When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
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Best wishes,
Christine Kent
Founder
Whole Woman
louiseds
May 17, 2010 - 4:21am
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spot
Find out what they want to do to investigate it. You can always say no as a backstop. They cannot do anythng to you without your permission.
Don't think about all the horrible possibilities. Just get it checked. Even if they think it might be cancerous, get another opinion or two before you let them cut you up. Also find out how much cutting they want to do, and how they will preserve your perineum.
Personally, I share your concern. I wouldn't be letting them too close with anything sharp.
Remember that they always tell you their worst fears, which are *usually* wrong, therefore avoiding a 'disappointed' patient when they finally have a diagnosis for you. Nothing is certain until it is certain. Don't panic. Just breathe.
If they still want to cut you up they will need good reason. Check out Christiane Northrup, Women's Bodies, Women's Wisdom re abnormal cells.
thinkin' of ya.
Louise
alemama
May 17, 2010 - 8:28am
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no perineum
you can live without it :) I know that for a fact!
amazing that you even noticed....
but hey- biopsies are usually really small (think mole on face) and I honestly doubt that they will go deep into the muscle layer.
The body really does have a great capacity to heal.
That said, I totally understand your fear- I had a cyst last year that resolved- but before it did I was so worried about them cutting it out. ugh
you can do this.
Christine
May 17, 2010 - 12:28pm
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trust your body
(((Kiki)))
Vulva cancer is almost always squamous cell and grows very very slowly. Highly unlikely in a healthy girl like you who is not using bizarre medications for LS. Hope you can just watch it, and convince your doctor to just watch it too. Deep breath...
Have you seen the movie that Aza recommended, Food Matters? It's really great and puts a rational and logical spin on cancer, which has been missing in our fear-based culture for a long time.
Hugs, my friend,
Christine
kiki
May 17, 2010 - 1:42pm
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thanks all
thanks for your thoughts. yes, my preference is watchful waiting with anything, and trying to find natural ways of dealing with stuff. i made an appt with the GP for two weeks time, and will take it from there. gives me two weeks to diligently apply the cream and see if there is any change for the better, and just to give it time to be sure nothing is happening quickly.
they would have to have a good reason to start cutting into me, and you are right Louise, I can get second opinions. i have some other moles (thinking that's what it is?) that have started to change before, and the doctors have always taken a better safe than sorry approach which i don't mind on my back or leg--plenty of skin to go around--but not the same here!
christine--what do you watch for in squamous cell cancers? i know info online on vulval cancer says about itching (well, we know that one!), dark spots, open sores... what is the turning point to worry at?
will check out the film--missed that recommendation!
thanks
Kiki
louiseds
May 18, 2010 - 10:03am
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Something to ponder
Kiki, I wonder how much vulval cancer is actually 'just' lichen sclerosus that is misdiagnosed as cancer? I'm no doctor but...
Very few women would have the guts to stand up to a cancer specialist who looked her earnestly in the eye, and said there are abnormal cells, and they have the potential to turn cancerous. It is better to be safe than sorry.
This is no time to panic and rush in, but it is no time for burying your head in the sand either. I am glad you have made the appointment. You will get to the bottom of this.
Louise
kiki
May 23, 2010 - 3:09pm
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LS / vulval cancer
interesting thought. no idea. i do know that under a microscope, they all seem to look quite different from what i've read.
i know that if i was told i had cancer the fear of it spreading in an area of so many organs so close together would be very great!!!
i'm seeing the doctor soon, but feeling a bit calmer. my lovely DH suggested another photo (he'd suggested them when this all started to see if stuff was changing) and in a photo, it all looks pretty much the same. i was too freaked out for a while to do another photo as i was sure everything would look so much worse, but it doesn't. hurray! i actually think we should all do this, so that if something appears we don't have to wonder "was that always there?"
thanks for all the support--and will update you!
kiki
June 2, 2010 - 12:46am
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nervous!!!
hi all,
i go to the GP tomorrow and am soooo nervous! i know they won't do anything other than refer me on, but i'm completely nervous especially about maybe hearing "yes, it looks suspect"
eeek!
also who do they refer to? skin cancer team deals with my moles in general, but what experience do they have of keeping perineums whole? vulval dermatologist? do they do surgery--sure they do biopsies regularly...
add to this the fact that DH is possibly pretty much away on a job for three months starting end of July...which means if i need to keep my legs shuts to heal, it's got to happen soon or wait till the fall. can it wait?
i was really calm till i read scary stories about women with ongoing itch and it turns out to be extensive pre cancerous / cancerous cells and they take out the whole area and it all seems to happen over a period of a year or two. eeek! ok, i know, unlikely, but i'm good at being anxious and this is no exception.
please send good vibes for me tomorrow!
Kiki
granolamom
June 3, 2010 - 9:57pm
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kiki
how are you today?
how'd it go?
thinking of you {{{hugs}}}