When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
Surviving60
August 29, 2012 - 1:24pm
Permalink
Hi Ikam – I’m sure everything
Hi Ikam – I’m sure everything will work out fine for you. I’ve got a lumpy thigh too, so let me know what you find out! And what is a referral for USG? - Surviving
PS - I found this on a medical website: "Very commonly, trauma to a muscle can produce a small hematoma (blood collection) that subsequently calcifies and causes a lump. Often the inciting event is unnoticed." I figure that's what I have, nothing much to be concerned about.
ikam
August 30, 2012 - 2:47am
Permalink
thanks...
USG stands for ultrasound-based diagnostic imaging technique used to visualize internal organs...
I made a mistake by searching internet and of course I came with so many threatening answers!
My USG will be on Tuesday; if doctor decides I will also have a biopsy...
Flying for my holidays today...hopefully I will enjoy them...
ikam
September 5, 2012 - 2:56am
Permalink
update
Hi, I am just waiting for my biopsy results, had USG done yesterday, the lump is big, cancer type...it will need a surgery...one of the doctors mentioned "sarcoma"...
I am in the hands of doctors again...:( :( :(
So, I have a bit of set back with my pelvic pain :(
Scared...
fab
September 5, 2012 - 5:22am
Permalink
Thanks Ikam
Dear Ikam,
Thanks for the update.
Just to let you know I will be thinking of you and hoping for the very best. I kept getting the feeling from time to time from some of your posts that you were worried about cancer. Let’s hope that the lump is benign and that your worry was constructive so that you checked it out, and even if it is not, that you have acted in time and all will still be well.
Hey, doctors are good in most of their fields. They just have not got it quite right with woman’s mysterious pelvic organs when they prolapse.
When it comes to possible cancer I cannot think of anywhere better to go. Whichever way it goes, I know you will be OK. And you won't let us down.
Being scared is good. It’s a reasonable emotion and it has motivated you to fix things up.
Love Fab
ikam
September 5, 2012 - 7:43am
Permalink
biopsy results
Thank you Fab. The biopsy results have shown some cancerous cells within the lump...Only after histopatology results it will be known how far it is advanced. So I will need a surgery, possibly quite quickly...
Yes, I am worried...but I try to keep some hope...I go into extremes- between hope and despair...I am with my best friend now, but flying back from my holidays next week. and I am not looking forward to dealing with everything on my own...(unfortuantelly, my husband and I agreed that we are "just friends"; this happened around 4 weeks ago and i am still dealing with the loss...)...
Surviving60
September 5, 2012 - 8:20am
Permalink
Thanks Ikam for another
Thanks Ikam for another update. I was so hoping it would turn out to be less complicated than all this. We are all thinking of you and hoping for the best outcome. And I hope they don't keep you waiting too long for these results. Sorry to hear about you and your husband. What would any of us do without friends? Love and hugs - Surviving
Christine
September 5, 2012 - 9:43am
Permalink
lump
Hi Ikam,
I join the others in sending my hope for a good outcome. Perhaps another opinion is in order? So many of us have "lipomas", or lumps in the fat layer. Who knows...my thought is that they stem from all the margarine we ate as kids, which the body is not set up to metabolize naturally. However, these virtually never turn malignant. The body just holds onto them forever. If the lump is in the muscle layer, that's another matter. Who knows again...maybe a molecule of radioactive cesium (which seeks muscle tissue) from nuclear fallout gets incorporated into the muscle and causes havoc in surrounding cells. Something like that is operable tho.
Please never forget the mind-body connection! Surely we manifest, and therefore can un-manifest, many of our own ails!
Hugs from Christine
sevilla555
September 5, 2012 - 11:57am
Permalink
LIPOMAS
Hi Christine,
I have 3 lipomas. They are rather unsightly but benign. The oldest (and largest) is just above my right knee, then I have another smaller one in my right upper arm, and a third (newest), just behind my left knee joint. I don't believe anybody knows what actually causes them. I have a feeling they may be genetic, but who knows. Apart from not being particularly beautiful, they've never caused me any kind of problem.
Ikam,
I wish you the best of all outcomes and will keep my fingers crossed for you.
sevilla
MsNightingale
September 5, 2012 - 12:01pm
Permalink
Dear Lovely ikam
Just want to send you my very best wishes. You have my prayers and much love. I will be watching for your updates here. Funny how this special site creates friends across the continents and many feelings of love and good wishes. You have many sisters here.
fab
September 6, 2012 - 2:34am
Permalink
Ikam
How is it going?
ikam
September 6, 2012 - 2:44am
Permalink
Thanks Fab, I am OK, but sad
Thanks Fab, I am OK, but sad (which is just a normal reaction).
Christine and Sevilla, the biopsy shows some cells that may be malignant. This apparently explains why it has grown quite fast...(they are called "cellulae suspecte")...
Apparently only after removing it all and then histopatology it will be known for sure what it is...
I am still with my best friend, just about to go to her bee-garden (80 bee-hives!). I bought a fruit tree few days ago and we are going to find a good place to put it...Quite exciting to have my own tree in the world...
I will stay here for one week, just to get more strenght to deal with matters afterwards...
Thank you for all your support...
It is so important, especially that around half a year ago my mother and my brother have stopped talking to me...
Around one month ago my husband and I agree that we are not in a relationship anymore...
Ouch...
Ikam
takecare
September 6, 2012 - 4:00am
Permalink
Courage...
Hope the outcome is better than expected Ikam.
How wonderful to hear you talk about nature with such enthusiasm, sometimes I feel that is the only place where things make sense, amongst nature.
Family often hurt you more than anyone ... but you have to find your own inner strength.
When things get too tough I try to find a blessing in a situation - hard as it may seem, there is always a blessing.
Very best wishes
xxx
ikam
September 7, 2012 - 8:12am
Permalink
I have a possible diagnosis:
I have a possible diagnosis: myoma or leiomyosarcoma...
In one week from now I will see my GP, as I am still abroad. I have decided to spend few days with my friend...
I have not been eating too well, meaning I have stopped keeping my diet. Also I have not done much exercicing, so i have had more symptoms...
I worry often that it all may be connected, my pelviv floor symptoms and the lump on my leg...
The tree "enjoys" its souroundings!!! I know it does...
TVbug
September 7, 2012 - 11:28am
Permalink
Ikam
Will be thinking of you and sending prayers.
Surviving60
September 7, 2012 - 4:27pm
Permalink
Best wishes to you Ikam, take
Best wishes to you Ikam, take care of yourself. It doesn't sound like anyone is rushing you into surgery, which has got to be a good sign. I hope that you can try to eat better and if you stay in posture, then you shouldn't have too much of a prolapse setback even if you just can't exercise right now. I've been off my walking routine for a few days now, but I'm never off my posture! Keep us posted, relax and enjoy the rest of your stay abroad, and send us updates! Hugs and love - Surviving
louiseds
September 9, 2012 - 2:09am
Permalink
Lots of prayers for you, Ikam
Sorry to hear this news, but better now than later, I suppose.
You really do have good reason now for nurturing yourself and treating your body well. I hope you get a second and third opinion as to the next steps, and don't just cave in to the certainty of surgery immediately.
The situation with your husband will certainly not be helping, but at least you know where you stand now, and can move forwards.
Breathe.
Louise
ikam
September 9, 2012 - 2:39am
Permalink
I will have more assessments
I will have more assessments done in the UK. So it will be somebody else with whom I will discuss my treatment options...
mollymoo
September 9, 2012 - 3:10am
Permalink
Thoughts and prayers for you
Thoughts and prayers for you Ikam. Stay strong!
fab
September 12, 2012 - 5:55am
Permalink
Second opinion
Very wise Ikam
Time and patience and knowledge is best and then is time of course for decisions and action.
The following (bitter, sweet) is just something I read today, I thought you might like.
Love seeketh not itself to please,
Nor for itself hath any care,
But for another gives its ease,
And builds a Heaven in Hell's despair.
Love seeketh only self to please,
To bind another to its delight,
Joys in another's loss of ease,
And builds a Hell in Heaven's despite.
Songs of Experience, William Black
fab
September 12, 2012 - 4:40pm
Permalink
EEk,
That should have been William Blake
Surviving60
September 12, 2012 - 5:56pm
Permalink
Mr. B
I think we need more poetry on this forum! Nice, thanx Fab.
ikam
September 17, 2012 - 7:54am
Permalink
update
I am finding it very difficult at present. Cannot somehow get over a type of emotional detachment. It affects my thinking, concentration...and I have to be back at work on Wednesday...
I need to wait now for a specialist service to contact me with the appointment...then at some point the surgery will follow...
I would like to have it done asap, so I know for sure what type of tumour I have...
Surviving60
September 17, 2012 - 4:20pm
Permalink
Best wishes
Ikam, it seems like a good sign that they do not seem in a big hurry to operate. Being back to work may help by giving you something else to focus on for part of your day. I wish you the best - Surviving
ikam
September 24, 2012 - 5:30am
Permalink
update...
On Friday I got a phone call from my surgery that they transferred my referral from a local hospital to the university hospital. I was within 2 weeks urgent referral, but since Friday I have been again on 2 weeks target...
I am finding it very difficult at present...feeling rather powerless...
I spoke to the Surgery Manager asking why they did not send me straight away to the hospital that deals with cases as mine, but she was quite defensive...
So: waiting again...2 weeks target...it has been three weeks since my scan, 4 weeks since I know...
I went to some supportive therapy session, so at last I am out of a shock stage, but more sad at present...
MsNightingale
September 24, 2012 - 8:06am
Permalink
Dear ikam
Please know that you have many sisters here who are thinking of you, praying for you and sending you much love.
ikam
September 24, 2012 - 11:41am
Permalink
thank you...
THANK YOU :)
ikam
September 26, 2012 - 11:24am
Permalink
appointment
My appointment has been scheduled for tomorrow afternoon at the Royal Orthopaedic Hospital with a doctor who specialises in bone and soft tissue tumours.
I feel strange, kind of detached, forgetful...
prolapse2012
September 26, 2012 - 1:28pm
Permalink
appointment
Good luck tomorrow, and just know that we will all be with you while you are there. We are here for you!
littlerabbit
September 28, 2012 - 2:57am
Permalink
are you okay?
I hope everything's well.
ikam
September 28, 2012 - 10:12am
Permalink
thanks for asking
Thanks for asking. I am ok, but rather detached. Got an urgent referral for MRI scan, which will happen tomorrow. Then they will decide next Friday on their meeting what happens next. I will also have a biopsy at some point. I will most likely have a surgery, that he said is with some risks as there are some main arteries and nerve endings. This can explain why I feel aches and pains in a different part of this leg.
For the time being I have decided to walk less (I love walking!) and I will not do much dancing at "5 Rhythms" today, but I will go just to meet people...
It is all pretty scary and as I am dealing with this on my own i feel often exhausted but also lost in times. Planning a straight forward journey required a lot of concentration and I still have problem with deciding which route to take.
thank you for everybody's support :)
Ikam
Surviving60
September 28, 2012 - 10:27am
Permalink
biopsy
Ikam, what the heck are these doctors doing? I thought from your posts that you had a biopsy a weeks ago. Did everything start all over again when they switched hospitals on you? So sorry for what you are going through, all the waiting and waiting.... - surviving
ikam
September 28, 2012 - 10:44am
Permalink
biopsy, cont.
Surviving60, thanks. I had assessments done in Poland, they were translated to English. At least they don't ask me to repeat USG! The biopsy I had in Poland was so called "fine needle biopsy". This one will be more invasive and bigger sample will be assessed.
I am pleased that I will have the MRI. But I am also scared...waiting is very difficult...
ikam
September 28, 2012 - 10:53am
Permalink
a book
I bought a book today: "Healing into life and death" by S. Levine. There are few poems and mediations there...
I want to heal...
ikam
October 7, 2012 - 10:45am
Permalink
more assessments...
They were unclear after my MRI scan. I will have more assessments next week, chest CT scan and another biopsy...then I will see a consultant to talk about treatment options. I am so exhausted...
Bluesky
October 7, 2012 - 12:55pm
Permalink
Hi Ikam..
Hi Ikam... I can underastand your situation we are thiking about u hope u get speedy recovery without any traces of illness Ameen..... Do some concentration yoga with deepbreaths closed eyes and think of being in a green grass with lots of beautiful trees flowering and fruiting every thing with in ur reach and enjoying flying Aah its so good to be in out open space green Grass and Bluesky..
Hug and love to you :)
ikam
October 11, 2012 - 8:34am
Permalink
next step...
My date to see a consultant has been scheduled for 18th October. So I still have one month to wait...
Now, when I have my pelvic dysfunction under control (I never believed it would happen!), I am finding it very hard to be faced with yet another and serious health problem...
I will be seen by a Sarcoma specialist, so I guess they have some ideas...
I had my biopsy done yesterday, this time under a local anaesthetic, as a bigger sample was taken...Feeling sore today, and so low...
Spoke to the McMillan nurse. It is such a good service...I was also given a link to the Anxiety web-page, which I may use...
I almost have no pelvic/rectocele symptoms :) Just some discomfort from time to time, but manageable...this feels SO GOOD!
Surviving60
October 11, 2012 - 11:30am
Permalink
So sorry for the wait
Sorry Ikam that they keep delaying and delaying. But maybe that's a good sign. And it's amazing that your rectocele is behaving, you must be doing a lot of things right these days! Keep strong - Surviving
Aussie Soul Sister
October 11, 2012 - 4:27pm
Permalink
Ikam
Hi Ikam,
Congratulations on your success with prolapse symptoms.
Thinking of you & sending love & strength for a speedy recovery.
Best wishes
(((hugs)))
Aussie Soul Sister
ikam
October 19, 2012 - 10:59am
Permalink
huge relief
I got my results yesterday, the tumour is benign...I will have a surgery for it on 20th November. It is quite big, and still grows, compressing some nerves in my leg...But now, I feel much calmer...
Surviving60
October 19, 2012 - 11:06am
Permalink
WOW
Oh my gosh Ikam, so happy for you, so relieved. Today is "the first day of the rest of your life"!! Keep us posted here! Happy happy happy. - Surviving
ikam
October 19, 2012 - 11:13am
Permalink
:):):)
Yes, it is! :)
chickaboom
October 19, 2012 - 1:08pm
Permalink
Thank god!
Hope your surgery is smooth sailing
fab
October 19, 2012 - 4:30pm
Permalink
Amazing strength
Ikam and courage. Will be nice to have you back. Which of the poems you read in the book you mentioned were most meaningful?
MsNightingale
October 19, 2012 - 10:35pm
Permalink
Dear ikam
I am so happy to hear this! Yes, you have been enormously strong. Good news and yes, your new life coming! Love and Best Wishes.
gardengirl
October 20, 2012 - 1:42am
Permalink
onwards and upwards
My best wishes too!
We are often at so much mercy to the medical profession and all the tests and interpretation of those tests. I remember finding a lump in my breast about 20 years ago. It immediately scared the daylights out of me. Then there were all the "tests' which went from one test to the next and finally a biopsy of the lump. It took forever - or so it seemed for the results- benign. Thank goodness. However, I think I stressed more and aged more as a consequence of all the testing, waiting and worrying.
I read with interest the blog in Feb this year about dispelling myths regarding mammograms. I could relate to what was written.
The bottom line is that we are far better having as healthy a diet as we can manage, keep up the exercise and we can lessen the chances of all kinds of issues. So I gave up the monthly breast checks women are advised to do after my scare so long ago now. It seemed that as women we were given a life sentence from the time we grow breasts, to always keep checking them and at the end of the day, I think more women have been tramatized than have had years of quality life added.
Aussie Soul Sister
October 20, 2012 - 3:01am
Permalink
Ikam
Wonderful news dear Ikam,
Sending love & best wishes for the surgery & speedy recovery.
(((hugs)))
Aussie Soul Sis
ikam
October 20, 2012 - 5:01am
Permalink
the secret of healing...
Just a little poem from the book:
"The secret of healing is
there's no secret at all.
Healing is an open book.
You are now on page 13."
fab
October 20, 2012 - 5:14am
Permalink
Love it
What a clever, knowing author and reader
louiseds
October 20, 2012 - 11:32pm
Permalink
Ikam and Gardengirl
Ikam, that is wonderful news. What a relief! Best wishes for your surgery. Doctors and surgery can be very useful. ;-)
Gardengirl, out of curiosity, what was the longer term outcome of your breast lump. Did you have it removed?
Louise
gardengirl
October 21, 2012 - 8:49pm
Permalink
breast lumps
Louise, I left the lump alone after all that. I don't even go bother looking for it any more. It just seems like the medical profession is always wanting people to go looking for bad news. We are told to have this test done or that and we could spend a lot of time and money on having all the tests done.
I did my degree in health promotion because I wanted to help people to be healthier. Sadly, I discovered that there are few jobs in that field and lower pay. Most of the jobs go to finding and fixing the problems after the fact.
I know that the medical profession does do some fantastic things and we would not be without them but I suspect our health dollars would get a much better outcome if we prevented problems in the first place. But sadly, I have become quite cynical-" you can lead a horse to water but you cannot make it drink". So for all the well meaning health programs and information, at the end of the day, people make their own choices and will possibly have to endure the consequences.
And I would add that I am also guilty at times of making poor lifestyle choices and I should know better!
Di
Pages