting more strain on it (I used to weight train and would only do that every OTHER day tops - to let the muscle revive in between)
So - give it a rest for a couple of day s- Nothing bad will happen - If anything after a couple of days you may find you feel a helluva lot better
Then if you feel the need to do kegels (Which really are not the be all and fix all of prolapse unfortunately) Then do just 5 on day1... relax - Let the muscle get used to its new regime
Day2 do 6
There is no reason to rush this - Really less is more to some things :-)
If you do not suffer incontinence then i would do say working up to 10 slow holds and 10 fast twitch (always relaxing for at least a minute between slow holds and the fast twitch is fast lol so - thats that)
See how it goes - I saw my PT a few months after she told me that less is more - And i had to tell her she was an angel and i felt sooooooooooooooooooo much better for not killing myself with kegels
:-)
Sue
Look into the eyes - They hold the key...
http://www.bringmadeleinehome.com/img/maddy544x150Banner.jpg
ATS
February 6, 2008 - 2:52pm
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Posture
It took me ages to understand the posture. I read and re-read the description on the home page and just did what I thought was it. I then watched Christine demonstrate it in the DVD and I was doing it right. I still get upper back ache and my lower back can get quite painful at times. I found it easiest when Louise explained it as lifting your chest up and almost pushing your boobs out just remembering not to pull in your tummy and letting it relax. I then kind of stick my bum out as well - not a pretty picture but that's how I got it in the end. Keep your shoulders down and chin tucked in slightly. I ALWAYS sit up straight now and would find it strange not to. As soon as I slump I feel it and think "oh **** my organs!"
Try doing 30 kegels a day and see how you go.
I know how you feel, in the beginning we want someone to take our hand and guide us through.
Hang in there.
Anita
stella
February 6, 2008 - 2:50pm
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Thanks Sue!
That was so helpful Sue. What a relief.
I do not suffer incontinence(except if I am doing something like jumping) but the PT seemed like she expected me to! That worried me, especially since just a few months ago I was able to jump on a trampoline with no trouble at all!
What you say makes sense. I used to do weight training too. I just spoke to my friend who used to be an aerobics instructor and she also thought that the muscles were overtired. I will follow your advice!
stella
February 6, 2008 - 2:59pm
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posture
Anita, did you get that from the dvd in the book? Or the other one that is sold on the website? I haven't watched any yet(just got the book last week). I did look at the picture of the African girl that was posted on here(the link to it). The visuals are helpful.
I actually came here to answer something from your recent post that I was thinking about...about the frozen food. You are NOT lazy for doing that-you are a mom! However, I think that it is important both for your bowels and for your overall good health and healing to eat whole, fresh(and whenever possible local and organic) food. You might find that things shift for you from eating foods with vitality.
Stella
MeMyselfAndI
February 6, 2008 - 2:59pm
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They assume
They always assume we pee outrselves every two minutes - I leaked slowly back then but sneezed and was no leaks - So not everything is cast in stone...
You will be fine - It is just like cooking...
Sometimes you hafta adjust the mixture to your tastes - And kegels can only do a very little - Whearas posture can do a whole lot
So.... Adjust the kegels to what stops you from any leaking - And live live live your life in posture and having fun fun funnnnnnnnnnnnnnnnnnn
:-)
Sue
Look into the eyes - They hold the key...
http://www.bringmadeleinehome.com/img/maddy544x150Banner.jpg
stella
February 6, 2008 - 3:12pm
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ha
ha-
yes,that is the key-to have fun!
Interesting, in the middle of all of this worry...last week, a woman who occasionally comes in to my workplace(who barely knows me at all)said to me out of the blue that she could see that I had a zest for life. I wasn't feeling very zesty but I thought about how I don't want to lose that. I have to keep myself together enough to be able to enjoy life. That is my biggest fear about all of this-that it will really get in the way of that. Well, on to the posture it is.
I will focus the energy I was spending on kegels learning the posture instead.
ATS
February 6, 2008 - 3:28pm
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Stella
I haven't read the posture description in the book I just watched it on the DVD and also read up on it here. I do have the book as well but like you I like visuals. I am so hoping that Christine will bring some exercise DVD's out soon.
As for the frozen food I know it is not good but its just easy. I will have to dig out the cookbooks again and start making things from scratch. My kids ate so healthy when they were being weaned up until their first year and then slowly I started with the frozen food.
Sometimes its just a case of having the time. My daughter is ill at the moment and she had a very tearful hour earlier at the same time I should have been making dinner and we ended up with cheese on toast for something quick. I agree whole, fresh, organic food would make such a difference not just for me but for the whole family.
I've just spent the last 20 minutes trying to convince my daughter to take her medicine but I ended up having to pin her down. You would think I was trying to give her poison! She has had such a high temperature that I am just trying to keep on top of it plus I think she has a really sore throat. The joys of parenthood.
Anita
stella
February 6, 2008 - 4:05pm
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I understand
I understand about the quick food! I think that if you got back in a routine though, it would just become second nature to cook...you can plan ahead and make larger quantities to freeze. When I cook soup-which is often-I make a huge pot and we eat it for a few days.
What medicine are you giving your daughter? Keep in mind, that their little bodies produce fevers for a purpose. Sometimes it makes them worse to stifle them. Homeopathic belladonna helps the body to control the fever on its own instead of suppressing it. Give her a spoonful of raw honey for the throat-she'll love it(and if you can sneak some fresh crushed garlic in it all the better)
Miso soup is great for a sick kid-and so quick and easy to make. Just put a spoonful in a bowl, add hot water and mix. You don't even cook it(not supposed to-it kills the live enzymes)
Good luck-I hope she gets well fast.
granolamom
February 6, 2008 - 5:07pm
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kegels
I'm all for a couple of kegels a day, to keep the muscles in good shape. especially after childbirth when they do get stretched out. and for women who suffer incontinence, kegels can really be helpful in controlling it (that's stress incontinence, for urge incontinence, kegels are useless).
as a PT student, we were taught that 'women with prolapse are usually incontinent' and so that's probably why your PT assumed you would be. I learned very little about prolapse, it mostly boiled down to 'little old ladies in nursing homes' and 'kegels' and variations of that (ie, e-stim, resistence training, etc)
now, as a woman with a POP, I can tell you that for myself and many other women, kegels don't do a blessed thing in terms of reversing a prolapse. nothing. zip. nada. and this is why:
the muscles you are exercising when you do a kegel were not designed to support your pelvis organs from below. they are not, contrary to popular belief, a floor. so work 'em all you want and you will increase strength of contraction, but you will not be able to walk around all day long maintaining a contraction and holding in your organs. it just doesn't work that way.
otoh, the posture here enables you to tilt your pelvis, thus shifting those organs from resting on the 'pelvic floor' (really a hole) to resting above the pubic symphysis, which is a bone. nice solid bone. now, in this position, your pelvic floor is really a door, or a wall, if you will, and not only that, but because your spine is elongated that way, the muscles are in an elongated position, which keeps them tightly closed. think of a rubber band, if you pull on the ends, the sides stay together. if you relax the ends, the sides gape.
if only kegels were the answer.....it would be so much easier that way. the inconvenient truth (to borrow a phrase) is that this condition is not easily reversible. I think most of us will live with this for the rest of our lives. its not a matter of kegels until its cured and that's it, I know that for me, its a lifestyle change. when I fall off the wagon and start slumping, or get lazy about diet/exercise, my prolapse becomes more pronounced. and we're all human, so yes, there are times when we resort to frozen prepared foods and don't make the time to firebreath. that's life. the good news is that the human body is so resilient, and you always have tomorrow to start again.
I'm not saying not do to kegels, just go slowly and pay attention to how you feel. some have found them helpful, some detrimental. I think there is no 'right' and 'only' way to manage prolapse. you are the only expert on your body.
stella
February 6, 2008 - 5:38pm
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thanks granolamom
Thanks. That was helpful. I guess I am still in denial, thinking I can fix this thing. Sounds like in everybody's opinion here the posture is the way to go. I will talk to the PT about this-I left a message for her today but haven't heard back. I wonder if I should bother going...my insurance covers it but it is an hour away...and it doesn't seem that she knows what she is doing anyway!? One more thing that I forgot to mention though(does anyone have an opinion on this?) Is that she noticed that my deep lateral muscles connecting my femur to my pelvis were rock hard. She said that they shouldn't be that way. I asked her how they would have become that way(running? compensating somehow with posture?)She wasn't sure-said it might be from exercise-or not. I wonder if I should go to her just to work on that?
stella
February 6, 2008 - 5:40pm
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Also
The PT wanted me to keep track of every ounce of urine I pee and every ounce of liquid I drink for 3 days!?
granolamom
February 6, 2008 - 8:23pm
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PT
I don't know what to tell you. at some point, you'll either feel you're gaining enough from it to make it worth your while or not.
about the tight deep lateral muscles....again I really don't know. off hand, I'm not sure which muscles she means. christine talks about the deep muscles of the pelvic/hip girdle in detail in the book, where they are, what they do, how they relate to posture and prolapse. I think its in the book anyway, either that or buried in some old posts here.
what's your PT's take on it? work on it how? and to accomplish what?
for example....a long while ago I worked with a little girl who had spastic diplegia. so her legs were all tight and she couldn't control them all that well. to stretch her out to 'normal' muscle flexibility would've taken away the little bit of stability she had. what I mean is, she'd stand on her tippy toes with her hips turned in so that her knees were touching each other. didn't look very pretty, but it held her up. stretch out those muscles and straighten those legs and she'd collapse. now, she had cerebral palsy, so we had to work with what she had. ostensibly, you have normal muscle control. so in theory, to stretch a tight muscle is great, but you have to then incorporate the newfound flexibility or you will go right back to where you started, make any sense whatsoever? if she doesn't know why you're tight there, or how its related to your current situation, why stretch/massage for treatment's sake?
now, if those muscles are tight, and holding you back from accomplishing a better posture, THEN we have something to talk about. but I wouldn't stretch/massage without doing some very active and specific exercise alongside it. and posture, posture, posture.
the measuring input/output of pee always seemed curious to me. don't we lose fluids to sweat and feces as well? if you wanted to know if you were fully emptying your bladder, there are better ways of finding that out (ie, ultrasound before and after urinating).
stella
February 6, 2008 - 9:48pm
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you gave me lots to think about!
Thanks for all your feedback, Granolamom. Makes total sense. The way she discovered this was when she gave me an initial internal exam, she(or I)noticed that one side of my vagina was more tender than the other(all of it was tender-which for some reason surprised her-wouldn't anyone feel sensitive during an internal exam?) So last time she had me lay on my side with one leg up on a pillow and did an(external) exam of the muscles around the pelvis(around the outside of the vagina/leg area-hope this makes sense-hard to explain)These were VERY tender and she said it was because they were overtoned. I asked her if it related to the prolapse or if it would help to work on them and she wasn't sure-she just showed me a model and diagram of where they were. Your post made me think of many more questions to ask. My husband had more of a theory than she did-that the fact that since I was a little girl, my legs have turned in slightly might have affected those muscles. Maybe my leg/pelvic area has compensated for the turning in?
So in your opinion, is it possible for PT to help a prolapse? (assuming it is done in conjunction with posture)
granolamom
February 7, 2008 - 10:05am
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PT and prolapse
first let me say that your dh is a smart guy. In all likelihood the fact that your legs turn in and that those muscles are tight are related. its a chicken-ant-the-egg type of thing, who knows which happened first. turned in legs will allow certain muscles to shorten which in turn makes it harder to keep the legs straight, etc etc. and we humans are very energy effecient, so if the muscles are tight, the legs will turn in.
I'm not sure what 'overtoned' muscles are. sounds like a lay term rather than a clinical one, not sure what she was trying to say.
most PT's are not given the understanding of posture, anatomy and prolapse the way christine's work explains it. My hunch is that all most PT's know when they hear 'prolapse' is massage (and variations thereof) and strengthening (ie kegels). this doesn't mean they are 'bad therapists', just lacking experience and education in this area.
so is PT worthwhile?
well, if there is a physical or neurological barrier to your ability to achieve/maintain the posture or do the ballet workout, it is possible that PT can help you work on those issue. for example, if after childbirth a woman sustains some nerve damage in the pelvic area (say due to traction or compression) a PT might use electic stimulation of the muscles to prevent atrophy until the nerve function returns. however, in the absence of nerve damage, I highly doubt that e-stim is useful.
or if a person had some other trauma to the hip or spine, a PT could be very helpful in terms of regaining proper alignment and function.
personally, from my standpoint (as someone who's been managing prolapse with this program and as a PT -disclaimer: I did not have extensive orthopedic experience) PT is not terribly useful for reversing POP.
I know some have found it to be useful, and I wonder how much of that is the placebo effect - and I am all for placebo! whatever works, you know? but each person will do the cost/benefit ratio for themselves. I don't think PT will hurt, as long as you are smart and paying attention. overkegeling isn't necessarily a good thing either.
stella
February 7, 2008 - 10:13am
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Thank you
You have been so helpful, Granolamom. I really appreciate your input!