When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
granolamom
May 6, 2009 - 9:42pm
Permalink
blissfulsinger
hi there and welcome to the forum
Your story reaches way inside me, I am so sorry for all you've been through; from the traumatic first birth, the development of prolapses, the subsequent surgeries and now the health/pain/hormone issues and PSD.
most of the women here have not had any surgical repairs of prolapse, and the posture was developed with the still-intact woman in mind. that said, I still believe it is possible that you will find the posture at least somewhat helpful. I think the main thing for you will be to realize that your anatomy is no longer what it was so you will have to figure out where things are now, how everything relates or moves with everything else and how to make the posture work for you.
try to forget the 'sway back' issues you've had, even though this posture very often results in an increased curve of the low back, it really is not the same thing as a 'sway back'.
I had an abdominal diastasis after the birth of my second child and it only began to knit together after I started doing some of the exercises here (specifically the firebreathing - its in the book).
the lifestyle tips here are sure to benefit anyone and everyone, namely avoiding constipation, no straining on the toilet, avoid clothing that constricts or compresses at the waist.
there are some women here who have experience with PSD, maybe some of them will chime in.
Christine
May 7, 2009 - 1:14pm
Permalink
where to go from here?
Dear Blissfulsinger,
Thank you for sharing your story with us and we are all enjoying the opera-speak!
Your very experience is exemplary of why urogynecology is Not the place to go with prolapse. The skill of the surgeon hardly matters when the surgeries themselves are faulty at their core. The practice of urogynecology was created only a couple of decades ago to corner a huge market. All of the surgeries - with the exception of the new robotics - were developed years before urogynecology was established. There is absolutely nothing new in urogynecology except a whole new level of arrogance and denial.
A “sling-mesh” repair does not describe what you had done, but I am assuming it was a uterosacrocolpopexy. This is an absolutely terrible procedure that pulls your uterus - and therefore your front vaginal wall - toward the back. A recurrent, irreversible cystocele is the result. Closing the cul-de-sac (enterocele repair) and the original posterior colporrhaphy have left scar tissue that likely obligates your back vaginal and front rectal walls to move as one, rather than sliding past each other to perform their various functions by way of their natural fascial linings. The uterus is a large organ that is naturally weighted toward the front of the body. The so-called uterosacral “ligaments” are really conduits that carry nerve and blood vessels. How could you not experience as pain the constant pulling on your sacral spine as a result of your uterus being unnaturally tethered to it?
As to “where to go from here” I am less certain about, but I think it is very important that (1) you understand what was done to you and (2) you see that this is the way it IS with these surgeries and not something particular to you or your surgeon. Urogynecology needs to be revealed as the dark practice that it is and women disabused of their denial in thinking otherwise. You will, and probably have, encountered post-surgery women who protest otherwise, but push on their reality constructs a bit and you will see how quickly they retreat to da-Nile. It is not about “bias”, Blissfulsinger. It is about the fact that millions of women are suffering the exact same symptoms as you, for the simple reason that the operations themselves are fallacious.
I believe PSD is a problem of pelvic instability that can be quickly relieved with this work. The symphysis pubis is a very dynamic joint that narrows and widens both in the front and back. The sacral joints, hip joints, and symphysis have highly specialized movements that they perform in concert. Simply by walking with our feet pointing straight ahead, we narrow the SP in front, relieving pain and tension on the joint. In your case, however, there are no guarantees that your pelvis even moves in natural ways anymore. How could the sacrum move freely with the entire pelvic interior (by way of scar tissue) tied to it?
I want to say, YES! try this postural work and see if you can naturalize your pelvis/organs as much as possible. But the reality is that the work may even worsen your symptoms. There is no way to know. The take-away lesson here, Blissfulsinger, is that the best way to avoid a hysterectomy is to never have pelvic floor surgery. Every one of these operations is conceptually faulty and fraught with failure. The best we can hope for is to outlaw urogynecology and make sure future generations of women are protected from a surgical framework that was unsound from the beginning.
I loved and trust Granolamom’s response to you and btw, there is no better way to treat abdominal diastasis than by stretching into natural posture, where the rectus muscles are pulled centrally.
Wishing you well,
Christine
Judith
May 7, 2009 - 2:21pm
Permalink
New and pubic symphysis questions etc
Hi Blissfulsinger
Quite a history there, many sympathies. I don't share most of your medical history but I also have a condition that affects the spine, causing structural changes, and, as I've written in other posts, one thing that I find very helpful is to visualise a more accentuated lumbar curve than I actually have ie I sort of imagine myself walking around with a more pronounced curve. This seems to effect a physical shift. Re whether the posture is ok to engage in, my instinctive response (bearing in mind that I'm not a professional expert)is that the WW posture IS the default posture, our natural healthy one, and any other posture is the one being "engaged" in, if you see what I mean. I have learnt a huge amount from learning Alexander Technique. One thing is that you think and direct your body rather than "do". So there's no coercing your anatomy into a posture that's inappropriate for it, rather it's thinking your body into certain directions. AT has to be learnt by experience rather than from a book, but the main directions are to release yuor neck, so that your head sits freely on the top of your spine, and then to let your back lengthen and widen (this doesn't mean tucking in or anything like that). Following the AT directions simply encourages your body into the WW posture, or as much of it as your anatomy permits, there is no doing or forcing. If you're interested then I recommend that you read up about it and contact an AT teacher. One of the many benefits of doing AT is that it gets you to focus on your entire body rather than on any one bothersome bit of it eg prolapse. Hope that this is of some use, best wishes, Frances
blissfulsinger
May 7, 2009 - 4:10pm
Permalink
RE: Answers for Newbie PSD Questions & WW Posture
Thank you for your responses. For the record, I count myself fortunate only in that I did not have a hysterectomy. I am aware of the dark and gross misuse of healing power that was perpetrated upon my body. I did have a gortex mesh repair to the cystocele in addition to the spinal graft of the uterus in a subsequent surgery. I have actually read my surgical transcripts. Interestingly, you can actually see the shadow of the grafts on my ultrasounds with my two succeeding pregnancies. I am definitely feeling and dealing with residual anger as I have read and faced this site. But it was not available when I was screaming for answers. I cannot go back, I can only be glad that my nerves are mostly intact and that further damage beyond the obvious fact that everything is completely rearranged (lol) was not done, and that I did not give in to pressure to lose my female parts completely.
I would love some insight or just some comfort for how you cope with it all? I am one of you despite having surgery. I feel slightly rejected at the harsh words about what was done to me. I am aware that I went for healing and received further injury, that is why I am here. I suffer the consequences of bowel scarring absolutely. My backaches, especially during my cycle, are cruel. I have three children, but I have had 11 pregnancies. There is no cause for the miscarriages besides that implantation seemed to be a problem... and I am not surprised by that, with how my insides have been knocked around. I have flooding that makes it impossible to leave the house and although I love cloth pads and am a conservationist at heart, I have not found a cloth/natural product that can withstand the tidal wave that is my menses. Is my menorrhagia related to my prolapse and repairs? Probably but no one can say; and I am not feeling trustful in my doctor, who tells me that I should wean so she can put me on drugs and that it is too much demand on my body...
I have coped post-operatively for years now. The recovery alone was hell. But I am alive and young and musical and I have a beautiful family and I want to be positive and enjoy living again, as pain-free as possible. So I am asking questions of strangers on the internet about my most personal of subjects, lol.
Christine
May 7, 2009 - 5:35pm
Permalink
we are all one
You ARE one of us, Blissful! The straightforward nature of my response is in direct proportion to the seriousness of the problem of reconstructive pelvic surgery. I’m very relieved to know that you understand the gravity of the situation and I assure you that we’re all here to help you as much as possible.
I particularly grieve for you as I have lived the best years of my life with a prolapsed uterus that was surgically induced.
Your heavy periods are probably the result of the D&Cs you’ve had after your miscarriages. WIth scraping of the uterine walls, the endometrial cells become intermingled with the myometrial layer resulting in a thick lining that bleeds heavily. I dealt with it for many years and can attest to the fact than severe dysfunctional uterine bleeding is survivable. Now my uterus is quiet as can be with nary a bit of discharge.
Have you pondered the possibility of having as much of the surgery reversed as possible? I just wonder how these walls of mesh are going to react with the post-menopausal vaginal thinning that is every woman’s destiny. Finding a surgeon to take on such liability in a woman who is not having overt signs of infection/rejection might be tough, not to mention selling the idea to insurance companies. There should be a national foundation to help women who have been seriously injured by experimental gynecologic surgery. This part of our world is truly upside down and I am working as hard as I can to right it.
All our arms are wrapped around you {{{{{{{{{{{{{{{Blissfulsinger}}}}}}}}}}}}} as you live your sweet life and take one day at a time.
Christine
blissfulsinger
May 7, 2009 - 6:45pm
Permalink
Miscarriages & D&C (We are All One)
I appreciate your frankness and that you are here at all to find, truly I do. As many of us must be I am sure, I am deeply emotional about all that has happened. For me, I am digging into pandora's box, and I am sensitive and I think I read harshness in the tone that was not there. I apologize for being flighty and I accept your hugs with gratitude.
I would never submit to a D&C after the first one (it was very clinical, in an ER the things they said about what had previously been "my baby")... since my body was capable of complete miscarriage on its own, I only ever allowed the OB to do a pelvic ultrasound to make sure they were complete and everything was where it "should be." I did bring tissue in to the hospital for sampling/tests to see if we could determine why I was mc. I had other tests too of course. I wonder what else could cause the heavy flows? They are clotty (sorry tmi) and worse with each cycle.
I appreciate your responses Christine truly; I find the science behind what was done to me fascinating and terrifying. Plus, I made a choice, and I try to take responsibility; I sought diagnosis and treatment. I made a choice to trust and submit to "treatment." I understand that the trust was placed in abusive hands, but I do own my own actions. I find the clinical information in your post useful, please keep it coming!
I did think of having the surgery reversed, but I have no insurance and of course, I am terrified of going under the knife again. Those surgeries hurt so much!!! The recovery time to heal to hard scar tissue... I cannot imagine how I would get the time now, and of course, goddess only knows what scar tissue I do have and would lose; I feel fortunate that mostly I don't have vulvodynia despite vault prolapse, but I do wonder if more good could come from added surgery, than harm?
Thank you for your support! Love and Blessings,
Jennifer
Christine
May 7, 2009 - 7:10pm
Permalink
all one
You are an amazing spirit.
May I offer another bit of paradigm shifting? How can you possibly take responsibility for a “choice” that was never fully informed? The surgeons have our core anatomy wrong, grossly inflate their own “success” rates, and do not even take into consideration untoward effects when calculating that success. Because your uterus has stayed fairly high, you would probably be considered a “success” by their standards! So how in the world were you supposed to make a reasonable choice? You were simply a blind child who was dependent upon the only women’s “health” care system available in our culture. Chronic anger and grief are burdens, no doubt. But likewise is carrying responsibility that was never yours to begin with.
Whether an excision operation for deeply embedded mesh would cause more harm than good is the question of the century in gynecologic surgery. The body is amazingly intelligent, though, and if at some point the mesh is rejected, it is possible the resulting inflammation might make it more easily removed than less. Hope, positivity, and a day-by-day attitude are best, as you instinctively know.
granolamom
May 7, 2009 - 7:57pm
Permalink
blissfulsinger
I hope I didn't misspeak, my intent was purely supportive.
while your story is one of the more severe ones here, many of us have gone through a period of anger. anger directed towards the medical professionals to whom we entrusted what is most sacred, our life giving parts and the birthing of our children, only to be mismanaged and wind up with a plethora of problems.
you ask how we cope with it all, and humbly, I do not feel qualified to answer you. what I am coping with is no more than a stubbed toe compared to the challenges you face. I think any of us could probably take a lesson from you in terms of coping, you seem focused on the positive, the moving forward. you seem to have accepted your loss and able to look ahead with hope.
all I can say is that you have tremendous strength within you, evident in your ability to insist on keeping your uterus and in the graceful way you express your pain.
strangers on the internet are the best ones to ask about your most personal subjects because we can be candid and we will never know you if we bump into you on the street. I hope we can help you find some answers or relief or at the very least offer a listening ear. so stick around and keep asking.
blissfulsinger
May 7, 2009 - 8:20pm
Permalink
All One
Thank you.
I wonder... is it possible that the swelling, pulling at my incision site (my c-sections both went through the same previous trans-pubic --crosswise slightly above the pubic bone-- incision which was also used twice for the "repairs") the sometimes tenderness and heat, and the ever increasing bleeding and misery during my cycle, are a rejection of that aforementioned mesh?
How would one go about finding such a thing out??
And yes, you present a paradigm I have considered. One that I will have to consider again.
alemama
May 7, 2009 - 8:36pm
Permalink
grace
"I am definitely feeling and dealing with residual anger as I have read and faced this site.
I am aware of the dark and gross misuse of healing power that was perpetrated upon my body.
I am aware that I went for healing and received further injury, that is why I am here.
I would love some insight or just some comfort for how you cope with it all?"
There is nothing I can say to this. Nothing. Your honesty is crushing. You are an amazing woman. Your body and soul have lived through so much. You are brave and strong. You say you are alive and I believe you are.
In theology, grace may be described as 'enabling power sufficient for progression'. You possess this grace, this power. This is how you are going to cope.
I am sad for your pain. I hope that you can find a way to feel better. I know PSD is very painful. I had a recent bout of it following the birth of my 4th child. I could not put on my clothing unless I got in bed. I couldn't stand on one leg. I stayed in bed for 2 weeks, then was up and around minimally. I am still taking it easy as my pelvis readjusts to not being pregnant- my PSD is gone for the most part.
I guess in the beginning I coped by figuring out the worst case scenario and meditating on acceptance of that situation. What I loved the most about finding wholewoman was that I realized there was something I could do. I felt some control slip back into my life. And then I started to hope. I hung onto hope even as my POP symptoms got more pronounced. I learned techniques for bringing my organs back into their optimal positions and I started to see improvements. small. but then any improvement was something wonderful to me.
Keep asking questions here. We may not be able to answer but perhaps in writing you will find healing.
Christine
May 7, 2009 - 8:44pm
Permalink
mesh rejection
Very possible. Your best bet is an intelligent, humane and compassionate surgeon. Teaching hospitals are also usually county hospitals where public assistance is provided.
blissfulsinger
May 7, 2009 - 8:45pm
Permalink
GranolaMom :-)
I could tell you meant only support in your post; I am sensitive and wanted the answers to be easy since the work is not. KWIM? And yes, if my story helps one woman realize that "reconstructive" surgery is not the answer, then I will rest more easily.
I will share that I do believe that when we are ready for answers, they come, whether we like them or not. And I also believe the universe will not give us more than we can bear. Pain is pain... the worst thing you have ever felt is still the very worst thing you have ever felt. My worst might be different that your worst, but worst is worst. Even "mild" prolapse is prolapse and nasty, scary, demoralizing. But we can support and respond to each other. I am not in the habit of asking for help, but I have when I needed it before, and I am asking now. Teach me what you know. :-)
Would it help you to know that I had literally just had the conversation with my hubby that we should stop trying, after a 15 week pregnant mc, (a couple of months recovered) and we got the positive pregnancy test that wound up being my daughter. That was something I wanted more than life itself from childhood, to parent a little girl, to continue the three generations of women in the room that I had with my mom and grandmother. Something I had decided I could not chase any longer, that I did not have the physicality to pursue any longer. And there she was, and there she stayed, and now she is here and she is our heart. Her brothers adore her too. There is something so powerful in realease, don't you think? I don't know, I just know that there is evil in my life sometimes, but there is also magic.
blissfulsinger
alemama
May 7, 2009 - 8:51pm
Permalink
and one more thing
you just keep nursing that baby. Your intuition to stay away from the drugs and nurture your child is right on! Support your blood- drink floridex and chlorophyll- alfalfa. You might try something called wombstringe- it is a tincture- or perhaps even shepards purse.
granolamom
May 7, 2009 - 8:52pm
Permalink
blissfulsinger
your post, and I'm not exactly sure why, made me cry.
I think I'd enjoy hanging out with you.
gmom
blissfulsinger
May 7, 2009 - 9:32pm
Permalink
Grace (Alemom)
Thank you so much for that and for the tips about herbs; I do take floradix... I tried chlorphyll but it made me so sick to my stomach... do you have a way to take it that makes it better? I tried it in juice because I couldn't get it down by itself. I was really determined but when I did finally succeed in getting it down it just did not stay down. I tried several times. :-/
I agree that any improvement is wonderful. I have said before, I have found already, from what i have read/looked at/watched, while I wait for my book, I have realized that I am sitting dreadfully out of alignment, and have adjusted just that, and I have seen a reduction in back pain, from my cycle. That is a welcome and amazing relief! Also, it has been years since I have been able to use even Instead without leaking, but I read a tip about using it as a pessary hear, and tried the tip, and lo and behold, I was able to get a break from the only pads that can handle my flooding but rub my nether bits raw to the point of being unable to sleep.
Thank you for reminding me that I can define beauty and strength, and exemplify that. (Or I can exemplify whining... and sometimes I need to but I like beauty better lol).
Hugs & I heart nursing my babe. She is the last one and she will self-wean.
blissfulsinger
May 7, 2009 - 9:34pm
Permalink
Magic (Gmom)
Oh we should totally hang out! It may have to be virtual but so what?
And I bet if you just wake up and ask the angels/fairies/your inner guide/whatever you dig here to show you the magic, you'll easily find it.
:-)
Blissfulsinger (Jennifer)