between hope and despair...

Body: 

It is only recently that I have started to understand my condition, but I still oscillate easily between hope and despair. Last weekend I cried and cried and cried, felt I have a major defect in my body, and felt betrayed by my body, cheated by the nature…

Today I am a bit better, but all depends if I am in pain or not. When pain kicks in I feel hopeless and defeated again.

It has been a long time going to doctors, investigations (such as MRI)…it all started from type of IBS symptoms 2 years ago, which I guess weakened my pelvic floor organs. Then I had problems with haemorrhoids (second stage), lots of treatment that did not really work. I had increasing pain in my rectum- thought it was related to haemorrhoids. Then the pain increased and I started to have it every day, especially when sitting (unfortunately I need to sit on a chair when with my clients mostly still for 45 minutes, few times a day)…then I had shocking for me type of some stool incontinence symptoms. I felt so out of control with them! Completely devastated, still not knowing what was the problem. It was like my body was betraying me…
I found a yahoo based group (HappyPelvis) and from then I have started my better awareness. Such as that straining in a toilet contributes to my pain…then somebody told me about Whole Woman web-page…

I want to learn, but will I? I sometimes doubt. I am 51 years old, never had children. But my body posture was always wrong, overstretched and as if my body was on a hanger, I was always hiding my female body, hiding my breasts, but overstretched my knees, kept my bottom muscles tight…it is only recently when I have started changing, but also in this time something collapsed…
I think, I self-diagnosed that I have a rectocele…I have been to many doctors, one of them confirmed it, but said it is small one (so why I have such problems?!), another one said, not to worry about prolapse, but he found some what he said, “old endometriosis” or a cyst deep in my vagina, where- I guess- vagina and rectum are quite close…this is the place which is so painful in times! Because of IBS I have a frequent bowel movement, so my rectocele gets full around three times a day. I have to use glycerine suppositories in order not to strain. And since using them it has been better, I have less pain (hurrah!), but will I need to use suppositories until I die??? I also go to the acupuncture, which I have found helpful. I have been doing a pelvic floor drop regularly for about 2 weeks, often between my clients (fortunately I have room for myself).
I received DVD, and I want to incorporate some exercises. I guess it is better to start from a basic programme and stick with it for some time.
But, will I succeed? Can I reverse what has already happened?

My mother had recently two surgeries correcting her rectal prolapse (but she is 73 years old, I am only 51…I don’t want to suffer for the rest of my life…

Today I am more hopeful, I have had a better week with the pain kicking in only towards the evenining. But every time I am in pain, I lose hope, it is as if I was emotionally collapsing…

I am in a long-term therapy related to the abuse I suffered in childhood. I only recently started to feel more…only now I want to be alive, but this is when my body collapsed, as if betrayed me. When I wanted to be dead, I did not have these problems. Now, I feel as if my body is ding…I used to treat my body badly, always trying to find a quick fix when something was going wrong (e.g. painkillers for migraine, medication for acid reflux, etc.). But now I have found myself I cannot fix it quickly! I researched in internet and found nothing apart from a surgery, which I don’t want to consider! I ordered sea sponge pessaries, which I will try when they arrive…

I was told by a gynaecologist to use Estriol, vaginal globules, but I am worried about side-effects…I read that estrogen products can help to make the vaginal wall stronger. Is this a truth? I have stopped trusting doctors (I used to trust them completely, used every prescribed medication)…

As I said, today I am more hopeful, I love the DVD (thank you Christine!), it brought more positive thoughts…but there are times of doubt, and even despair…
How often do I need to exercise? Daily? Every second day?

Is there anything else apart from glycerine suppositories I could use? In the morning I have usually rather loose stool, but strangely enough it never gets out completely, towards afternoon I get type of pellets that stay there and I feel this awful pressure…I use slippery elm, I am on probiotis and something called Perma-a-vite + other supplements suggested by my naturopath. I follow mostly wheat free diet…My pain tends to relate to my BM. I have tried different position, such as squatting, but it feels as if there was some obstruction, often I need to splint…

It is very strange that only now I am in touch with my female body, but finding that I "misused" this body for many years...

I want to learn…will I???
Thank you,
Ivonush

Ivonush, of course you will learn. I started doing WW techniques when I was your age, and in perimenopause. Now I am fine. It might be a long journey for you, but it will be worthwhile. I promise that.

You have come from a hard place, and have so many improvements you can make in the way you use your body.

Your need to protect yourself has probably molded your body the way it has. You will eventually learn to let go your buttock muscles and your belly, and relax into your body, which has, after all carried you all this way, in spite of your only now becoming aware that you could have looked after it a lot better.

1 You don't have a major defect. Your body is exactly the same as everybody else's if you still have your pelvic organs.

2 You do not have weak pelvic organs. They are fine, even if you do have a little patch of endometriosis. At least you are aware of this.

Your pelvic organs are silmply not where they are supposed to be. WW work will help you to reposition them. You will have to do the hard work of changing old ways of being and enabling your body to carry them differently, by moving them forward onto your pubic bones, and allowing your pelvic brim (the big circular hole in your pelvis) to become vertical again, and tip all the intestines that are squashing your rectum down, back our into your abdominal cavity, where they belong. Your lumbar curve in your spine will reestablish itself and keep your pelvic organs forward. You will breath deep into your belly, using your diaphragm, rather than your rib and shoulder muscles. Your body will settle into a real female shape.

The first step for you to start bluffing yourself into thinking you are the Queen of the world, and that you are the unassailable, peaceful leader that you are. Find yourself a safe space.

Lift your chest and show the world your breasts and your heart. Feel your lungs fill as you lift your chest. You will feel your tailbone lifting as you lift your chest. Now, let your abdominal muscles go. This might be hard at first.

When you can let them go and relax your belly, inhale right down deep into your belly, the root of your being, using only your diaphragm, and keeping your shoulders relaxed. This will probably feel really weird and scary, because you will have to unwind all the tension that you feel protects you and holds you together. There may be tears, but they will be good tears because you will have let go.

That's enough for now. You will have taken some very important first steps.

BTW, are you still menstruating?

Louise

Louise, THANK YOU :)
I cannot stop crying now...I wish I heard all these words long, long time ago from my mother...Instead of this, I learnt how to hide my female body. I actually looked like a boy! And I wanted to look like a boy...
I am so sad now, as I see again what I lost when I was a little girl; brought up to hide away from the world, hide away from my father (who was unfortunately also sexually inappropriate)...
My body was alien to me, I did not "know" I had a body! As I was often ill I was treated with medication at least twice a year, so I learnt that there is a medication (quick fix) for everything...When I had migraines I was taking some meds and next day I was fixed...
This pain has been so "new to me", such a challenge! As I said I researched it on-line, trying to find "quick fixes" and I never found anything...

Finding a Yahoo based support group and then this site has brought my hope back...

It is strange that I am learning now through pain...If not the pain, I would never have gotten to this stage, I would never take seriously that I have to exercise, that I have to walk straight...that I have to be proud of who I am, as you said "thinking I am the Queen of the world"...

I feel a bit overwhelmed still, listening to Christine's DVD all over again, as I need to hear this, almost learn her wise words like a type of mantra and repeat them to myself, until they become mine...

I don't know why, but I feel so close to Christine (I hardly know her) and women here. I read their posts and I know what they go though. I see their persistence in reclaiming their body...I see their sorrow and happiness when things become easier...

Only recently, I have had an easier period, after having pain on daily basis...so I think I must have learnt something already, as the pain is more manageable...
But still my mood oscillates between hope and despair, depending on the amount of pain and tiredness...

I am still menstruating, but not regularly, it may vary between as short as 12 days to more than 60 days.
The gyno suggested some Estriol (Ortho-Gynest® 500 microgram pessaries) twice a week. I read that they may help to get a wall between vagina and rectum stronger. I tried half a dose yesterday...

As I said I ordered some Sea Sponge pessaries, I am just waiting for a delivery...Hopefully this will help with the pressure I get on daily basis. I am usually OK in the morning, no pain, no pressure. Then around 2-3pm the pressure builds and I have to use a glycerine suppository to have my BM. Strangely I have loser stool in the morning and harder in the afternoon. But, hopefully my IBS has been more settled now, I don't need to go 10 times a day! I think this weakened my muscles...
Also something happened in my life, I was under an enormous amount of stress, and I had (not consciously) take "army body posture", meaning ready for orders, forgetting my needs, carrying on with the tasks...I guess this made me keeping my muscles even tenser...after some time like this the pain arrived, but I still had to carry on with my duties…I am still in this “catch 22” situation. I know my body needs rest, but I have to earn money for my bills…
Sorry, my post has been a bit chaotic, I feel a bit chaotic…I guess somewhere between my old self and new one…it is my old self which comes as a pain, the new one is still unknown. But because of this communication with others I BELIEVE IT IS POSSIBLE TO CHANGE….

My therapist will be very pleased to hear your answer, I will read it to him tomorrow...I have gone though a long therapy process and I see now that it is all to reclaim my feminity...

Thank you again,
Ivonush

PS. Sorry for my grammar, English is my second language...

Hi Ivonush

I recognise where you are right now menstrually. You are quite close to port, but on stormy seas still. Until you reach the port and stop menstruating you will not realise how stormy it has been for you.

So many things have settled since I stopped menstruating, and my body stopped bucking and kicking in an attempt to stay fertile. I do hope that, like me, you will experience a calm with menopause, quite unlike the emotional and physical upheaval of perimenopause.

I think it really is a metamorphosis during menopause. I really feel like quite a different person than I was a few years ago, and have a much broader perspective on life. I think I am starting to taste wisdom.

You are a survivor, Ivonush. This will make you stronger. I was fortunate enough to have a very pleasant childhood, and have been much loved. I have never had to live in fear but I was very much a tomboy until all this POP stuff came along. It has allowed me to see myself as female, and to embrace my own feminine side. I discovered orgasm, which was pretty special! I now enjoy wearing dresses, and flirt shamelessly when I have the chance. Still not big on makeup, perfume or fashion clothes but I love skirts, dresses, and soft, exotic fabrics.

I am sure that your best years are in front of you.

BTW, your English is just fine.

Louise

Louise,

I don't even remember when I dressed like a woman...so there is a completely new world for me to discover! And I know now, I need to start from my body posture...I try to remind myself all the time...
I need to find time during each day to follow Christine's exercices, I have started from less complex ones. I was always completely unable to follow instructions related to the body (as my body never belonged to me, it was something so alien...)...

Yes, I have gone through a lot...
But this time, I almost felt defeated as the pain was so unbearable and I did not understand it, and I was going from doctor to doctor, getting treatments for hemorhoids, IBS, duodenal ulceration, etc. Also, as I said I was unable to find any quick fix for it...
And all this happened in the time I could not get much time off my work...I am usually better when resting, but I have spent so much money on treatment and assessments...
I am still waiting for another gyno consultation, this time the NHS one...I was thinking that maybe they can suggest some type of pessaries, also they need to instruct my GP if I need any medication...

I see that this is a call for me to redefine myself, to get in touch with my feminine side, to be more conscious how I carry my body, how I feed my body, etc.
I WANT TO RE-LEARN, revert what happened...

Thank you Loiuse,
Ivonush

PS.
(I still don't understand what "POP" stands for; there are so many acronims in English!)

:-)

Well it's been a while since I was on this site. I've been busy trying to get answers about how to fix my prolapse which has given me grief since giving birth 14 years ago. Most Doctors told me I would need a hysterectomy, but I knew from reading Christine's articles and my own research that this was probably not going to fix my problem.

In despair I saw yet another Doctor but this time his answer was different... Yes he could do a repair. He would stitch the loose muscles to a ligament in my back which would hold everything up. Sounds great lets do it I said, and I did. Well 6 weeks later I feel fantastic, I can pee and you know what again, my backache has gone and I am ready for sex (just need the final check up this week). Does my back hurt from supporting my uterus you ask, no but my right butt cheek does, although the pain is nearly gone now.

I am posting this for all of you who are wondering if this is it do you have to put up with this forever. NOOOOOO just see about a repair I am so relieved to have done it.

Hi Goddess

I am sure you gave a great deal of thought to having your repair. If women go ahead and have surgical repairs they need to do it by learning all they can about avoiding it, and after giving WW a try, if their body's response doesn't meet their expectations, then to go and have repairs, knowing the risks.

I am very glad it has gone well. Hope the painful buttock settles down and that you don't have any further POP problems. It would be great if you could call back occasionally and let us know how you are going.

Cheers

Louise :-)

Hi Goddess - I am glad that you were able to save your uterus, but concerned because your repair might not be without complications down the road. Six weeks post-op is not a long time. What were your experiences with the WW techniques prior to your decision to have the surgery? For the sake of those readers of this forum who are trying to maintain their prolapses without surgery, it would be great (as Louise suggested) if you would check back from time to time and let us know what you are experiencing. Good luck to you!

Hi Goddess,

Since beginning this work almost ten years ago I have been encouraging women to understand exactly what was done to them during these surgeries and to learn and comprehend surgical terminology. “Stitch the loose muscles to a ligament in my back which would hold everything up” tells us that you probably had a uterosacral colpopexy, where the cervix is sutured to the anterior ligament of your spine.

How about if you send for your surgical records and find out exactly what was done to you? Then you will be better prepared for the inevitable aftermath of pulling the vagina unnaturally toward the back and compromising the sacral nerves contained within the uterosacral "ligaments", of which buttock pain is a classic sign.

Wishing you well,

Christine

I want to revert the process of my prolapse. But as I said I oscilated between hope and despair...
I had a painful day yesterday. I was back at work after the weekend, lots of sitting, then long journey on a train and back (train was late...)...I felt packed up, unable to deal with it until back home- ouch!
I felt miserable, defeated...
I am still a bit unsure today...the first excitement has gone...now I am unsure if I follow the instructions correctly? All this WW body posture is so new for me and I always had problems with following any instruction related to the body (I did not know/feel I had a body at all!)...
Neverheless, I managed to do my 10 minutes with Christine DVD in the morning, I try to do the simplest exercices...
I wish there was somebody to correct me, the way I stand, the way I walk...
Am I doing this right????? How do I know that I do?????
How long does it take to feel/see the results? I have been much better, I used to be in pain from around 10am for entire day. Now I have these painful moments, but they make me losing hope in times...

So, still I am up and down...

I got Christine's book today, excited about it...

I am on my forst day of using sea sponge, still don't know what to expect...
Tomorrow, I will have my acupuncture session...

I WANT TO WORK IT OUT...I really do, but there are times I feel so down...
But also excited...and then down...and then up...(all depends on...BM; I never thought that in the age of 51 my life would evelve around stool...)
Thank you,
Ivonush

So glad you have the book. You will learn lots of the reasoning behind this work from the book. We have all had to learn it from scratch. I thought my posture was good when I first started, but it is very different these days! It is amazing the changes you can make to your body over time.

Try to be patient, and think month to month, rather than day to day. It does vary a lot how quickly women find improvement. If you just try and do the right things with posture, diet, clothing, lifestyle and how you use your body for physical tasks, you will make progress.

You will eventually realise that your symptoms are not driving you nuts every day, then you will only feel symptoms a couple of days a week.

We all have temporary setbacks too, when we think we are going well, and suddenly it feels like we are back to step one. It only takes a couple of days to recover from these, but they can have a devastating effect on the self esteem. This progress may take 12 months, or it may take 12 days to get the initial progress, if you get the formula right first off.

It does sound as if things are starting to change already.

Just do your best with what you can do, and take it slowly. I hope you can reduce use of the suppositories. It doesn't sound wonderful for your body to use that many on a regular basis. Diet is the key.

(((Ivonush)))

Louise

I am experimenting with my diet. Strangely my stool is quite lose in the morning (but still difficult to get it out completely- ouch, I don't like the feeling, but I have been more patient; before I was quite obsessional, used to strain and had lots, and lots of pain). Then I gete those pellet ones that sit in "the pocket" and I don't even have an impulse from my body about wanting to go with my BM. I know they are there...
But today, I used a sea sponge for a first time and I don't have this feeling...I need to learn now how to I go with my BM when I have sea sponge in me (?). As I said the impulse is not there...
I am on low carb, wheat free diet. I am beginning to be able to eat (I had huge problems in April)...I have been on many supplements suggested by my naturopath and they really helped. At one point doctors prescibed Pancreatic enzymes, did not really like it...
I don't know if I really have IBS, the way it sounds if the intestines are somehow "sagged", maybe this makes more frequent BM?
I use suppositories in order to stop straining...it has been better...

I need to be more patient, yes, things have changed already. Yesterday's pain was yesterday. Today- with the sponge- I am better...

I also feel more NORMAL, since I have found this community. THANK YOU.
Ivonush

Ivonush, I too have IBS. But since learning about my prolapses, I have decided that most of my problems are more related to the prolapses than to IBS. The main reason I don't throw out the IBS diagnosis altogether (really more of a suggestion than a formal diagnosis) is that I do sometimes get symptoms that are very sudden and very stress-related. Glad you are finding so much help and hope on this site. It has been life-saving for me and many, many, many others. Where we would be without Christine, her amazing work, her staff, and this forum, I really do not know.

I am so greatful for this web-site, greatful for Christine's work...It is only recently when I have started laughing again. I feel happy in times, enthusiastic, hopeful...
One week ago, during the weekened, I felt I did not want to be around, I had no hope, I saw no future...I called Samaritans and spoke about my despair, I though I had a major defect in my body and that I was gulty for it...
I will do everything I can to learn and then- hopefully- one day I may be useful to others, like you helping me...like there are other women who support me...
I know in times of despair, which will come, I can talk and I will be listened to...
Ivonush

Hi Ivonush, I have symptoms so similar to yours. I don't have a problem having a BM in the morning, it is quite regular and usually soft. But by afternoon I also have those smaller pellets that sit down in the "pocket" and I don't have any urge to have a BM then, but can feel it sitting there which is so irritating. So the urge to strain to get them out is huge, but then BAD ...

I think what is happening for me is, that in the morning most of the stool gets out but not some that must be higher up. Then as the day goes on this stool falls down and is now harder because it has been in there longer, and also it isn't enough stool to cause a BM urge. I have tried using Louise's LoPo position when I go but it doesn't work for me very well. Putting my feet up on a stool in front of the toilet seems to line up my rectum with my anus better so it comes out without straining. I like the LoPo idea of getting the bowel all stretched out - I thought that would help get all the stool out but when I use the LoPo position the natural peristalsis (sp?) seems to just stop in me.

I sure would like to not have those small amounts that get stuck in there all day long. Any ideas?

Thank you, it exactly the same with me...
Today, when I used sea sponge for the first time, I did not get the pellets. My BM in the evening was just like the morning one! I guess this is stool, which turns into pellets just stays there longer and just stays in the pocket with no urge. Yes, this is so irritating...
I have not figured out any position for me, tried with the stoll, tried "half sitting"...
At present only suppositories make it moving, but I don't like it too much...
I don't understand why I seem to have lost a normal perstaltic? It seems as if something did not work there...
Ivonush

You have done nothing to cause this. You are not to blame. It is not your fault. It is a result of the way we live. It just is, and it can get better, with your efforts.

:-)

As I said before, I feel as if my normal peristalsis has gone. I don't get an impulse to go to the toilet, althoug I feel the stool...
On two or three occassions I did not feel the stool, and I was almost incontinent (it was a weird, out of control feeling)...

Do others have this symptom and how do you manage it? I don't want to relay on suppositories for the rest of my life!

The sea sponge helped me yesterday, but I was able to go to toilet only after getting it out and using suppository. I knew stool was there, but there was no impulse...
Ivonush

Just to add the the subject. Between hope and despair seems to symbolise the conflict in me, which is between "medical" and "intuitive" parts of me. I always believed in doctors and I was never in the situation before when the medication did not help (at least it was my perception; and before my perception, it was a strong belief of my parents)...
I have been challenged...I cannot fix it anymore using meds...I do take painkillers or suppositories- but I don't think it is a good solution- quick fix = dealing with the symptoms and only short "benefit"...

So there is a kind of fight in me between "the medical" (which brings despair- it is when I concentrated on symptoms and want to treat them but cannot), and "the intuitive" (which brings hope, although- as a beginner- I can only trust other who were in the same position as I am now...)...

I hope the intuitive will develop further, and I will grow personally through this experience...
Hmmm, just adding even more, I used to be a strong believer of so called "positive disintegration process", meaning that the old structure has to break down (disintegration), but the process is positive as it beings the integration on a different level...And it also states that pain (emotional, phisical) is essential in personal growth...
Will I reach it? Will I develop to a "whole woman"?
Ivonush

Amen. Your belief in the infallibility of doctors will stop you from listening to the intuitive. We have all had experiences with both doctors and the intuitive that are both positive and negative. Two people can see the same situation from opposite poles, one as positive, the other as negative.

Doctors are wonderful and essential in some circumstances but can trap us into childlike faith in them. We are *here* because we don't believe that doctors have much to offer a woman with pelvic organ prolapse, but very few of us would lock doctors out of our lives, and out of our sickness care.

I say the following softly, gently and with respect.

I think you need to grow up now Ivonush, and look at doctors as partners in health care, rather than the answer to every health challenge you face. I am sure you love your beloved Dad as a person, but his teaching you at a very impressionable age that doctors have an answer for all sicknesses was a very, very naughty thing for him to do.

Fathers are near to god to little girls, but eventually we have to put our father/daughter relationship in a box of its own and take a real look at the way they have influenced our thinking as people, and make rational choices for ourselves, and be confident in our adult ability to do this. If he was not your father would you listen as an adult to his advice that doctors have all the answers?

I would go as far as to say that he really believed that, which would have been very naive, or arrogant, or a sign that he too was an anxious kind of guy who wanted to control all the bad things in your life, because he loved you so much.

My Dad died when I was sixteen. He was the protector of his only daughter and only child, until he died. I was very close to him, and admired him greatly. I missed him like you wouldn't believe. He was dearly loved by all who knew him. I was never able to negotiate my own adult values with him, because he wasn't there any longer.

I recently has a lightbulb moment, when it was revealed to me that one of my main motivations in life is whether or not he would have been proud of me, doing the things I do. He is like my guardian angel still. I would imagine that, had he been a doctor and given me drugs for anything that went wrong with me I would still be enslaved to that belief, but ultimately you have to make your own life and decide what about your Dad is worth holding onto and what is worth wrapping up and putting in the trash.

The thing I wrapped up and put in the trash about my Dad was the fact that he held onto me too tightly, and didn't trust me or my friends to start acting like adults as we got older. Had he lived, I am quite sure that there would have been fireworks and possibly a serious rift in our relationship. I think we would have rebuilt it later in life, but it would have been a torrid time in the intervening years, and would have caused my Mum, my Dad and me a lot of needless heartbreak and pain.

So, how about wrapping up some of that stuff about your Dad's behaviour, and ditching it for good? Keep the love, and the deep care he has for you, but the rest will either make you very sick or kill you if you take it that seriously.

I am *sure* that your Dad would not want that! ((((Ivonush))))

Louise

It has shifted a lot recently, the way I listened to doctors- I was treating them as gods...I took all the medication prescribed, I trusted their diagnosis and skilles completely. And it is not only about my father (he died when I was 16 as well; but time with him was not easy, especially in his last years...), it is about my mother who alawys wanted to "get me fixed asap" and was always panicking about my health. This is exactly what I do...

I have managed to put a lot of my past behind, as I said I have been in a long term therapy. But still I do need to process my relationship with my mother...

I want to develop my intuitive part further and be able to be more mindful in terms of my body, to be able to listen to it, observe with no panic...

Toady was a bit better day...
Ivonush

:-)

Hi everyone,
Thank you all for your concern following my surgery to correct a prolapse. I had a Sacro-Spinous Hysteropexy + anterior and posterior repair + monarc.
The surgeon also found that after having done this my cervix was still too long so also shortened that a bit. I still feel great my body functions are working better than ever which is such a relief, nothing worse that wanting to wee and not being able to force out more than a few drops.

I tried all the exercises off and on for a least a year before contemplating surgery but think I was just too far gone.

It is now 8 weeks since the surgery and I no longer have any pain. I realize that this repair may not last forever but the relief I feel now out-ways that. I will be very careful about lifting and exercise that may be jarring for the rest of my life but think that is a small price to pay.

Thanks everyone, I'll check back from time to time and let you know of any changes.

Good one Goddess. I do hope the repairs hold up. Look forward to hearing from you again in the future.

Louise