When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
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Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
Surviving60
May 16, 2014 - 10:12am
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Hi chickenfeet - I don't know
Hi chickenfeet - I don't know what the best pessary routine is, so other opinions on this would be welcome. I think as long as you are avoiding Trimosan you are OK. Based on what we already know about your mom, do you think this nightly fussing with her vagina is something she will tolerate well? Is something required every single day when there is a pessary present? Not sure myself, just trying to keep the discussion going. - Surviving
chickenfeet
May 16, 2014 - 4:30pm
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high maintenance pessaries and fussing with the vagina
We have not fussed nightly with her vagina. I hope to incorporate some methods that could keep the tissue from getting irritated. The vinegar douche can be done right after she uses the sitz seat because that is how she washes her bottom every day. And then it is a matter of inserting some coconut or sesame oil every night herself?
I think the probiotic type lubricant takes the place of the trimosan that would have been inserted every 3 days. ? The gyn did not return my call yet.... (arg)
BUt her mood is 100 x better that she is not seeing herself wetting the pads.. Wetting the pads was making her depressed because there is psychological guilt associated with something getting wasted like the pads. Fussing is everywhere...I stayed with my mom for 2 months. We did the posture moves and I found that she could not remember to keep the posture. But believe it or not.. she preferred to sit toward the front of the dining chair because it makes her back straight. But i had to remind her and she agreed that she felt better sitting on the edge of the chair. Is that bad for the posture?.
My hope is that my Mom will get strong and eventually they can take out the pessary and use intermittingly. My mom just needed to not have to have her life evolve around incontinence. She is totally dry and never having accidents now. She is just having the typical discharge which also mentally takes its toll on her. But I told her it is the gel color so that helps her feel better. BUt she is using a bicycle 5 minutes a day that I bought her and making sure her back rests on the back of the seat and she is in an upright position. but it is hard to keep the belly forward. I just pray she doesn't get a rectocele. The gyn admitted that any reconstructive surgery on my Mom would pull her flesh down because she has very thin collagen. I have read that some pessaries have been forgotten inside a womans body and the tissue that grew around it has scarred so much that when the pessary was removed, the prolapsed organ was held in place because the scarring created it's own sort of support (something like that)
Wo...that was a mouthful I have to say so myself.
The middle of the night peeing could not be resolved when the prolapse was down. SO she sleeps now.
MeMyselfAndI
May 20, 2014 - 12:22am
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Pessaries and whatnot
I do not know loads about pessaries and older ladies - For I am not one and have no pessary - BUT - I do know in the Uk they put a pessary in and then you would go back 6mths later and get it changed for a new pessary. A family member does this and has done this for the past 6yrs or so with no problems bar her not liking the bother of being taken to the doctor. She doesn't do anything at all between visits to the doctors.
What kind of pessary thing does your Mother have? It does seem a lot of bother for someone who is78 to be dealing with on a daily basis.
I do hope you find a way to help your Mother
Surviving60
May 20, 2014 - 5:52am
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pessary
I have to interject that normally a pessary left in the body for months at a time is not something we would recommend at all. But Chickenfeet's mom has dementia and is no longer able to learn to manage her prolapse herself. Since she is still considering radical surgical "fixes" for her mom, I think the pessary is probably the way to go in this case, I hope they can settle on that for awhile. - Surviving
MeMyselfAndI
May 20, 2014 - 7:51am
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I know
I know that in USA they take them out all the time- In UK they don't - It is very different. My family member would not in any way be able to remove the pessary herself, so I guess if it makes her feel better - That is ok for her. Personally - knowing what I know now I pray that as life goes on I will have the knowledge to live well with POPpy and for her to stay outta my face as she is now - A matter of years ago I could not have said that as POPpy was so in my face i was unable to see a POP-free life ahead of me - But now - I live with POPpy and we share this body pretty well :- )
chickenfeet
May 28, 2014 - 4:59pm
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what does your family member use along with the pessary for lubr
Hi MeMyselfAndI. Can you find out what your family member uses internally to keep the area around the pessary lubricated and free of sores? That would help me a lot.
We are using coconut oil and something called refresh or some kind of probiotic internal liquid and vinger douche. How often and how is the product or protocol being administered? THanks
MeMyselfAndI
May 29, 2014 - 1:41am
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She has...
She has had the pessary for maybe 6-7yr and does not use any lubricant or anything at all - It has always been the same sized pesary, never gone up in size (which surprised me) She just has to go back to the Dr every 6mths and get it changed for a new one. In between she just forgets she has one in at all. It is a ring pessary, looks like a tiny bracelet, just a circle of plastic looking stuff. She has never had any sores, and the Dr checks when the ring thing is changed, and she has always been OK. Being a pensioner I don't think she could cope if it became something she had to deal with every day.
Hope that helps
lovinggma
February 21, 2015 - 2:14pm
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Pessary
I have been using a pessary for 9 months. I am 77 yrs. using unfiltered honey inserted each morning along with diluted spray of natural vinegar. Comfortable and gym knows and does not disapprove. Right now I am experiencing external rash and swelling. I think I have a recto else. Suggestions?
Surviving60
February 21, 2015 - 7:17pm
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Pessary
Do you have Christine's book, "Saving the Whole Woman"? In it she notes that a pessary can aggravate a rectocele or even possibly contribute to a new rectocele. Many women with rectocele have trouble keeping a pessary or tampon inside. I would try to learn WW posture and firebreathing if I were you, to manage your prolapse by holding the organs forward in the belly and away from the outlet. Pessaries tend to hold the vagina open, which in the long run will make things worse.
I don't know about the rash, have you changed your soap or laundry products lately? - Surviving
Heavenlyflower
February 21, 2015 - 11:52pm
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Prolaspe in older women
Hi Chickenfeet,
I am so glad to see where someone else is concerned about what does an older woman do when she has a prolapse and cannot take care of herself.
When I was in the hospital after having a heart attack and having open heart surgery and having the people in the hospital not know how to care for you or even seen a patient that had a prolapse, one of the Nurses Aides who came to help me to the bathroom ran out of the room to get someone else to help me because he had never seen a prolapse and it literally scared the living beejeebers out of him, after he found out what I had wasn't uncommon for a woman to have he apologized to me.
Not even the doctors would listen to me when I asked them if it was okay for my daughter to bring me my coconut oil that I use at home to keep my Uterus from drying out, because as you know when the Uterus hangs out it gets dry and mine does bleed, as soon as I was able to use the coconut oil the bleeding stopped, one of the RN's was helping me in the bathroom right after I had the surgery almost fainted when she saw how much blood was in the toilet, after the surgery I couldn't reached my arms behind me for six weeks, so I was at the mercy of everyone on the hospital staff and then when I came home I had to depend on my darling daughter who never complained one time because she had to do everything for me.
So after that experience I wanted to know if before we get too old to take care of ourselves if maybe surgery would be something we should consider and even in considering surgery we have to do it before we get too old, a lot of the doctors won't do surgery if we get too old, I am 74 years old, so I wanted to get some feed back on the subject.
I am seriously considering having surgery.
Mahalo and Aloha,
Heavenlyflower
I would love to hear from Christine, and maybe some of the other practitioners, and really anyone who can give me some advise pro or con.
Surviving60
February 22, 2015 - 6:37am
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Surgeries
Heavenlyflower, I would agree that maybe you should schedule a consult with Christine; there is no easy answer to this question.
Some of these repair surgeries fail rather quickly. Others hold up for several years. Either way, there is going to be another repair in the future, and it will get worse each time. For the women who cannot care for themselves at all, no one can possibly predict whether getting surgery will help make things better for the immediate future, or for how long. And if we are talking about a very elderly and/or frail woman, can she even tolerate one surgery with its aftermath?
It would be different if prolapse repairs had consistent outcomes which one could use to weigh the pros and cons in any particular case. Unfortunately, it is a huge gamble always, with odds heavily stacked against you. - Surviving
Heavenlyflower
February 22, 2015 - 11:58am
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Surgeries
Surviving, Thank you for your feed back, I am so glad I can get on the Forum and ask these questions it does get a bit frightening, when a worrier like me start thinking it can get pretty confusing, and dangerous.
I have another question when ever I have to urinate and I want to wait and I sit down it feels like I'm sitting on a ball, so by me wiggling I do get it back up inside of me, the urge to urinate does go away but when I do stand up again I usually don't make it to the bathroom and my urine is coming out, dumb I know but the bathroom has become my favorite room in the house (smile), what I was wondering is if I continue to do this is there a possibility that by doing what I do can it cause any damage to my Bladder like can it maybe burst?, I do have a fear of that.
My other question is there are time when I have to push on my uterus to start the flow and then it stops and I have to press on it again to empty my bladder, does anyone else beside me have this problem? please help me so I can make it easy on my self!!!
One last question it seems like every time I go to the emergency room at my hospital and they check to see if I have a Urinary Track infection I do have one, is there something I can do to prevent this or something I can take, I use to take a Cranberry supplement but my Cardiologist said I shouldn't take it any more so can anybody maybe suggest something, the weird thing is I don't feel any discomfort and then when they say I have an infection it really is shocking. Need Help!!!
Mahalo and Aloha,
Heavenly flower
Surviving60
February 22, 2015 - 12:22pm
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heavenlyflower
I can tell you with certainty that you are not going to burst your bladder. It is behind the vaginal wall. As for what you have to do when urinating, I can't give you a good answer because my uterus isn't as prolapsed as yours. I have cystocele/rectocele. Perhaps others with a set of symptoms more like yours could be of more help. Again, perhaps a consult with Christine is in order. You say that you go to the Emergency Room on a regular basis, but you didn't say why. Incomplete emptying of the bladder is the biggest prolapse-related cause of UTIs, and I suggest you do it on all fours, as illustrated in Christine's book. That will get all the organs out of the way! - Surviving
lovinggma
February 22, 2015 - 1:53pm
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Pessary
Yes I have the book and have subscribed to the online programs. Her exercises are a great help. Today I have taken out the pessary. Right now I am getting plenty of rest so it is alright. I am wondering about soaps. I also wash underpants using bleach. Probably shouldn't. Wonder what would be recommended to disinfect?
Surviving60
February 22, 2015 - 2:34pm
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lovingma
I suppose you'll get different answers on this. I don't bleach or disinfect my underwear. I wear cotton underwear that I machine-wash in warm water with regular liquid detergent that is free of dyes and perfumes. I use unscented pantyliners all the time so my undies don't need extreme measures to get them clean. - Surviving
chickenfeet
March 26, 2015 - 2:54am
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HeavenlyFlower, keep your mind and muscles as strong as possible
Hi HeavenlyFlower,
There is not enough information so you have to look at the ways that prolapses in the elderly are managed in other cultures and what research Christine is collecting.
All i can say in retrospect in regards to my moms experience with her prolapsed bladder and what could help the most is to do everything in your power to keep your mind, muscles and digestion and elimination system, as fit and as STRONG and working the best way possible.
My mom got the flu 2 months ago while we were on vacation to visit her sister. Her flu I felt was manageable because she did not have bad cough symptoms at all. What she did have was a UTI which the hospital didn't seem to pay any attention to it. The constant peeing and being awoken wreaked havoc on my moms mind more than the light flu symptoms.
I have the same question as you. I would not want to bleed from lack of knowledge of my caregivers when I am older and have a prolapse. I am afraid they will NOT have the knowledge to care for me with a prolapsed bladder because the majority of nurses and doctors don't even know what it is. They did not even acknowledge my request to use the vaginal lubricant for my mother. They said it would interfere with the antibiotic and tamilfu medication. I think I had to sneak her a dose. She didn't even have surgery, but instead only stayed to get oxygen and rest... That short rest almost made her catatonic.
You have to do a study of how many elderly people have gotten the surgery at their age and what their experience is or what their personality has become after the experience. Good luck.. let me know. After my dad had 5 stents placed last year, her also began to get dementia after the hospital stay. Anesthesia kills brain cells... Maybe there is another way besides using anesthesia?