When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
louiseds
May 29, 2009 - 11:38am
Permalink
Finding a good PT
Hi Alphamom
Robin has given you some good starting points. I think your idea of getting out of a *good* PT all you can is wise. As you have had the previous back problems there is no guarantee that the problems you are now having is directly related to your rectocele, thought he back problems may be aggravating the rectocele by not allowing the full range of movement, and the rectocele may be causing some back and pelvic pain, though nobody has ever found which causes what. They just seem to occur together.
You could end up having surgery and still having the pain, or else having another lot of pain as well. I'm not trying to be alarmist about this, but most conservative doctors will try physical and other non-invasive therapy first, then drugs, then surgery last of all, for almost any condition.
What impressed me with Robin's story is the whole body approach taken by her PT.
Hey, I just had another idea. What about contacting Robin's PT and asking her if she knows any other PT's in your part of The States who use the same model as she does? At worst she'll say no. At best you have some local leads to follow up.
Cheers
Louise
alphamom
May 29, 2009 - 1:28pm
Permalink
Found one to try
Well, I didn't get any word-of-mouth referrals, but I went through the www.apta.org website (I don't know if this is the only US physical therapists' professional association, or if there are alternative ones.) They have several specialist certifications and just established board testing for a women's health one this year. So, though I don't know too well the basis for their women's health certification, I looked for physical therapists certified in women's health and preferably orthopedics (for the lower back issues), then looked at whatever I could find of them online for their approach. I found one that has most of the techniques I was impressed with --- ultrasound imagery to detect which muscles were activating, the possibility to work on reinnervating muscles. Though she's out-of-network for my insurance, hence largely out-of-pocket, I have an initial appointment for next Friday!
I feel like I have learned what I can about the surgery, and as far as surgery goes, it's pretty gold standard, aiming for natural reattachment and avoiding egregious known dangers, by a very highly peer-regarded, publishing, academic surgeon. I think there's a very good prognosis that it would fix what my surgeon considers the obvious structural problem (and he's shown me through a rough pelvic exam that exacerbating the rectocele can cause an agonizing episode). But even a well-implemented and designed vaginal surgery is very traumatic. And the link between the symptoms I can't cope with - the acute pain and weakness episodes - and the simple presence of the rectocele seems tenuous to me. Better to at least exhaust every possibility to deal with the pain symptoms directly, first by trying to improve any muscle imbalances that contribute, with good guidance. I have never really managed to make progress on repairing obvious muscle deficiencies, not after childbirth when my lower vaginal tone was totally lost and remained unresponsive to kegels, and not after the more recent back injury. At worst I will learn something about my body, and better evaluate the unspoken assumption that this is as good as it can get without surgery. And I feel the handholding will make me more confident about implementing the posture, and maybe some of the elements like firebreathing and nauli that seem utterly baffling and a bit scary to me now.
I also feel I should give my recent switch back to hormonal birth control a chance to settle in. My cycle had been getting more acutely crampy, more frequent, more breakthrough in between, and seemed to be precipitating these episodes. It's as if I was spewing out progestins in an open invitation for any malcontent muscles nearby to cramp and spasm . . . and the ones that responded most strongly were the most susceptible ones due to old injury, overfull bowel/rectocele, etc. Regulating that cycle may get rid of some of the egregious triggers. My body's often been known to have reactions far worse than what triggered them --- fainting, asthma attacks, many ways to get caught in escalating feedback loops that are only cured by a full reboot. I think these pain episodes may be like that, some self-reinforcing cascade that becomes a much bigger problem than anything that started them. Trying to limit the hormonal triggers and at least knowing I have one tool to break the cycle (vicodin, though I've only used it twice) gives me a lot more confidence to patiently explore an approach like physical therapy.
Thanks,
alphamom
louiseds
May 31, 2009 - 3:19am
Permalink
St John's Wort
Hi Alphamom
Not sure where I read about it, but I have just started St John's Wort to try and lessen my muscle spasms that have plagued me on and off since a teenager. It is supposed to take a few weeks for clinical improvement. I have only been taking it for about a week but I do seems to be suffering less. It has also taken the edge off my irritability, which may be related to lessening of pain, but may also be its antidepressant qualities. It may also be because I have taken a positive step towards lessening the pain, so is a placebo effect. Who cares? I'll keep you posted.
Anyone else tried this herb?
Cheers
Louise