When I first “cracked the code” on stabilizing and reversing prolapse, and wrote and published Saving the Whole Woman, I set up this forum. While I had finally gotten my own severe uterine prolapse under control with the knowledge I had gained, I didn’t actually know if I could teach other women to do for themselves what I had done for my condition.
So I just started teaching women on this forum. Within weeks, the women started writing back, “It’s working! I can feel the difference!”
From that moment on, the forum became the hub of the Whole Woman Community. Unfortunately, spammers also discovered the forum, along with the thousands of women we had been helping. The level of spamming became so intolerable and time-consuming, we regretfully took the forum down.
Technology never sleeps, however, and we have better tools today for controlling spam than we did just a few years ago. So I am very excited and pleased to bring the forum back online.
If you are already a registered user you may now log in and post. If you have lost your password, just click the request new password tab and follow the directions.
Please review and agree to the disclaimer and the forum rules. Our moderators will remove any posts that are promotional or otherwise fail to meet our guidelines and will block repeat offenders.
Remember, the forum is here for two reasons. First, to get your questions answered by other women who have knowledge and experience to share. Second, it is the place to share your results and successes. Your stories will help other women learn that Whole Woman is what they need.
Whether you’re an old friend or a new acquaintance, welcome! The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world!
Best wishes,
Christine Kent
Founder
Whole Woman
Christine
January 3, 2009 - 8:24pm
Permalink
hysterectomy for uterine prolapse
Hi Nervous,
Hope you don't mind that I moved your topic to this forum.
Well, it is a situation worth contemplating, for sure. The fallacy is that hysterectomy will fix the problem. In reality, the uterus forms a hub of connective tissue keeping all the pelvic organs in place - prolapsed or not. At 42 years of age you will likely see stark changes in many bodily systems post-hysterectomy. We could go on and on about what those might be, but the most likely side effects of hysterectomy (all forms) are urinary incontinence and recurring prolapse - this time of the bowel and bladder. Subsequent surgeries often make matters worse rather than better.
The other thing to consider is that your uterus is not going to fall out. We’ve never heard of a woman with total vaginal prolapse where a large sack hangs out of the vagina containing the bladder, uterus and rectum - although there are references to such a possibility in the medical literature. The cervix seems to prolapse to the vaginal opening or a little past and never goes further in most women.
This can be stabilized and improved by all the things I have described in my book, Saving the Whole Woman. In two weeks my DVD, First Aid for Prolapse, will be on sale, in which there are new and revolutionary exercises for moving the organs forward.
I also have primary uterine prolapse. I have gone through menopause and while my uterus has shrunk it has also pulled well inside. I spent most of my forties in agony dealing with my prolapse (it took over a decade to understand what to do about it) and now thank my lucky stars I have the possibility of living actively into old age free of the litany of symptoms that plague post-hysterectomy women.
You might take a look at past posts by “Goldfinch”. She also has severe UP and has written about how much improvement she has experienced with this work - although it took about a year to realize.
Wishing you well,
Christine
nervous
January 3, 2009 - 9:04pm
Permalink
thank you
Thank you for this information. I will have to read your book. Right now, I feel so sad and depressed. My doctor tried to convince me that a hysdirectomy would really improve my life.
rosewood
January 3, 2009 - 11:12pm
Permalink
Hi Nervous
I want to encourage you to get all the information you can, and explore healing without surgery. I came here 3 years ago, scared and feeling out of control. Today, I am more active and fit than ever and the condition is totally manageable. I am totally indebted to Christine for the information that this can be managed without surgery. I have seen women think that surgery is the answer, only to find that repeat surgeries are necessary, and that the condition gets more unmanageable than ever. What you have now on your side is that your anatomy is in tact. Once you've had surgery, you can't go back. So, get all the facts first. Of course, ultimately, we all make our own decisions. Hope you stay here and learn about all that is possible.
kiki
January 5, 2009 - 12:54pm
Permalink
hi nervous
hi nervous
my feeling is always that i will try everything that won't do any harm first before i go down a route that even has a slight chance of causing problems.
i had a grade 3 cystocele and rectocele, and now they are most of the time barely noticeable, and definately liveable. i have had to make changes to my diet and to my limits, but they are definately worth it, and better for my overall health.
i also tried a lot of "alternative" therapies like accupuncture and homeopathy in addition to Christine's work, which also really helped. I haven't even started Christine's exercise work other than lots of plies, or the firebreathing, so i feel certain that even two years on i'll have even more improvement when i do.
i absolutely know how hard living with this can be, but i also know what amazing changes can happen through this work. it's scary and links in with so many feelings about our bodies and our identities as a woman. but it's things i've worked through, and this is a wonderful, supportive place to do that.
christine mentions in her book about sea sponges, a natural alternative to a pessary that can help to support the organs. i don't how they'd work for a uterine prolapses, but perhaps a search on sponges in the search box would give others' experiences.
louiseds
January 6, 2009 - 12:24am
Permalink
Hyst?
Hi Nervous
I too escaped the hysterectomy, 4 1/2 years ago, and am going fine now. Have a look at www.hers.org, where you can find out all about the results of hysterectomy, and all the information you need to know before you consent to it. It may be a routine procedure for the surgeon who gets paid handsomely for doing it, but it is certainly not straightforward, or easy to recover from, apart from all the negative things that can result from it - much worse than POP.
Cheers
Louise
AnneH
January 9, 2009 - 3:41pm
Permalink
I was exactly in your shoes
I was exactly in your shoes a few years ago. My gynecologist told me I "must" have a hysterectomy because things will only worsen with time and it would be easier to go through the surgery while I was young (I was in my late 40s) rather than wait until the uterus "falls all the way out". I told him, "No, you are not going to remove my orgasmer," and to his credit he agreed to fit me with a pessary and not press the issue.
Well last year he retired, and told me my care would continue under his new, young colleague (a woman... which did NOT make me feel better) who was supposedly well trained in prolapse treatment. Oh God, I thought, well trained meaning, up on all the latest surgical techniques no doubt. I dreaded my first meeting with her, and geared up for a big fight. I had all my thoughts in a row on how I would stand my ground no matter what she said, and refuse to let her remove my uterus.
Well I went in last month and she started the exam, saying, "so you have prolapse," and I started immediately with, "Yes, but I am NOT having surgery..." to which she interrupted me saying, "Oh no!! Surgery would be the worst possible thing you could do." I went "Huh?" Ha ha ha ha ha.... she went on to say that removing the uterus will only let all the other stuff collapse into the space left behind, much better to see if we can improve on my pessary. My pessary was fine, but a bit hard to insert and remove so she fitted me with another, better one.
I'm now in menopause and I think my uterus is shrinking up a bit too. No periods certainly makes everything easier to deal with. I won't say it's a piece of cake, but the inconvenience the prolapse gives me is nothing compared to the nightmare scenarios I read about from hysterectomy. My bladder works adequately, if leaky and imperfect. My bowels work adequately, if needing a little help now and then, and sex feels fine other than a bit of vaginal dryness once in a while. WHY would I trade that to risk horrendous pain, complications, malfunctioning bladder and bowel, and a decimation of my sex life including a high chance of painful intercourse and ruination of my orgasms? I'd be CRAZY. Much better the devil I know now than risk a much worse devil.
Mae
January 9, 2009 - 4:30pm
Permalink
New doctor AnneH
Oh AnneH, your new doctor sounds wonderful and she is sooo right. One thing the doctors I have seen agree upon is that the other organs will fall when the bladder is repaired...therefore I would need a hysterectomy (remove my uterus) and a bladder repair for my cystocele. I chose, instead, to have my cystocele keep my uterus up for me. I read somewhere (on this Forum I'm sure) that that is what happens. Hmmm..makes me wonder then why some people have two or more prolapses??? Why didn't their first prolapse keep everything at bay? Maybe their prolapses happened all at the same time??
Stick with that doctor AnneH. I wish we all could find one like her.
Regards,
~Mae
AnneH
January 9, 2009 - 5:11pm
Permalink
I have all three prolapses
I have all three prolapses and I believe it is because gravity and "empty space" is not the only cause, but also weakening of the tissues from whatever cause (episiotomy, straining at stool, genetics, whatever). I do indeed believe they are holding each other inside and that I will never have to worry about the uterus "falling out".
I am hoping that this younger doctor is an indication that medical schools are now teaching that it's best to deal with prolapse conservatively. And maybe even more about pessaries too. I thought the other doctor had given me the best pessary for me, but she did even better.
Mae
January 9, 2009 - 7:25pm
Permalink
Pessary AnneH
I have had no luck with my pessary AnneH. It holds my cystocele up fine, but I get cramping after a while which I feel is NOT normal. I think I need a better fit somehow, but I actually feel that managing without a pessary is the best thing for me. Nothing foreign in there works for me, at least in my mind. If I watch my diet, stay in posture at least most of the time, overdose (my doctor loves that term) on Vitamin C and stay lubricated..I am "managing" very well.
This is O.K. Not perfect..but then again, who is perfect?? Like you, I don't want to even think about dealing with more. This is at least O.K....most times better than O.K. Thank goodness I found this site before I did anything drastic!
Warm regards,
~Mae
Blue
January 9, 2009 - 7:58pm
Permalink
Doctors (Anne)
.
Anne, how fortunate that your new doctor is so in tune to non-surgical prolapse treatment, or with the condition of POP in general, even. I can imagine your relief and comfort upon meeting up with such a gem.
That is one of the biggest anxieties I'm laden with at this point, ever getting back into my gp again for a physical/pelvic exam. It took me years just to work up the courage to start going for pelvics again, as it was, but after a couple of consecutive positive visits (accompanied by losing my obesity and gaining health [my 'on top of the world' years]), all hell broke loose (my suddenly worsening POP). As a result: My newfound freakishness + her apparent discomfort ("Can't even see your cervix"; "There's surgery for *that*") = No way, not ever again. My HMO may drop me for non-compliance, but I'll never put my broken-self in that position again. POP's suppose to be common enough, but I do wonder...
...Gosh, I'm sorry - here I meant only to echo Mae's sentiments about how wonderful I think it is that you have such a great doctor, Anne, and I just end up serving so much whine. Anyway, here's to more doctors _all doctors_ one day finding their way, so well, around POP.
♥~Blue
Mae
January 9, 2009 - 8:34pm
Permalink
Hey Blue!
Ahh, my dear friend Blue! So good to hear from my partner here! You could never serve up too much whine..(really meaning wine here, of course!! LOL). POP is getting known out there and is dealt with differently..re AnneH's experience) and mine as well! My gyno ( a female..uncomfortable at first) said, "I make my money with surgery..but I am not going there first." Bless her and the new doctors of the world who are looking at POP differently, thanks to Christine, I do believe! Happy and Healthy New Year to You and Yours Blue...Love, ~Mae
AnneH
January 10, 2009 - 9:03am
Permalink
Blue, no whine, it's okay!!
Blue, no whine, it's okay!! I do want to hear about your situation. I can't believe an HMO would drop you for non-compliance but then nothing any of today's big institutions does shocks me anymore, or maybe, I'm shocked now so many times every day I'm becoming numb to it. We are all rapidly becoming slaves to big industry, big government, and big agencies. It's frightening.
Well enough of my own derailing of the subject! Mae, I wear my pessary only occasionally, as I too am usually more comfortable without anything in there. I just use it once in a while when things feel really low and it seems to push everything back up higher, even after I remove it - go figure!
Blue
January 10, 2009 - 5:53pm
Permalink
Hey Mae!
Oh kiddo, wishing much health and happiness too you and yours too, my friend, as you set out on a new spin around the sun! - this one promising to be even brighter by that little one of yours growing! - Wishing you a very grand New Year, Grandmae!
Re pop-wise doctors - You and many others sisters aboard are fortunate to have docs who seem to look at POP from a better perspective, or are at the very least not turned off when facing a case of POP. I am truly happy for each of you, as I can imagine how it must make this condition just that much easier to live with while, at the same time, being able to stay on top with other health checks. Here's to more and more doctors everywhere evolving and being able to expand their restricted vision.
Love and Light,
♥~Blue
Blue
January 10, 2009 - 6:07pm
Permalink
Thanks Anne...
I apologize for going off topic; it was just a down day, yesterday, I guess. They come now and again, as I'm sure you know, those days when I wish my system had some sort of 'restore' button. It would serve me well to stop looking back, though, that I know.
As for HMO-dropping, perhaps it could just be a scare tactic to keep us 'members' on the preventative road of routine check-ups.
Thanks again, Anne - Have a good weekend!
♥~Blue
nervous
January 13, 2009 - 8:10pm
Permalink
Thank you
Thank you for getting back to me. I am so overwhelmed because I have 3 doctors telling me I need surgery. The only thing in question is the timing. I am in Greece right now and I am going to try to find a sympathetic gyn that might help me avoid surgery
nervous
January 13, 2009 - 8:18pm
Permalink
thank you and follow up
I purchased you books. I went and got additional opinions. I have second degree prolapse with a little cystocile and rectocile. I am a bit overwhelmed right now trying to digest the information and trying to find baby steps to start.
Also, are there any women you know that go to Curves with pelvic organ prolapse? I started going there before I knew how bad I was and I feel so much better and hate to give it up.
Would you happen to know anyone in Greece (non-surgical oriented gyn's in Athens) that I could work with?
Kind regards,
Nervous
AnneH
January 14, 2009 - 9:19am
Permalink
I guess if worse comes to
I guess if worse comes to worse comes to worst, and you can't find a sympathetic gyn in Greece, you can always just tell them you're going to delay the surgery for a while and can they fit you with a pessary in the meantime to get you by. I mean, if that is the only way you can get them off your back about surgery. They can't FORCE you to have surgery can they?