Tailbone/lower back relationships? (newbie)

Body: 

Hello ladies,

I have pelvic organ prolapse. First I learned I have a cystocele and my GYN recommended a hysterectomy and repair the first visit. Hmmm. I later learned it is also a rectocele, too. I fell holding my now 18 year old when she was an infant when I was 31 and my tailone was bent backward. My sacrum has been unstable since and my tailbone hypermobile along with DDD in 3 of my low back discs. It has hurt to sit ever since. I have FELT my tailbone relationship with all this so researched it and found that those muscles support the pelvic floor, but cannot find one Doctor that knows or deals with this. I was ready to jump into surgery till the Dr. showed me the mesh they use to repair leakage. NO WAY am I putting that in my delicate bottom and have found lots of evidence that it should not be trusted. (Lots of issues with it). Anyway - I've been trying to sort all this out and found out about the Kegel Master the day before I found this site. I'm disappointed to find out its not the answer, but shouldn't it at least help?? Does anyone else also deal with lower back issues??? All issues are getting worse. The diagnostic tests do a number on you, too. Had a VCUG a couple of days ago and if I didn't leak before, do now!! I have no pride left.... I've had to pee in front of people. Just had my first colonoscopy.... I know I'm on the right track and feel God lead me to this site but do have the complications. I still need to order the DVD, etc. but is anyone going to be able to address the tailbone lower back issues??? Help please....

Hi Lauren, I agrre with all of what jackie says, and so pleased that you haven't gone down the surgical route. Cranial osteopathy may be able to help with the tailbone, I would suggest giving it a try (a few sessions at first).

Kegels: check Christine's blog about the correct way to do them as they can do more harm than good.
Judith

Thank you both. I had a GREAT chiropractor who did craniosacral therapy on me and my tailbone literally vibrated with her!!!! She is in Alaska, though, and I'm now in GA. So far haven't heard of anyone here who does it, but haven't looked. I'm afraid I had a car wreck here and submitted to the medication route. Someone mentioned medication messing with them. Was it muscle relaxants? I'm on some heavy ones. My colon has no muscle tone and my gastroenterologist thinks its from using herbs to use the bathroom - that I've become dependent on them. But no one seems to claim a relationship with muscle relaxants. This is seeming elementary as I say it but I've gone along with them on that. Sounds like I need to make some serious lifestyle changes. Anyone?? I just ordered everything. I also want to order a kegel exerciser and have found some bad stuff about the Kegel Master. Am looking at the Pelviciser (sp?) Does anyone recommend a device to help there? I find no pleasure at all with sex either anymore.... It hurts! My GYN told me she'd fix me right up. That removing my uterus would make sex better....that she would tighten those walls..... Then she showed me the mesh they use for stress incontinence repair and loud bells starting going off in my head. (Started looking for a different surgeon but now opting none at all like I said).

I do have access to a PT a couple of hours north who can do muscular corrective tailbone work apparently although haven't tried him. Am also going to start seeing a guy who uses Vax-D decompression therapy for my discs and I would imagine that would follow through with the sacram, etc. I let my abs get out of shape just in the last few weeks.... Happens fast. I am going back to college (online) and sit in a zero gravity recliner. Hurts to sit normally but I even hurt in this chair now. Another question.... Is there a sitting position taking into consideration my painful hypermobile tailbone and discs which hurt upon compression of sitting that is good for this? I know being in better shape helps. Now I'm worried about Pilates, though, cause of what was said about a couple of those exercises. Could someone please tell me which ones are bad?? I have both a Reformer and Malibu Pilates. Some days I want someone to take me out and shoot me. Seriously - I do struggle with depression about all this. I'm only 49. I shouldn't feel like I'm ready to be put out to pasture at this age.... I'm too good looking, LOL!!! = ) Its all so complicated with me.... ANY and all help appreciated. (Catherine??)

Hi Lauren,

Under my last blog, we had a discussion about a retired researcher/PT named DonTigny. He was part of a “movement” of orthopedic practitioners who have made great progress in reconsidering and redefining causes and cures of lower back pain. Although I personally find this particular practitioner’s writings confusing, he was very clear that almost all of the lower back pain we have been told is “disc” related actually has its origins in the sacroiliac joints. His colleagues are very clear that loss of the lumbar curve is the reason for much of the problem. Not that degenerative disc disease doesn’t occur in a substantial percentage of our population, but before the discs blow out, the SIJ often becomes stressed and painful. A proper lumbar curve is very protective of the discs and the SIJs.

This is why spinal fusion at L5-S1 makes about as much sense as hysterectomy (be careful, Jackie!) What is needed, in my opinion, and what we have seen in many women here, is that returning to the natural pelvic organ support system also corrects back pain. Alemama is one person off the top of my head whose tailbone pain vanished upon starting this work. The seated postures (esp. straddle) take pressure off the tailbone. The women here will probably tell you that the kegel device will aggravate not only your tailbone pain but also your rectocele.

It is a bit of a learning curve at first and all I can advise is that you relax and watch the dvd. We have written it all out a thousand times here and will answer any of your questions, but only you can do the work. Both the dvd and book address body angles while working and exercising - so your questions about Pilates will probably be answered there. Our abs make everything work - but not in the conventional way we’ve been taught, for they are continuously pulled UP instead of IN.

Smile and don’t forget to rest.

Christine

Just a reminder that we always talk about anatomy and pelvic support in general terms here - never individual cases.

If you have pain or any history of injury or surgery PLEASE consult your doctor before beginning any of the WW techniques.

Thank you!

Christine

I also had the feeling that I was in the right place at the right time when I found Wholewoman. I am so sorry you had to go through those diagnostic tests and that you were uncomfortable. I wish there was a way to give the information needed and leave with pride intact. What a tough deal.
I can also imagine what it is like to have pain for the past 18 years and then find out your pelvic organs are rearranging. Sucks. I don't know how you are going to address the pain. Knowing what is causing it would be helpful. I wonder if it is the actual bones or the supporting structures or what?
Well anyway I have read great things about trigger point therapy. Chiropractic never helped my SI (just the right one bugs me) but did help with other body issues (including prolapse), regular massage is good, I am trying acupuncture right now for my SI- so far no change.
Over all body health and fitness is probably going to be your best bet. Gentle stretching, Yoga, Swimming- all these are great for most bodies.
I did find relief from the tailbone pain that had bugged me since the birth of my first baby (I have stretch marks all around and above my tailbone- she had a crazy presentation) when I started using the posture. It was really soon after starting. What a relief.
I don't think kegels are really that big of a change factor for prolapse. And I have not seen a fantastic endorsement of the devices from women here.
Good news is that your pelvic floor is supported by your entire body - from your head to your bum.
I sure hope you can get your tailbone pain sorted out. It is a literal pain in the butt.
Welcome to the site. ask questions as they come.

Thank you so much for the encouragement. I am wondering how SI (sacroilliac?) affects you... I know that has to be part of mine. With my lower back my discs aren't doing their jobs and they affect nerves when compressed by sitting, etc.

I wanted to ask, too, if anyone knows about zero gravity recliners and how they work for the postures Christine prescribes. They have saved me by taking the pressure off my low back but when I work on the laptop that way not so good. I have to jut my head forward. May need to rethink that one.

And can anyone tell me for certain that muscle relaxants DO affect this? I've already decided to wean off them or use them not so regularly, but just want to hear it....

Thanks all.

Hi Lauren

I would be concerned if you are on muscle relaxants for a long time because, well, they relax all your muscles. What I mean is that your coccyx is held in position by muscles. Your tummy muscles reflect intraabdominal pressure and bounces it away from your vagina. Your sacrum pins down your pelvic organs in front using the resilience of muscles. Your tummy is probably flabby because your tummy muscles have no tone. Likewise your pelvic floor.

The musculoskeletal system is made up of two kinds of tissue, bone which can handle compression better than tension, and muscle which can handle tension better than compression. Actually there is a third part of the structural system of the body. This is the ligaments and fascia which hold the organs in their places, lubricate the movement of muscles over each other and hold the ends of bones together. If the muscles cannot do their job of lengthening and contracting with some springiness, it puts incredible strain on the skeleton, and presumably the fascia and ligaments too.

IMO, muscle relaxants are great for specific short term purposes but you have to find out why the muscles need relaxing, eg Ponstan for period pain. Muscle spasm is one of my problems. It is tied up with stress for me, and stress means worry and anxiety. I find that I have an arsenal of tools to deal with it, from different types of massage, some use of anti-inflammatories, some analgesics, ginger, garlic, stretching and exercises, dance, you name it. To rely on muscle relaxants is playing with fire, both from the point of dependency and because you are interfering with your body's structural system, which you are trying to optimise with Wholewoman posture. It defeats the purpose a bit because your body cannot work properly.

You probably won't solve this POP thing overnight. Just take in what you can and combine as many techniques as possible. Hopefully it will eventually click, like it does for most of us.

Cheers

Louise

Hi Lauren

Excuse note form as still a bit hectic this week.

1. Cranio-sacral isn't the same as cranial osteopathy. With CO you'll get the benefit of a trained osteopath without the drawback of conventional osteopathy (IMO) of being bone-crunched. He/she will check your entire body mechanism, including your breathing. BTW, I'm not dissing cranio-sacral, I've had that too and it was good, but I think that if you've got a musculo-skeletal problem, CO may be better.

2. I have a rectocele and kegels definitely make it worse. I think that kegels, whether you're doing them with or without gadgetry, only have a place if your pelvic floor is demonstrably weak. Also, anything that you insert may rest on top of the rectocele and make it worse (I think that, with hindsight, this is what happened to me after using vaginal weights) .

3. Don't lose heart - I'm sure that you will find yourself the right kind of physical therapist, just be very cautious about what you let anyone do to you. Like Jackie, I have a back problem, and in my experience what works and what doesn't is an extremely individual thing. Swimming can be great if your technique is good. I practice Alexander Technique and try to apply the principles to whatever exercise I'm doing. Pilates was brilliant for my back but very bad for rectocele. I think that what's best is to find a PT who understands prolapse as well as spinal probs and can give you tailor-made exercises, maybe adapting Tai Chi moves, yoga poses. I'm not saying it will be easy to find such a person but if you find someone who is generally good and willing to learn, show them this site and book and get them to think about it.

4. I find that the sea sponge helps me manage the symptoms of prolapse - I still get the heavy feeling sometimes but it doesn't feel so precarious, as if it might fall out.

BTW, I'm not the one who's had any surgery and wouldn't consider the mesh under any circumstances.

Good luck with it all Judith xxx