When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
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Founder
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aza
January 27, 2010 - 4:43am
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neurologically based?
Hmmm Pavlov's dog reaction, perhaps? Bladder urgency at the mere sight of the inside of a bathroom?
You were having nausea and dizziness as an indication of a full bladder? Really? I have never heard of this. I do know that in the few hours after birth, if a woman's pulse is really high but clearly not a result of bleeding or infection, if she has a big wee her pulse will go down sometimes as much as 40 bpm immediately. The only reason anyone has ever given me is that the cause is nerve related and somehow the full bladder causes tachycardia. Perhaps in a similar vein, so to speak, as your nausea and dizziness. Sorry I can't be of any more help but you are certainly bringing some interesting thoughts to the forum :)
louiseds
January 27, 2010 - 4:58am
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wetting yourself
Hi Oumrayan
This must have been distressing stuff when you could trust your own body that you have trusted since you were a little kid! A few questions, just to clarify some points.
When you say you have wet yourself twice, over what time span?
And do you mean that your bladder let go completely and you couldn't stop it at all? Or that you could stop it a bit, but you still spilt a lot of urine? Or that you spilt a bit, but decided your knickers were too damp to not change?
Gee, your bladder must have been full to get nausea and dizziness! No kidney pan?
I wonder if your bladder was not actually full enough to give you nausea and dizziness, but it just got itself into a position where it was being squeezed by your normal movement and got tipped so far back that the kink unkinked itself and just let go. Mild cystocele, where the bladder sags backwards a bit actually reinforces your continence by kinking the urethra and preventing the flow form happening, but once it starts it is very hard to stop. I have had the occasional bout of this, which is distressing. Strangely enough, it only seems to happen when I get out of the car after a long drive, or else I am actually in the bathroom after coming in from the garden for a wee anyway, and it just catches me offguard. I personally think it is prior activity which gets the bladder out of position, which sets it up for a flood. I am thinking the act of getting out of the car does it, or whatever I was doing in the garden. Perhaps the movement of food in the gut could also do it. I can remember having this sort of thing happening to me when I was only 10 or 11. Maybe I had POP then? I just remember having these big urgent floods, which was not pleasant. I think I suffered constipation as a child, and it might have been gut movement that precipitated it. It could have been related to menarche too, which is really only the other end of menopause. I am sure that girls are possessed by aliens at that time, just as we are at menopause. ;-)
You mention "delivering your cervix the first time". What do you mean by this?
Having pelvic organs fall backwards and drop can stretch the pudendal nerve and rub it up against muscles and ligaments it passes through. Presumably it is the same for other nerves which come out of the sacrum to serve that part of the body.
Hopefully WW posture will help to reposition and support your uterus and bladder over the solid pubic bone, instead of over your pelvic floor and perineum, which will both descend if allowed to, and worsen the stretching. Not sure this is right, but it is worth a try, when the alternatives are not acceptable. I would only have a major flood once or twice a year now. fortunately it has never happened in public.
L
oumrayan
January 28, 2010 - 12:57am
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reply
Louise,
The time span was within a couple hours, and only enough to change my underpants. Happened again today. It's more of a dribble,not a flood, and there's no time to stop it. I do hit the bathroom right after to empty my bladder, but today a full bladder wasn't the culprit. I'll keep my appointment for the urodynamics that my OB wanted prior to surgery to see if a urologist can shed some light on the leakage.
You know, with the nausea and dizziness I think of the orthostatic hypotension spinal chord injury patients often have when they have to pee. Their body cannot transmit the signal the usual way, so it finds another means. I wonder if it's my body's way of giving me the signal since there's a disconnect.
The comment about "delivering my cervix" is because it's my cervix I feel when everything is falling out. Just my joke to myself.
You mentioned having urinary accidents when you were a girl. My son has a bedwetting problem that our pediatrician says is linked to constipation. Some children have really small bladders, and the bowel presses on the full bladder, causing leakage, especially at night. Maybe you just had a small bladder and constipation?
Thanks for the response. Good to chat with you.
Bless this group,
*:.Oumrayan.:*
oumrayan
January 28, 2010 - 1:06am
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orthostatic hypotension
Aza,
Your idea is right-on with my best guess. I was saying to Louiseds that it reminds me of the orthostatic hypotension I've seen in spinal chord injury patients when they have a full bladder. It seems like a nerve issue. When surgery was an option, I hoped repairing the prolapse and r/c-celes would give me the added benefit of taking pressure off of the nerve. Don't know what kind of testing can be done to verify what's going on, but I guess I need to ask that question next. Thanks for your response. You got me thinking some more about this...off to surf the web and get more info!
Bless this group,
*:.Oumrayan.:*
louiseds
January 28, 2010 - 1:28am
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nerves etc
Hi Oumrayan
I think you are wise to go ahead with the urodynamics. There are all sorts of weird things that can happen with the bladder. You could get some useful insights from it. On the other hand they might shrug their shoulders and say they cannot find anything. If they cannot find anything, that in itself is OK, because you know that there are some things that are working OK (as if you need them to tell you that). My daughter had urinary and bladder incontinence during the day until she was 6, though dry at night from age two. She went through all the tests and treatments and the doctors all shrugged their shoulders and said they didn't know why, and that we should just manage it with pads. Great!
*I* eventually figured out that she had no sensations of the need to go, and had no idea during toileting whether she was emptying bowel or bladder, not even from the sound. Therefore, I figured it had to be nerve blockage related. Off to the chiropractor. Fixed 90% in six weeks with weekly visits, then monthly maintenance for a couple of years, then she has been fine ever since. Paediatrician said it was a coincidence that chiropractic fixed it. Go figure.
Mind you, she had a very shallow left acetabulum in those chiropractic x-rays, so may have had some assymetry of movement even then. She eventually, at age 15, had a triple osteotomy to reconstruct her left pelvis to try and prevent further slippage of the femoral head and to build up the innominate bone so there would be something to fasten an artificial hip onto later in life, if she needs it, so her body was not normal even at 6yo.
Have you tried any physical therapies, like physio, osteo, chiro, Bowen, etc?
oumrayan
January 28, 2010 - 2:20am
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nuthin' yet
Haven't tried anything yet. Still seeking answers before I choose my path. Chiropractor is an interesting idea. And, a thought occurred to me just now. Accupuncture may be worth looking at. Certainly less invasive than other avenues. I don't want anyone 'messing' with me right now. Seeing a somewhat benign practitioner for this condition feels better to me. An accupuncturist doesn't have a stake in how I choose to treat my condition. He's just there to stick needles in the prescribed spot. Works for me.
Bless this group,
*:.Oumrayan.:*
kiki
January 29, 2010 - 3:58pm
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osteopathy
might look for an osteopath if you are worried about anyone "messing" with you...they are far gentler but still very effective, so i feel like less scary if you are worried about being moved about. I totally understand that, but perhaps think of it that you want to be in good alignment for your body to work well? just a thought... accupuncture can be great for nerves--sometimes i think worth trying a few things to see if they can work together...in teh end, if something works, who cares which it was...
k
Ribbit
January 29, 2010 - 8:48pm
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Leaking
I have this problem as well, although it's only a little leaking. It's off and on, but overall it's gotten worse since the baby's been born (except it's gotten better since I've been reading on these forums and taken suggestions to heart). I just rarely have an urge to go. (I have very little urge to poo too, which makes the problem all the worse as things dry out.) When I've been sitting a while, and then stand up, I wee a little and can't feel it coming out.
I have noticed that since I've been leaning forward and raising up a little--to tilt my bladder upright--I can empty all the way now. I still don't have urges often enough, but if I go anyway, and position myself correctly on the potty, my bladder will empty and I don't have accidents as often.
I sound like a little old lady.
Grrrr.
*sigh*
louiseds
January 30, 2010 - 10:00am
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Your new way of weeing
Yay! I suspect that it is easier to learn these things when we are younger than when we are older. So glad you have made this discovery! It is so simple. Why didn't our mothers learn this, and tell us? Answer: because they didn't have Wholewoman to demystify their bodies! Aren't we lucky!
L
oumrayan
February 1, 2010 - 8:13pm
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Wee progress
Dear Ribbit,
Thanks for the positions tip for urinating. Man, is it ever great to pee straight out! Never did I fully appreciate the power of peeing until mine became a trickle. Every time I use this position, now, my bladder empties quickly and fully. Thanks a mil!
Another progress note: I tried bending at the waist when I sneezed yesterday and saved myself a change of clothes! I still had a spill after jumping during Wii Tennis, but that’s a different animal. Hopefully I’ll find a solution for movement, too.
I have a question for you, Ribbit. Is your loss of bladder spasms directly related to your prolapse? I’m only guessing mine is, although the bladder issues began 3 months prior to the prolapse. I figure things were already on the move, and causing pressure on a nerve, though not fully ‘out’ until Xmas. I may ask Christine about this issue to have a solid base of knowledge before seeing the urologist next week. Any feedback is helpful, from your own perspective, too. Thanks again,!
Bless this group,
*:.Oumrayan.:*
louiseds
February 1, 2010 - 11:56pm
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Aaaah-chooooo
Hi Oumrayan
Did you really bend at the waist for the sneeze, or did you bend from the hips? There is quite a difference between the two. Whatever you did obviously worked. Perhaps it enabled you to make the sneeze less explosive?
tobia48
February 2, 2010 - 7:51am
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Hi oumrayon
I know the feeling of being able to pee with full stream...I now pee like a race horse. I am so proud of myself...I want all the family to come in the bathroom and show them, but I think they would cart me off to the funny farm!
louiseds
February 2, 2010 - 9:01am
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peeing
Hi Tobia and Oumrayan
LOL! It is even more fun in public toilets where others can hear you and imagine what a clever wee-er you are! ;-)
tobia48
February 2, 2010 - 7:28pm
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public restrooms
Louise, it was embarrassing in public restrooms BEFORE... when I could just barely tinkle. I really think all women need to know about the correct position to pee. I wonder if I'd get in trouble if I offered advice in the public restrooms. Maybe I'd better not give that one a try....