Vulva Cancer - my experience

Body: 

Hello to all on this site.

Someone has recommended this site for me to share my story. Although I dont have pelvic floor problems I need to be more aware of what may lie ahead for me.

13 years ago I had 6 weeks radiation to my pelvic area after the removal of my clitoris vulva and lymph glands. I know of many others who have also experienced this very very sensitive cancer. Many of these women also end up with pelvic floor conditions.

I hope everyone is ok about me discussing this and no I am not a spammer you can find more about me as I am the Founder of GAIN Inc. Gynecological Awareness Information network www.gain.org.au.

I have lobbied for years and years to try to get some focus and that Gyn/Sexual Health issues out into the public arena.

I wont go on anymore just in case I dont fit in with this site and perhaps you may prefer I go else where.

I just feel the work I do is so valuable to many many women in the world.

I look forward to your reply.

Good health to you all.

Kath M

We'll let the forum moderators weigh in on this, but as a forum member, I support your participation here. I just glanced at your website, and it looks like your mission is right in line with Whole Woman. I look forward to hearing more from/about you.
J.

Hi Kath,

Hope Christine doesn't mind me doing this - I live in Perth and have been trying to contact you for a while to ask if I may be able to help regarding prolapse issues as I noticed they are not directly addressed on the website.

i know that when I was diagnosed nearly 8 years ago there were no support groups in Perth and as far as I can tell, very little has changed. And not much information available either.

I have emailed and left messages but I would be grateful if you would be able to contact me on [email protected]

Thank you,

Helen