what do I do now

Submitted by tucson on March 3, 2009 - 4:15pm
Body: 

Hey, It has been a while. I sent off for DVD. Hope it helps my ADD brainunderstand. I have the books,had over 2 yrs of chronic pain therapy because of injury. PTs refuse to even discuss the list of problems with back/hip,etc.they have a long list of structural problems. I have all info from medical records,but it just goes noplace. The other thing was I had 8 wk surface yeast infection.Finally I changsd M.D.was dx.and given script for a cream. Problem was I ended up getting it over counter ,had same ingredent. the nice man got me athletes foot cream and said it was the same .The end result was to say the least a nightmare.It was applied for 2 wks. where no foot had ever been.this resulted in extream pain for weeks.Finally saw a gyn and started using compounding pharm. Various things tried ,with various dx.I ended up with no perservative lidocain gelfor pain.I have been getting better.Sitting and walking flar things up and increase my POP.The reason for this post is:I can't seem to understand how to function re: activity. I am talking about the POP.GYN gave me the 3 options and thinks it a GYN problem, and assured me to not lift,etc. I know it must be possible to get on with life as I first found y'all last year.I still don't have a computer so it does make it more difficult.I'm 66 and before I moved to this state hand few problems. Most here as a result of M.D. even POP.I want to move to the southwest.For the first time in my life I have no family,friends, and little money.The M.D. said sitting in car would not affect POP just lifting. I think not,but I just don't know how to do everyday things.I have never experienced such asence of helplessness.How do I regain my independence.I have no idea how I can get in the car with 2 dogs and move to,yes, Tucson,Az. However I am not going to spend much more time here.I will move I just want some feedback on how to use this body now.I would like to have a dialog with others here but Ifeel like people are so garded about things. I have never posted so much ,but my frustation is too much. I don't even type so this is an effort. Well, I'm not sure where this goes, but I will send it anyway. Thanks ,for being available.I just saw being garded here ,I did not mean this site . Warmly, Pat

granolamom

March 3, 2009 - 5:09pm

sounds like you've got alot going on over there!
and it also sounds like your gyn doesn't understand that prolapse is a structural issue (which by the way, IS sometimes worsened at least temporarily by sitting in the car for a long time). likely related to your other PT issues. its all related actually.
I, and many others here, have found that staying in the posture has enabled us to get on with life (and even lifting!). but you should probably bear in mind whatever limitations you have due to your injury. some (myself included) have found that the posture is helpful in reducing other problems as well, such as back pain, neck pain, etc. my tmj pain has all but disappeared.
maybe if you give us some more info regarding the nature of your injury and related pain/limitation issues we can try to help you brainstorm. know however, that no one here can take the place of a doctor or even a therapist who can actually see you and put her hands on you. but sometimes someone has a similar experience or something that can set you in a new direction.

if you type 'yeast infection' into the search box here, I'm sure you'll pull up loads of posts and get loads of great information regarding treatment and prevention.

and don't underestimate the negative power of feeling alone and helpless. It isn't easy to be on one's own. we have friends but no family nearby and it makes life really hard sometimes. that kind of stress often expresses itself physically too.
treat that body of yours kindly adn gently. feed it good high quality food. make sure you get regular sleep, regular sun, regular walks. even short walks (say 5 min) can be powerful.

I hope you can find time to get on a computer and type out any other questions you come up with. the women here are wonderfully supportive. hopefully someone will have the advice you need.

tucson

March 3, 2009 - 6:53pm

Hi, came back to senion center and saw your reply, thanks. A few min before they close . Ihave difficulty with the concept. I hope the yeast thing is not going to be the cause of something else.It has been much better.I moved to the pacific N.W.USA.I lost everything in my life -very strange- and ran to someplace I had never been.I had an M.D. cause a fx. t-11 and then CYA. This started a downward situation due to explosive caughing for 3 wk. and probably had something to do with POP.He would not give script cough meds.I should have said something but did not.I started to have full feeling .Went to M.D.s many times. Changed M.D. many times. By this time I had started a "RAP" sheet.I then got assaulted downtown adn the person ran off. I couldn't lift my arms.I was in pain though out my body . The M.D. just sent me to PT with Dx. of neck pain. I still takeVicodin daily. Part of the pain therapists reports say:"rotated sacrum, coccyx l4, t8, c1,inflamedl sacrotuberous lig and tenderparaspinals at c6&t8 sorry for the jargon. But trying to understand the book it seemed like this whole assault thing and pain was being discounted, but PTs would not consider talking about it. There is more re: result of injury,but probably only somebody like Christine,could put it all together.I can't find anyone who will even try. Anyway,I want to move.I still don't know anyone, but big difference in how peoplr are.I put up with the pain I just don't want my organs falling out in podunk, ca. Well time for things to close. Thanks,I will becareful what I can doto not make things worse fromPOP. Iwish women would come out of ther closset if they have POP and work to see what is outside the M.D. box. Pat

granolamom

March 3, 2009 - 9:32pm

while you may need to put up with the pain, and sometimes we do need to suck it up and deal, don't lose sight of the fact that pain is an indicator for us. pain lets us know when something is wrong. now, we can't always fix everything and get rid of every type of pain, but maybe if-no-when you find somethign that is helpful, a slight reduction or change in the pain will let you know you are on the right track. if your PT discounts pain, you need a different PT.
in any event, it is unlikely that your organs will actually fall out. I think the worst I've heard 'round here was a cervix that was actually outside the vulva, but not hanging down by the knees!
I'm hoping you can somehow find a way to get moving again, in a pain free confident way, to be able to get into the whole woman posture. that's the way to stabilize a prolapse.
I also wish our medical system was such that somebody would look at your whole picture and not just the pain, or the back injury or the prolapse in isolation.
but christine's book, and forums, are chock full of ideas and techniques that are outside the MD box.

also, was wondering, ever hear of Feldenkrais? its a type of therapy which might prove useful for you. ask your PT.

louiseds

March 4, 2009 - 7:40am

Hi Pat

Welcome. This is a good, comfortable place to hang out. We are not terribly good at being guarded here, sometimes TMI in fact, but sometimes reality is TMI, and you just gotta get used to it. If it is real, it is real (wry smile).

So sorry you are having all this pain, and your body won't behave. Granolamom has given you some very sound advice. Keep seeking. Doctors know little of the stuff that we can discover for ourselves and solve the puzzle that is our bodies.

Believe me, you will get better. Just go to www.wholewoman.com and check out the FAQ's, if you haven't already.

Just don't turn your life upside down again to try and run away from whatever you are running away from (maybe your own fear of yourself? Your pain?). With ADD, the urge to flee is strong, and very insistent when things get tough. I know this from personal experience. :-(

Just don't run away. You will make sense of it in the end. We will help you. All you gotta do is ask specific questions and the wise Wholewomen will answer them to the best of our ability. Put your two bob's worth in too. You no doubt will have a lot to offer, once you have calmed a bit. Many women arrive here distressed, just as you are. It is amazing how quickly they begin to grasp things, bit by bit, in baby steps. So will you. Be patient. Be kind to yourself.

It's late here and I need to sleep. Will check in again in the morning.

Cheers

Louise