Giving up!!!

Body: 

Christine, It's me again, and after fighting with this for almost 2 years now, I am just too tired to keep it up! Both my daughters have already had a hysterectomy with really no complaints! I hate the discomfort and starting to sit is so weird feeling! It is so far out now, I can see the dimple with a mirror! I also am depressed about having to give up my job, because I know I probably won't be able to do any lifting as they say! You all have helped me a lot the past 2 years, but I'm getting older and weaker! It's uncomfortable to walk anymore!

Nancy

Oh Nancy…I’ve thought of you often and have wondered if such a plan was in the works. I knew when your last daughter had her surgery that you would probably be next.

Godspeed, dear friend, and I can only hope the surgery is everything you are hoping it to be.

(((Hugs))),

Christine

Hi Nancy

I read through some of your early posts, though not all of them. Did you ever give the v2 support garment a go?

You have just about given your all to avoid this surgery. I am so sorry that Wholewoman techniques haven't been enough to enable you to keep going with it. Nevertheless, it is great that you have posted with your decision, and I hope you call back occasionally to tell us how you are going. I know you won't be leading us up the garden path with exaggerated stories of feeling like a teenager again. It is not often that a women who is part of our own community decides to opt for surgery, so your comments in future will be read with interest. I do so hope it goes well.

I found this article while ferreting around on the Web looking for stuff about ovaries and menopause, http://www.athenainstitute.com/oophorectomy.html . It is about the role of ovaries before and after menopause in relation to hysterectomy. I am not trying to change you mind. It might just fill in some gaps in your information. I found it very interesting. I would hate to think that you had an incomplete picture of the wider implications for your body of hysterectomy and ovary removal, particularly as your daughters were probably pre-menopause when they had their hysterectomies. They have not yet been where you currently are now, and it seems that the guidelines are different, depending on the reproductive age of the woman at hysterectomy. Anyway, you might gain something from it. I hope so.

Best wishes Nancy.

Cheers

Louise

Hey Nancy- how old are you? I know it's rude but I'm curious. and just another thought- can you do the ab isolation exercise? It sucks everything up-
2 years is a long time to go with no improvement. that must be so frustrating. I do the 2 steps forward one step back routine- but I do seem to be getting better over this last year. I can not imagine myself being patient with no improvement and lots of pain for that long.

Never say never. I think I will never have surgery but if my uterus gets so low it is coming outside I just might do it too. I say I won't. I say I'll just push it in and stuff a pessary in there to hold it up, but who knows what I will really be dealing with when (if) the time comes. I certainly hope everything goes well for you, your recovery is fast and you don't have any subsequent problems.

Hi again to all that posted for me and especially my good friend Christine,
I don't mind telling I'm 63y/o!! I am feeling a little better today, and it's my fault I was having this relapse! I have not been drinking enough water and what a difference a day makes, even with my face Ha-ha! both ends~!! Anyway, I'm not totally convinced yet and haven't even been to the doctor for 6 months or more! I want to learn more about what alemama was talking about! Sucking every thing up? You've got my attention, lady, tell me more! If and when I do decide to have the surgery I will definitely let you know! I like my job a lot, but if I have the surgery, it will probably be the end of it! It is hard fast work and requires lifting! Tell me more Alemama!! Nancy

at some point we all have to accept that older and weaker does happen but I know for a fact that early 60s are not the time for that. You are still a great age for building new muscle and increasing flexibility.
the ab isolation is a past thread- can you search for it? I don't know the exact name- but there is a link with a video demonstration.
Nancy I am glad you are feeling better today. I wonder if your job isn't helping things much. If you are going to quit the job if you have the surgery then why not look for a new job now. Something with less lifting?

I remember you well, from my early days here. you were a great source of strength for me and I'm really sorry to hear that things have not been going well for you.
I think alemama's post with the abs exercise was called 'does this work' or something like that. I couldn't figure out how to do it right, but its worth a shot.
and stick around this time, I've missed your posts!

Hi Nancy....I know where you are coming from...I am 63years and have had a prolapse uterus for about 2years.....but in the last 3months it has dropped very low and the cervix sits just outside, very uncomfortable..rubs on my pants and feels very heavy, naturally I have a slight bladder prolapse as well...I moved house so all the packing and lifting has made it drop have been doing the workout firebreathing reading posts and taking advice but I think I have just left it to late. I have changed my life style, I have always been very active and sporty and now I am unable to do those things I am not happy and very depressed most of the time.I feel at 63 healthy and fit this is no lifestyle...So I went to see my doctor....
thinking surgery...but he fitted a pessary so now I have my life back..yes I am a new person. So far I am very happy as I can do everything but not heavy lifting have a doctor who knows what he is doing and I think this is important.
So Nancy or anyone thinking surgery..try a pessary first and have it fitted properly by a doctor who knows what he is doing...I cannot feel the prolapse or the pessary.

Hi Louise, Yes, I am familiar with that support! I wear it every day! I haven't quite given up yet, I am thinking about another pessary! I've had the donut one and it was painful and very hard to insert and also didn't stay put! I'll keep ya'll updated! Thanks for the moral support!! Nancy

Hi Bling:
I'm so happy for you! It sounds like you have found something that is going to work in your life. There aren't many people here who use pessaries, and I think it's great to have someone on the forum who started without one, went thru the process of being fitted, and is now starting to live with one. You can be a great source of information to us all. A test subject, so to speak :)

I tried the sea sponge without success, and can certainly discuss and share my experiences with that. It would be great if Christine could start a brand new thread just for pessary information. You would be a huge source of information and help to everyone, particularly the new people who come looking for information. And there are others already here, I'm sure, who also have their own experiences with pessaries to share. So much of the information is buried within other threads all over the forum, it's sometimes very hard to piece it all together.

At this point I have decided to live without a pessary, but it is certainly on my radar screen for sometime in the future if, as I get older, I feel I would be more comfortable with one.

Again, good luck to you!

Goldfinch

Hi Bling:
I know how excited you were about your pessary - sorry you haven't had more comments from people about your situation. How are you doing with it? I hope it has helped your depression and that you have returned to your 'normal' routine of power walking, exercising, etc. Please let me know! I'm thinking about you every day.
Luv,
Goldfinch :)

Hi Goldfinch...
Thanks for your reply...at this stage I feel great and I am back doing everything..yes even my power walking...
It is so hard to believe I cannot feel the prolapse or the pessary.
I still do the workout and posture but not the firebreathing as my prolapse is now held in place....
Lve Bling

Christine and all, I went to a female gyno today and got fitted for my second pessary! This time I opted for the cube! Hopefully won't go flying across the bathroom like the donut did for me many times! She said my condition has worsened (think I knew this)since I was in last year! And she supports my decision to delay surgery if this is what I want and it is right now! She said my problem is cystocele and something about the entroitis???? slipping out. What does this mean Christine? And what can help besides surgery? I need some medical knowledge here, please! Thanks for your past concerns, but I'm still one of you and hanging on tight as possible! Nancy Also, I have to assume the position to pee like you showed us!

Dear Nancy,

Wow…you’re learning all about the big guns of pessaries! I wouldn’t know where to start with either the donut or cube! The mere thought makes me wince. Did you try the ring-with-support before the others?

I’m not surprised that your cystocele has come down some (probably to the INTROITUS, or vaginal opening), but that doesn’t mean it will continue to progress until your vagina turns inside out. I have no medical advice to offer, but as long as your doctor is keeping an eye on things, try different strategies to stay comfortable and keep your symptoms mild. Many women in your age group are doing just that.

Hugs and please keep us posted!

Christine

Christine, Why do you call it the big gun? Curious, to say the least! I don't know much at all except the donut definitely did not work for me! My one problem is I love to work hard and I have never been one to say something is too heavy for me! I always try to figure out the easiest way to do things! Can you give me a website that has different pessaries? My doc has probably already ordered it but if the second one doesn't work, I will try others! I am having a hard time urinating, without assuming the position that you taught me! Sometimes in strange bathrooms, it's not too easy to do that position!
Nancy

Anyone with any info, just jump right in here! I love to read your stories!!

Nancy…try www.milexproducts.com The ring-with-support is suggested for 1st/2nd degree prolapse, which is what your symptoms suggest. It will lie somewhat flat between the walls and if you’re lucky, hold the cystocele forward and create more comfort for you. The donut and cube are often prescribed for more severe conditions. They hold the vaginal walls quite open, which means the organs on the other side of the walls can be squished into the vaginal space under the force of intraabdominal pressure. Doctors have long watched this progression. :) Christine

Bling, please tell me what kind of pessary you have! I'm going back to gyno tomorrow! Christine said the ring with support might be easier to adjust to! nancy

Hi Nancy...
I have the ring....my doctor has put it in and I go back every 3 months....he has given me a cream to help stop infections.
I went back to him 3days ago and everything is Ok...
Nancy I am going away for a few days so will not be on the forum for about 5 days.
I wish you the best we are all different so must find what works best.so far I am happy, do not feel the prolapse or pessary.
Bling.

Bling is it the ring w/support? I thank you for your prompt answer and if you don't have time to answer again before you go away, that's fine! Take care, Nancy

Christine, I looked up the milex and also www.bioteque.com for pessaries! Milex had a very nice description of which one works best for what problem! Also want one that is easy to insert and the cube was not one of those! Also, she said I could leave the cube in for a month or more, and that's not what I read on the manufacturer's instructions!
Should be taken out each night, and they say it is not easy to insert! She had a hard time with it also!
I'm going back tomorrow Friday to see her again! What should I ask her! Doctors these days don't want patients that question their knowledge, but that is what I am doing these days. my body is the only one I have and I want to do what is best for me. Not their bank account! Nancy

Hi Nancy,

Here are a few questions to ask:

• How is the pelvis positioned inside the standing woman?

• How is the vagina positioned inside the standing woman?

• I’ve heard that in normal anatomy the vagina is a flat, virtual space with the front wall pressed down against the back wall.

• I’ve heard that after some period of time – months or years – many women are no longer able to retain their pessary and must be fitted with a larger size.

• Is this because the pessary holds the vagina open, therefore making it vulnerable to the forces of intraabdominal pressure?

• Does this translate as the vagina beginning to turn itself inside out?

• If this is true, shouldn’t I start with the smallest, thinnest pessary available so that it might lie somewhat flat between the walls and, hopefully, push my cystocele out of the vaginal space?

• Milex shows that the ring-with-support pessary is supposed to be inserted to sit horizontally at the top of the vagina. However, women report that it does not stay in that position, but flips vertically almost as soon as it is inserted. Does this mean it is taking the natural axis of the vagina?

• Are there other pessaries that are designed to lay flat between the vaginal walls?

• If not, why not? How long has it been since a new pessary came on the market?

• If I leave this cube in for several weeks at a time, do you think I might develop a low rectocele?

• I’ve heard the pelvic organs are suspended from the spine and pelvis. Do you think prolapse is primarily a postural problem in women?

• Can the “gold standard” of surgical treatment for prolapse be anatomically defended?

• Why is there a 30% re-operation rate? Are second and third surgical outcomes any better?

• If prolapse surgery statistics are so grim, shouldn’t we take the most conservative course possible at the onset of treatment?

• Is leaving the cube pessary in place for months at a time the most conservative course?

:-) Christine

Oh this is why I love you!!! Such a good thorough and fast response! Us gals never have to stew over our worries because you come to our rescue so fast! We always spend weeks worrying before we can get in to see the doctor! I am thinking why is it so easy to get into her?? I call 1 day and get in the next!!?? She's very young looking, hard to tell because she's oriental! I like her very much though! Seems willing to make me comfortable with whatever I decide! Don't worry, I'm not letting my guard down! I don't trust people that easily!
Anyway, I spent 2 hours writing your questions out and then typing them so I can print them out very neat so she could read them easily today! I'll tell you what she says, of course, and keep you posted as to the results! I typed them all even though some sounded a little harsh, it might make them stand up and realize how they are affecting women! Even though, of course they probably don't care because this is their bread and butter so to speak! They probably wouldn't want to be the one lying on the surgery table! Hey, this is an interesting question! How many woman gynos have had this surgery themselves, and are they happy they did it? I hope I make an impressive office visit today, being so informed!! Thanks to you! You made my day, Nancy
Oh yes, the manufacturer that they have is Bioteque.com and they show no ring with support! Is ring with knob the same??? Check out the dish? Where Milex gives you info on which one is good for what problem, the bioteque company did not! Any input there???
Nancy

Addressing Christine's question about how the pelvic organs lie within female anatomy it is very interesting to look at the drawing in Christine's book and compare it to Lusk's "The Art of Midwifery", which was published in the late 1800s and was a foundation for the modern obstetrics field. Lusk admits his drawing is not correct, having been taken from a sectioned corpse who had been prepared by stuffing the rectum with cotton and filling the bladder with alcohol. The vagina and uterus are dislocated; the erected uterus is poised for a slide right down the vertical, straight vagina, yet how many ob/gyn students took that plate to be their visualized image of the female interior? My point is, the misinformation began there when "modern medicine" took control of "midwifery".

Dear Nancy and Anne (and Goldfinch!),

It is so very true that things took a terrible turn when men began to “specialize” in the birth process and in women’s health disorders. It was just too easy to produce causes and effects that ultimately created an entire industry, which we can now argue is not in the best interests of women!

Thank you so much for your sweet response, Nancy. I try my best to stay up with things here, but it is just not possible to answer every post. BTW – Goldfinch – if you are reading, I’ve wanted to answer your question about overweight and prolapse but have not yet gotten to it. However, we have addressed this several times in the past (wish there was a way to catalogue all the posts!) and if you type “rectal pillars” in to the search function you should find several posts on the subject. The bottom line is I think the pelvic interior adjusts okay to weight gain, but as we all know, overweight stresses all of our body systems. Sudden weight loss removes the fat pads (rectal pillars) under the pelvic diaphragm and can cause new onset rectocele.

I’m in a whirlwind here and will not be around much for the next week. Am giving a large, low-budget party on the 21st and am making all the food for about seventy people! We are going to have (volunteer) musicians, dancing, and tomorrow dd and I are driving to the mountains for pine boughs to fill our place with. I’ve made all our party clothes and am so excited!! Just have to pace myself though, cuz there remains a ton of work to do!

Please take good care of each other and all blessings at this precious Winter Solstice Time!

Love, Christine

Hi Nancy,

Was hoping we'd hear how it all went with the new doc!

Happy New Year!

Christine

Nancy so sorry I didn't get back to you but I closed down my Computer after I posted to you......I just have a ring not w/support....probably toooo late now to be of any help.
Hope your doctors visit was a success.
Bling