When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
aza
April 21, 2010 - 4:32pm
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fascial puzzle
Oh dear, the abstract and illusive nature of fascia....what it is, what it does, how to fix, how to heal. Please tell me I am not the only one who can't quite wrap her head around this, or I'll feel rather dim :)
Trying to put myself a little in your shoes saddleup....so you are hearing that you have a fascial tear and that fascia is something that supposedly does not heal well due to the reduced blood supply. I have no idea if this is even true or not. If so, then what else can you do? If fascia can't heal due to being bound up, torn and retracted and not able to come together as well as muscle might be able to, then what can help. Is it possible to unbind the fascia, loosen the adhesions (since presumably this is what is holding things apart and not reconnecting?)
The second thing that comes to mind is how you can strengthen the supportive structures that are second in line to fascial support. Obviously this is what WW techniques have been doing so far but it sounds like you are needing a bit more help these days.
I am just thinking out loud here...just seems to me that those big blaring words 'fascial defect' are thrown around so much with so few options for fixing, helping repairing and it bugs me. It may very well be true...BUT the body has an enormous capacity for compensation. It's just the figuring out how to facilitate this that is so challenging.
saddleup
April 21, 2010 - 7:37pm
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It really is a puzzle
Thanks, Aza. Really, I don't know what has occurred inside me. I just perceive that the cystocele is protruding farther as time goes on. It's at the entrance (exit?) and threatening to descend some more. I believe that firebreathing, nauli, and other techniques can help rearrange fascia and muscle. I am baffled as to why I have not experienced improvement.
The explanations of fascia coming undone (or maybe really stretched thin) seemed a plausible description of my situation. Thanks for pointing out that the body has an enormous capacity for healing itself. I'd be ecstatic with slow, incremental improvements. I will keep working on the muscles and whatever else can be affected by exercise, posture, and the rest.
I really would have preferred a physical challenge with a defined protocol and prognosis for improvement, like when my back or my neck demanded months of therapy and exercise. We don't get to choose what happens to us, do we? I don't mean to discourage others. It's just frustrating when the results I anticipate do not occur. Thanks for listening.
Saddleup
Christine
April 22, 2010 - 2:32pm
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fascia and bones
Hi Saddleup,
It was theorized in 1909 that cystocele was caused primarily by detachment of the front vaginal wall from connective supports along the front of the pelvic sidewalls. This theory was generally disregarded until it was resurrected and again promoted in 1976. Although still controversial, many surgeons were intrigued by the possibility that both cystocele and stress urinary incontinence might be cured by repairing small tears that were thought to occur between the midvaginal wall and its attachment to muscles spanning the sides of the pelvis. Never mind that no photos of these alleged “tears” exist - that I have seen - however highly illustrated they may be in the literature. Not all world-renowned surgeons agree on their existence either:
“As far as lateral stabilizers of the vagina are concerned, one hears a lot about the so-called paravaginal defect, which is likely to be present in 30-40% of cases with genital prolapse. In actual fact, anchorage of the lateral edge of the vagina to the pelvic sidewall is debatable. The arcus tendineus fascia pelvici is not a constant structure. Neither is the pelvic fascia. At least, it is more than easy in normal cases to detach the vagina from the pelvic side wall by means of gentle digital pressure and this disruption, which is performed during radical hysterectomy, does not result in genital prolapse.” (Dargent et al. Vaginal and Laparoscopic Vaginal Surgery 2004).
The rate of recurrent cystocele after abdominal paravaginal defect repair is said to be as high as 41%. I believe it is much higher. I have been doing this work for a long time and it seems these women commonly develop subsequent cystocele that is now termed a “central defect”. Because the fascia has been hitched up all along the sides, what else are they going to point to as the cause?
Saddleup, you say your cystocele is “at the entrance and threatening to descend some more.” Cystocele at the vaginal opening is what prolapse is! If much higher it is generally asymptomatic and neither we nor our doctors notice or are concerned about it. Your statement “threatening to descend some more” is fear-based and not consistent with our experience at Whole Woman. All of us have organs at or near the vaginal opening and the general consensus is they are easily stabilized here. How much reversal you will see over time cannot be predicted. The most common presentation of prolapse is cystocele/rectocele with the cervix above. It seems this is how the mature vagina settles out. A bladder falling further and further out of a woman doing this postural work has thus far been unheard of. If you are holding your organs forward, they cannot fall further back. This has been verified again and again by the women here.
I think 100 years of vaginal and pelvic surgery have proven that fascia is not the problem. Fascia has been sutured, elevated, stretched and secured every which way and always to no avail. Here is my take on the reason some women develop such enormous cystoceles:
You have probably read in STWW and elsewhere of the existence of a pelvic arch at the back of the pubic bones. This arch is conventionally described as the formation made by the bottom of the pubic bones and their symphysis. In reality, the arch is at the back. In some women, the arch is quite V-shaped and the reason why some small percentage of women cannot birth vaginally. This is a genetic/birth defect that before c-section was weeded out of human populations. In most women the arch is wider, known as the “gynecoid” shaped pelvis, which adapts much more easily to the fetal head. I have wondered whether in some women this area of the pubic bones is especially wide and shaped in such a way that more easily allows the bladder to fall completely back. Yes, it is the fascia that has kept it forward all these years, but slowly over time the full bladder is stretching that tissue. I do believe connective tissue health is a factor, but minor compared to basic structural supports of the body.
I do not know why you are having such a difficult time seeing any result, beyond the fact that pelvic fascia is very difficult to remodel. However, it is obvious that you haven’t fully accepted the WW perspective that these organs are held forward and in their normal positions largely by their own weight and in addition to the spine and breath pushing them forward. Perhaps your back vaginal wall has not come forward enough in support of your front wall as it does in so many women.
So...you are left with the choices we have talked about so many times before. I know it is very difficult to accept that this happens in a huge percentage of us and there is no good surgical fix. The chance exists that an anterior colporraphy would fix you right up with no further problems. I have no way of knowing either way - only statistics provided by gynecology and public health studies, and the experience of many women. Of course individual surgeons love to give you their famous “95% success rate”. Mesh surgeries would not have become the gold standard if paravaginal defect repair worked.
It’s really an attitude change that we talked about a lot in the early years of WW, but haven’t visited in a while. You seem not to agree that our worst day is better than the post-hysterectomy woman’s best day. I believe that at any age our mothers have great influence over us. Just like the young woman who shuns vaginal birth because her mother birthed by c-section, I believe women with hysterectomized mothers have a harder time avoiding a similar fate. Holding out hope for a surgical cure seems to keep women from thriving on their own - I don’t know if this is true for you, but we have seen it over and over through the years. Not that a surgical cure isn’t out there for you. It is not only an intellectual exercise, but kind of a spiritual exercise that each woman must wrestle with on her own.
Wishing you well,
Christine
saddleup
April 25, 2010 - 6:03pm
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Further thoughts
Hi, Christine:
All I can say is that sometimes we can work hard at something and not see the results we wish to see. I support the Whole Woman approach. I am not advocating surgery. I sometimes check to see if there's anything new and promising on the medical horizon. So far, not.
When I first went to the uro-gynecologist, he suggested surgery for me. This kept up for a year and a half, with me resisting, while I did WW exercises and went in for some PT. You may recall I also had urinary incontinence which was not consistent with the experience of most women who report to Whole Woman with cystocele. The incontinence resolved, from some combo of PT and a bladder that fell further and created that famous "kink" that can stop the urinary symptoms.
When I saw the doctor a couple months ago, he recommended against surgery and said something about unintended consequences of bladder repairs. I was quite surprised. All I could think was that he had had some bad results. This man repairs nasty mesh complications and refuses to use mesh in his own surgeries. With a mutually agreed-upon conservative approach, I now use a pessary. It has worked well, though I don't know what the long-term effect will be. I'm just grateful to have another tool to assist my body and my psyche at this point.
It's reassuring to know that you think fascia is not the whole story here. I have had lower back problems since childhood. It may be that the posture and consequent rearrangement of bones, tissues and organs does not happen easily for me. My intent is to persevere with the WW approach, as it beats anything else out there.
Saddleup
granolamom
April 25, 2010 - 9:04pm
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the whole story...
hey saddleup
scoot over and I'll sit on the 'change is slow and hard for me' bench with ya.
I think in my case, my history of fibromyalgia, chronic back pain, arthritic shoulders/hips/knees makes my progress slow and not as complete as I'd like.
I, like you, intend to persevere with the WW approach because it sure does beat anything else. and the truth is, I am symptom free even if I can see my bladder dropping down and threatening to exit my body.
I think that each of us comes to this with our own physical/emotional history and that definitely affects the degree of change we experience.
I know how frustrating it is to hear others reporting so much change so soon when its teeny tiny baby steps for me.
good news is, I'm still improving. slowly, slowly. been, what? 5 years for me. or something like that.
{{{{{hugs}}}}}