help with talking to GYN doc

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Hi! I had a hysterectomy (2008)for endometeriosis and cysts. They left one ovary. I still have cycles (no period) all the pain, pms all that. Over the last year the pain has increased to unbearable with sex and for at least 1 week a month agony for no reason. I can't exercise, walk, bike, nothing but lie in bed with heating pad. I recently lost my health ins. so I have an appointment on 4/9/2010 with gyn at local community hosp. Can anyone suggest how to get them to help me? usually they give painkillers and anti-inflamatorys and send me home. This does not help!!! I have read the website and alot a women seem to have the same symptoms how do you get them to do tests and give me a diagnosis? I did the self exams I read on the internet and I really think I have this problem or something just as serious.
I would be grateful for any advice!!!

Hi Kitty

I was hoping somebody would jump in and respond to your topic, but they haven't so here goes. It is not fair to let your topic go unanswered.

I was hoping somebody else would respond because situations involving a woman who has had hysterectomy and is having pain are really hard to respond to. The uterus is really an essential part of Wholewoman work. Without the uterus the vagina has to be supported in another way to prevent its falling down into itself and bringing intestines with it, which is usually regarded as a medical emergency, and to be avoided at all costs. We don't know which Wholewoman techniques are useful and which are not useful. We don't know how much improvement you can get, and to what degree it is sustainable. We can only offer to hold your hand while you see what you can do.

Have they given your condition a name? Have they given you any reason for the pain? Are you able to describe the pain?

Have you had a look at www.tipna.org , international website for pudendal nerve neuropathy ? Is this anything like what you are experiencing?

Louise

Thank you for answering me. I will look up the link you posted to see if it applies. My diagnosis before surgery was endometerosis, a forward tilted uterus, adhesions and multiple cysts. The surgery was supposed to remove my uterus, burn adhesions and remove as many cysts as they could. Not even 2 years later and the pain is 10 times worse and I can't make love with my husband at all, even an orgasm without intercourse is painful afterwords! Any more suggestions I can give my Dr to look for would be greatly appreciated. Thank you

hi kitty,

there is a forum that is called hyster sisters you might find useful, maybe not but they may be familiar with the pain and things you are talking about.

adhesion's can be very painful and it might be useful into looking into myofascia massage --- some of these techniques have been very helpful and loosening the scar tissue which helps to remove the pain. you can google the term and read lots about it.

i am not sure what to ask the doctor about, maybe adhesions and physical therapy, or massage????

best of luck to you

I checked out the websites you all gave me and I now feel like I have some solid info to share with my doc. Hopefully she will listen to me and check out the links especially tipna.org my symptoms are very close to the posts there. The sites gave me links to other pain management options (no drugs!) that I didn't know even existed. Thank you! I will check in after my appointment today!
Please send me some good karma!