When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
saddleup
April 17, 2010 - 11:29pm
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A virtual hug
Dear hmackenz:
Hugs and healing thoughts to you! I am so sorry to hear of your pain and distress. Nature does bad things to us sometimes. Then, we trust our health care providers to help and not exacerbate the problem. It is so frustrating when things don't work out well.
It sounds as if your intense pain is no longer present. I'd take that as a very good sign. You are wise to rest and give your body as little physical stress as possible. I know of some women who have had the "repair" and have done well for twenty years. Others have had experiences like yours, or worse.
Our bodies work very hard to heal themselves following injuries and operations. No one can say what the long term results will be. The important thing now is for you heal up from the second procedure without infection, tearing, or other complications. Then you will be able to go on from there, one day at a time.
Please keep us posted here at Whole Woman and let us know how you are feeling. We truly care about you. My prayers go out for your healing and peace of mind.
Best wishes,
Saddleup
aza
April 18, 2010 - 2:16am
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Hi hmackenz
Hi hmackenz,
Oh my goodness....so sorry to hear about what you have been through! Hopefully someone a bit more knowledgeable will be along soon with more info. I am certainly no expert but not much about your 'healing' sounds normal at all to me. Surgery to fix something usually has an accepted time of healing but this should not involve such a violent reaction from the body. It seems like you have been either treading water or going backwards rather than getting better. So no, from what you have written it does not sound normal at all and hopefully the 2nd repair to fix what the 1st surgery clearly did not accomplish will actually work this time. I am so sorry for what you are experiencing!
Reading that you are on iron tabs caught my eye. Are they the form that is constipating? This is usually ferrous sulfate and is often a cause of horrid digestive problems, which you clearly do not need right now!
Christine
April 18, 2010 - 6:37pm
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sigh...
Hello,
I am so sorry to hear of your suffering. Especially since a bladder neck suspension was the start of my prolapse troubles. I wish I could tell you to take it easy and be patient while you heal, but unfortunately you have endured a couple of operations that will likely cause you much additional trouble.
The Burch procedure and similar operations secure the fascia around the bladder neck to the front of the body. It is important to know exactly what was done - a classic Burch sutures to “Cooper’s ligament” near the pubic bones and some forms of the operation place screws directly into the pubic bones. This operation was originally developed in 1949 for men who had lost their prostate to cancer and were completely incontinent of urine.
I presume you mean you also had a repair of your back vaginal wall. sigh. There is no standard of care for these procedures...absolutely no data that a posterior repair will help prevent potential problems with the Burch. I think Alemama and the rest of our “radical perineum defenders” will just cry at reading about a woman who birthed three babies without a stitch only later to be given a “double” stitched recto repair. sigh. You will get past the hematoma, dear lady, but prepare yourself for years of healing to come.
The Burch pulls your front vaginal wall forward. If you don’t have a uterus, this operation can solve urinary incontinence. If you do have your uterus, you are at extreme risk of profound uterine prolapse. This has been clearly stated again and again in gynecologic literature over the past twenty years. There are also urinary difficulties common to bladder neck suspensions - most significantly having to strain to empty your bladder.
These are terrible operations that should never be performed on a young woman who still has her uterus. I am angry and disgusted. All I can do is continue to work toward change.
Wishing you well,
Christine
louiseds
April 19, 2010 - 9:28am
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Post-vaginal repair
Hi Hmackenz
I too am floored by the amount of suffering you are experiencing after this repair. I'm sorry, but I can only encourage you to let your body heal for now, in as comfortable a way as possible, until you are feeling stronger. It is no comfort to you for a doctor to say that this is extremely rare. This is your *only* body that they have messed up. It is not like you went down to the shop and bought a dress that ripped when you put it on, and you can just pop down to the boutique and get it replaced!
It makes me so sad and angry that this could happen. I hope your improvement continues, even if it is very slow. Just take it a day at a time, and try not to measure your progress too often.
Keeping a diary of how you are feeling every day might give you the opportunity to see tiny improvements in what you can do over the weeks, and give you some encouragement.
I echo Aza's comments on iron and constipation. I am sure there is another form, or other ways of getting iron that will not constipate you. Much of the early constipation was probably caused by narcotics you may have been given in the first few days post-op, but as long as you are not taking codeine or other narcotic type painkillers, or other pain killers now, that might cause constipation, that post-op constipation should be in the past.
I would also suggest that you take a month long course of good quality probiotic supplement to help repopulate your gut with good bacteria, and help your body overcome any yeast infection. You may also have had antibiotics which would not help the yeast either.
I am so sorry I cannot offer you more help.
Louise
kiki
April 20, 2010 - 11:47pm
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Iron
I just wanted to echo that I am so sorry to hear of the pain and problems you are having. Do go easy on yourself and give yourself time to slowly heal, as the others have said. You now know about WW and hopefully with the posture and strengthening your body when you have healed (at that point you can get guidance from Christine about what would be safe as some of the exercises might not be safe with the surgery), you can minimise future problems.
But for the moment, rest and heal.
Iron--Flurodix is a gentle, non constipating iron which is worth trying. it's a liquid made from herbs and not heavy duty iron, but that combined with lots of beet root and other iron rich foods often does the trick, w/o the side effects. if you need something stronger whilst pregnant i ended up on on a liquid iron from the doctor that wasn't constipating (seemed to be the reverse) that was probably full of all sorts of nasties (but i wouldn't get a home birth if i didn't get my levels way up so i did it for a couple weeks).
re yeast also worth cutting out sugar / white / refined products, which will also help your digestion.
take care of yourself and please keep us updated on how you are doing.
Kiki