myofasial pelvic pain

Body: 

OK here I go. It's a long one. History. Two kids. First child was a large boy, breach but no cesarean, second was a girl, small, normal birth. Suffered a fractured tail bone while pregnant from falling down flight of stairs. Huge abdominal repair early thirties. Also about then was the onset of what has become severe osteo-arthritis of the spine. Anyway, around 40, I went through a terrible divorce and my health suffered, and I had thyroid issues. Before I was able to convince doctors it was my thyroid, even though I told them it ran in my family, I was diagnosed with CFS, PMR, and finally fibromyalgia. I was sent to 3 psychiatrists and 2 counselors, because I was supposedly harboring guilt or something and not being truthful about myself. Finally I convinced one of the psychiatrists to give me a script for Armour Thyroid and within 3 weeks I was feeling much better, mentally, but my body was beginning to hurt more and more. I worked out, I lost weight, but with being hypothyroid, it wasn't so easy anymore.

I met and married a man who was 12 years my senior. We did a lot together until it began to get harder and harder for me to get around. First it seemed it was my back causing the problems, then had several bouts with diverticulitis infections making me hurt so much inside my pelvic/hip/back area. Taking antibiotics depleted my body of magnesium. So I took ionic magnesium as part of my diet. It hurt so bad for me to just walk out to the mail box. I couldn't understand it. I used to walk miles. My husband and I walked the Grand Canyon the year before we got married.

About three years ago, I had gone in for my gyn. check up in Nov and all was OK. Then in the end of Jan. suddenly, and I mean suddenly, I had a pink beach ball protruding from my bottom after going to the bathroom. Holy Smokes. I don't know how I knew, but I knew it was a prolapsed bladder. You'd think I'd have had it three months before, right? Nope. You'd think my gyny would have said something. I called, but I couldn't get in to see either of my two Gynecologists that I had been seeing for six weeks at either of 2 clinics even though I said it was really important. So I went to my family doctor the very next day. With his referral, I was able to get into Loyola where I had a Divinci assisted robotic Laparoscopic sacral copopexy with TVT as I not only had a bladder prolapse but a vaginal prolapse as well. If a women is pre-65 the uterus is left intact, after age 65, the uterus is removed. Since I was 65, my uterus was removed, my cervix left intact. my bladder was lifted fixed in place to the pelvic wall in March of 2012.

I have been followed for the last 2 years at Loyola and 2015 is the third year after this surgery. When I went in the last time for my check up, I was diagnosed with myofasial pelvic pain and referred for Physical Therapy to address this issue. I had never heard of this before. I was told that mostly women have this, but men can get it too. I was told that women get it from child birth, but you can get it from built up scar tissue (my abdominal hernia scar is over ten inches long alone), and internal scarring. Also damaged connective tissue. I don't know what that means. I don't know anyone who has had this or how they have been helped with it.. I did see a special PT for 10 sessions and it seemed to help some. There are some simple exercises to do, but because of other circumstances I haven't been able to do them as regularly as I should, so I don't know if they help that much. The PT is going to call me back after the New Year to set up more appts.

Sorry for so much rhetoric but I guess my question is "Does anyone else have any experience with this type of problem?" Also, I don't know what I am fighting anymore. Back pain, fibromyalgia, latent hypothyoid problems (my FT4 is very low), A combination of all three. And yes, I had this pain before the operation I just had. I am going nuts. I just want to be able to walk without pain. Just walk. Seems like such a simple concept until you can't.

Hi ComputerGal and welcome. Just a couple of questions for clarification. What was the huge abdominal repair referenced in your first paragraph? And what exactly do you mean by a vaginal prolapse? It sounds like you still had your uterus at the time this was identified, and I don’t think a prolapse of the vaginal vault can even occur in the presence of a uterus. So, are you talking about a uterine prolapse?

Most women come here when they are at the pink beach ball stage, and we tell them how they can stabilize and manage prolapse safely and naturally. We have kept many women from going under the knife. Wish you had found us then.

Anyway, those couple of clarifications might help us understand your situation in a more complete light. - Surviving

Hi ComputerGal,

I am sorry to hear of your troubles. This is why at WW we try to make women aware of all the ways they can be snagged by the modern medical system. There is no surgical treatment for prolapse and the more operations a woman undergoes, the less she has of her natural pelvic organ support system.

From the WW perspective, after abdominoplasty, hysterectomy, sacrocolpopexy, and suburethral sling, there is really only palliative care. An anti-inflammatory diet, meditation, natural pain relief (for instance, cannabis preparations are now legal in several U.S. states for people with chronic pain), an external support garment such as the V2 Supporter (prenatalcradle.com), learning about WW posture (there is a clip on YouTube), and massage/myofascial therapies, are things you might benefit from. Many WW exercises forcefully move the organs forward, but there is no way to know whether these might compromise both the sacrocolpopexy and the sling.

I wish we could be of more help but am sending hope for relief from the pain!

Christine

Hi, I'm back. I've been sick, so not online. Yes, Christine, I did mean uterine, not vaginal, duh. I had an abdominal hernia repair because I was very tiny & my son very large & breach. It tore me apart pretty bad. By the time the doctor realized I couldn't have a natural birth, it was too late. We both nearly died. Consequently, my muscles were extended beyond the "yield" point, & I always looked several months pregnant afterwards even tho I weighed 104 lbs. So after I had my daughter later, I had the abdominal hernia repair. But nothing was done back then that left you physically pretty like they do now, thus the huge scar & scar tissue to match.
I have been looking for answers forever. It doesn't seem like there is one simple answer but a mix of several combined. My best guess is when one thing goes out of whack, it snowballs & all kinds of things can happen that make it harder to find where to start fixing things first. I think the first to go was my immune system. Then my back started having big problems. Then what I thought was my back was diverticulitis infections which I'm controling with probiotics. But I was still getting unexplained pain so I kept assuming it was my back until the doctor at Loyola said it was this myofascial pelvic pain! Something I never heard of before. Apparently the muscles involved are, bear with me on the spelling, the Quadratus lumborum, the Iliacus, & psoas. I know they are deep inside & I can feel them when they are starting to become inflamed.
I am getting the PT treatment for this, was anyway, will again, when the therapist calls back. She is good. I am taking liquid suppliments for my thyroid & body nurishment. It seems to have helped. Thank goodness, we are not ones to eat junk food. We have venison & other game, and I make most things from scratch, but I still remain as much overweight now as I was too thin 20 years ago.
Anyway, I was having a really bad day and needed to cry on paper, so to speak. I just wanted to know if there was anyone else out there dealing with the same issues. Thanks for taking the time to answer me.