When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
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Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
alemama
September 22, 2010 - 8:04pm
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support groups for chronic pain
Hey Lauren, I just took the time to read over all your old posts here. It sure sounds like you have a great amount of injury and weakness in your body. Arthritis, hernia, ulcer, knee injury, old tailbone injury, degenerative disc disease, neck pain and pelvic organ prolapse. And all this pain and injury is wearing you down mentally and emotionally. What in the world is going on? It seems like your physical condition is just getting worse.
I hate that you are feeling so alone. It is so true that you can be surrounded by wonderful friends and family and still feel so alone.
It is wonderful that you are taking care of your hernia. I am wishing you a speedy recovery!
So, here's what I think: pain is one of the ways your body communicates with you. Often pain is your body's way of telling you to STOP to heal (like a broken bone) and sometimes pain means MOVE to heal (like your hand on a hot stove). It gets really complicated when there are many different types of pain and some want you to move and others want you to stop.
It seems like you feel a little bit trapped. From reading your old posts I get that you have been feeling this way for a while.
You say you feel better when you exercise. What else helps you feel better? Have you gotten your medications sorted out yet? What do you think about what you are eating right now? Do you feel like you are eating foods for healing? Local4ajar gave you some really interesting advice about foods and a website to check out. Judy sent you some information about Osteopathy and Cranio-sacral therapy. Have you explored those avenues? Have you ever considered meditation? and last, did you know that there are support groups for people who suffer with chronic pain? Maybe you wouldn't feel so alone if you could meet others with pain. I know it helps me.
It is really strange to sit and spin your wheels, feeling trapped and in pain. Prolapse seems to be the least of your problems (by the way, what do you think? are they the same, better or worse than they were a year ago? and have you fully embraced wholewoman posture?).
What do you think?
Lauren
October 15, 2010 - 8:23am
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to alemama
Hi and thanks for your suggestions. I have always been a health nut believe it or not. I try to go by the blood type diet because I feel the difference (and an O+) but not too many even know about it. I am still hurting from the surgery and he ended up going a level deeper to clean out scar tissue from when I had an appendectomy. It had been going on for 6 months till it burst. (I was hospitalized but released, never really recovered when my Dr. put me on an antibiotic again and then collapsed one day when it burst). One friend actually knows of someone who ended up with a hernia because of the appendectomy and I wonder. Anyway - the Dr. for this surgery put a large mesh panel inside to cover not only the hernia but the entire abdomen. Not sure why he thought it needed that but I feel everything pulling on my round ligament attached to the uterus. Not sure if this all is going to help or hinder all the prolapse issues. Yes - I try to do the posture but sitting hurts ever since my accident falling holding my daughter 20 years ago so it hurts after a bit sitting in any pose. I am limited on exercise for a while - at least doing anything with my abs - so a little reluctant to really try much yet. It will not completely heal for another 4-6 weeks. I just have to get through this. I have most definitely been depressed and felt alone and am not sure where to find a place for support for chronic pain. I know no one really understands it unless they deal with it and most just blow you off like you're feeling sorry for yourself or exaggerating the level of pain it really is if its even brought up. People ask how I'm doing and expect my back to improve but it won't although staying in shape helps (which I can't do much with right now). I do have one very close friend who lives in my home town who, unfortunately, deals with pain, too, although is also obese and her issues are more dealing with fibromyalgia. I have that, too, but don't dwell on it and get irritated when people go on about it. It's rough but its a syndrome and I've learned there are ways to manage it although certainly not judging anyone who has it. I know its real. There are days I literally hurt everywhere but my pain issues and diagnosable and post-traumatic for the most part. I have had cranio-sacral therapy in the past but see an orthogonal chiropractor here who helps keep me straight. I have mercury poisoning so it contributes a lot to my overall health and affects my entire endocrine system. I know how to chelate it out, but when I try it puts a lot of strain on my kidneys. I've always been very pro-active about my own health or wouldn't have found this site. Do you go to a local support group or internet for support? Even my mom just starts telling me her problems when its brought up but she has dementia. I do much better when I make it to church and get spiritually fed, but don't sleep well so morning events are difficult. I slept last night for the first time since I can remember for the past month. I was at the end of my rope so am grateful for that. I rely too much on meds - I know that. I literally can't sit, though, without medication. It took me years to break down and start on them but when I also hurt my neck it was the last straw. I look forward to being released from this body when the time comes. I think part of my depression is from being a new empty nester and what is going on with my mother. I believe my husband also has asperger's (a form of autism) so he isn't easy to connect with although he is very good to me. I didn't figure this out until the past 5 years or so. I can make it. I'm strong - but have certainly been tested to my limit. Sleep helps!! Thanks for taking the time to respond. You're the only one who did.
louiseds
October 16, 2010 - 1:42am
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Aspergers and depression
Hi Lauren
Maybe your husband has Aspergers. Maybe he doesn't. Husbands who are very worried about their beloved wife's health often act just like people with Aspergers. They turn right off. Any emotional connection brings up fear and insecurity so they just don't go there. They don't realise they are doing it. I am married to one of them, but he is much more normal if I don't keep my troubles hanging over me like a black cloud. It split our marriage a few years ago. We had a miracle, got back together and are much better now.
Beware depression in menopause. It might be worth your while going to a naturopath or herbalist for some herbs to address the weird hormonal stuff that is happening for you. Depression is a frequently experienced symptom of peri/menopause. I have found that black cohosh has made some difference for me. My mood is lighter since I have been using it. I am also drinking lots of red clover tea, but the black cohosh has made the mood difference. St John's Wort has not helped at all, either moodwise or painwise. Until I started the black cohosh I did not realise how dark I had been feeling for the previous few weeks. It was a great relief to feel it lessen, even just a bit. If I stop the black cohosh the black cloud may return, but at least I will know what it is, and be able to see it for what it is. Meanwhile, life is good.
Black cohosh may not be what you need but a professional will help you navigate your way through it.
alemama
October 16, 2010 - 12:43pm
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depression
yes it sounds like you have a variety of factors contributing to your depression- even one of the things you are dealing with could push someone over the edge and into the dark.
You can find a local chronic pain support group. They are wonderful. I happened into the best support yet at my local gym. I use the cold therapy pool there and wouldn't you know it, almost all the people who use it are in pain! We sit for 20 min at a time and chat and it is wonderful. Many of them are athletes and young but there is a good mix of age, gender, and pain levels.
I bet you would feel such a relief to just have someone to talk to. There are free crisis hotlines- national numbers too. They really are there for you. You can call and talk to them anytime and they will listen.
If you look in your local paper you can find support groups and therapy groups. Look in the Alcoholics Anonymous announcements section- it will be there.
With chronic pain comes chronic depression. You sound strong- I don't doubt you. I know that even the strongest woman can enjoy the benefits of support.
In my town churches have Friday night services, Saturday afternoon and Wednesday afternoon meetings. Call around- or use the internets to find out times etc....
I wouldn't attempt chelation for mercury poisoning with out the help of a professional. I recently (when we were in the hospital) talked with a nurse who was undergoing chelation. It was a very specific protocol- supervised by a physician. It was not covered by her insurance and it was expensive.
Mercury can contribute to depression too!
So, I'm saying, consider seeing some professionals......hope you start to feel better soon.
angel2me
October 16, 2010 - 9:31pm
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Lauren, you are a very strong
Lauren, you are a very strong woman and have come through so much. You are a survivor my friend and during challenging times such as yours know that you are not alone. I have suffered from depression for a long time and when you are physically hurting it can seem daunting and difficult to believe that things will get better. When I feel low I reach for the little things that make me feel good; the sound of rain, trees, smell of grass, birds chirping, a warm cup of tea. I know it will take time but set realistic goals for yourself because depression can knock you down. Write a letter to your pain. Expressing whatever emotions you have inside. Don't censor your letter because no one has to read it but you and you can always rip it up and toss it out. Get it all out. Lately, I do this meditation where I walk into an all white room and I lay down on a white table and ask God and the angels and my guides to heal me. I envision them laying there hands on my body where I am feeling pain and breath deeply into these areas. I feel myself being taken care of and I give them permission to heal me. It takes the burden off of me to release my hold on my pain because I know that I do make it worse with my worrying. Try it. You can make your healing room look like what ever you want. It's your room. I send you loving energy. Take Care.
louiseds
October 16, 2010 - 10:47pm
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Nice post Angel
Hey, I llie that meditation idea. Giving them permission to take the pain away. Mmmm ...
Lauren
April 3, 2011 - 2:49pm
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to angel 2 me
Wow, thank you! I haven't been on in quite a while. I'm still struggling but better. I have, however, suffered a relapse of what I had surgery on in September. My hernia is back. I am going to order the new DVD for old ladies even though I'm only 51, lol. I think the personal things I've also been going through just left me feeling very alone. Thank you for your kind, thoughtful message!!!! It means a lot to me!
Lauren
April 3, 2011 - 2:56pm
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to alemama
Thank you, Alemama. I agree with everything you said. I've done much better off and on but still struggling. Like I just told angel2me my hernia has represented itself. Thankfully our wonderful host came up with a new DVD for the elderly which I'm hoping will help. I'm really thinking all the prolapse is putting a huge strain on my body. I've overweight by about 25 pounds so not huge but sheesh....
Lauren
April 3, 2011 - 3:06pm
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louiseds
Thank you for your response Louiseds. If you didn't know, St. John's Wort isn't supposed to agree with O blood types. (Which I also am). I found out my thyroid levels weren't right so that hasn't been helping. I had to switch from Armour to a new form of levothyroxine, tirosint. It helped!! I'm still discouraged about this body cause the hernia has returned and is worse than ever. At least pain there is... The Dr., I don't believe, wants to think he screwed up. I'm starting at ground zero again and planning to try the newer gentle workout. Anyway - I'm kind of repeating myself but wanted to thank you. I haven't been on in quite a while. Doing better and worse.. Such is aging. I do think my hubby is an aspie but doesn't matter. I know he loves me and I love him. He really does shut down like you said.... Hard sometimes and I've found myself drawing away into emotional independence if that makes sense. I tried a counselor and ended up making him feel bad cause all he did was have me take tests. I'm gonna try going back to him partly just to apologize. He was a nice guy. Just tried too hard. I kind of turned the tables on him and told him what his problems were, lol. Not funny.....sorry. Its laugh or cry at this point. My daughter is marrying this May. I'm so overwhelmed.... But my kids are both married or will be to wonderful young men who are good providers and love them. Everyone is visiting this month. I'm both overwhelmed and excited. I cannot wait to see my near 2 year old grand baby girl!!! Thank you for taking the time to respond....