a pt visit

Body: 

An update, I had decided to try seeing a physical therapist, since my rectocele diagnosis was spurred by acute episodes of lower back and pelvic pain in the past 2 months (constipation involved with some of the early episodes), and the acute pain episodes are the only symptoms I can't cope with, which would push me toward possible surgery. So instead of hoping rectocele surgery might eliminate these symptoms, I decided to at least investigate what could be done about the pain/seized muscles more directly.

I had my first pt appointment yesterday (I'd been traveling earlier in the week, on a family vacation, during which I had another lower back flare, mostly resolved for the pt visit. )

The good news seems to be, I am all messed up. She noticed things that seem remarkably obvious once pointed out --- for example, when I walk, my left arm stays locked at my side, while my right arm swings freely. On all sorts of tasks and exams, my right side works well, but my left side is weak or tight or painful. She says I have torsion in my sacrum, and my whole left side is tight, with my left sacroiliac joint locked up. She's out of town next week, so wanted to stick with mostly diagnostic work that wouldn't flare anything, before we start therapy sessions a week+ later. My posture is really deranged right now, I have too much forward tilt at the pelvis which propagates upward so that the next curve starts at the wrong place. But I don't know how stable my posture is now, since it's mostly been adapting to find whatever positions are non-painful, and I've lost any intuition about a good equilibrium position for standing, sitting, sleeping --- nothing feels stable or right. It seems many of my resting/relief positions are far from a neutral back position, in both directions. She thinks my initial back injury (last fall) was probably a torsion injury, but that now I've developed all sorts of compensations . . .

But the good news about all that is that she thinks a lot of improvement can come about in a short time-frame (6 weeks) by first working on the misalignment and loosening up the muscles on the left side (which she thinks involves many muscles in spasm and pressure points). Only after that should I work on any strengthening and retraining of muscles . . . she highly discouraged any strengthening attempts, including abdominals or kegels. Did look briefly on ultrasound at the pelvic floor and that looked surprisingly good, nice emptied bladder up above the pelvic floor which I could lift well (though the muscles quickly tired for repeat lifts, also that very simple lift is not the stronger lift-and-squeeze which I think of, probably incorrectly, as kegels, and which I feel so incapable of. She also thought my pelvic floor was in some spasm as well, based on the jagged shape of the resting bladder.)

Anyway, I'm feeling optimistic, because finally someone has identified a problem whose degree and resolution seems directly connected to my pain. Also it seems less that all my muscle tone is just atrophied, requiring years to bring back, which was sort of my despair, and more that the muscles can readily come back to behaving normally once the weird stresses and muscle lock-downs are removed.

She said the rectocele could have been present and asymptomatic for a long time, and that these left side musculoskeletal problems, all seized up just where the descending bowel comes through, could have impeded bowel function and made the rectocele symptomatic.

I write this not because you're all fascinated with my health ;-), but because it looks like a good avenue to explore for a rectocele whose main symptoms are acute lower back or pelvic pain episodes. Neither my doctor nor urogyn surgeon suggested exploring this avenue, I was on a streamlined medical path from reporting these acute pain episodes to rectocele surgery, which would actually be much cheaper out-of-pocket for me than trying the physical therapy . . . I feel like I have at least a sustainable path to try now, which won't quickly fall apart because my strengthening and posture attempts just make things worse . . .

alphamom

How great to have found someone willing to look at the big picture for you. It must be a load off your mind to get some answers! :-) It seems like half of the stress of dealing with this is that there is no definitive treatment or answers, and it's hard to nail down exactly what works for who!

Did I see that you are in Georgia? I am too, so I'd be interested in finding out your PT's name. I found one in Woodstock (Women First Rehabilitation) that I might try using after I see the urogyno this week, but I have no idea really what to look for.

Take care!
RJ

Hi Alphamom,

So glad you’re getting help and support with your postural issues. Of course we can never know through the Internet, but I suspected from the beginning that yours was pelvic girdle pain arising from the SIJs. Actually, motion in the SI joints themselves is poorly controlled so that the activity and coordination of the large stabilizing muscles around the joints is crucial and always disturbed in people with pelvic instability. Asymmetric stiffness of the SIJ is a common finding in those with pelvic girdle pain.

I want to raise a cautionary note about your observations and comments regarding “raising” your bladder. You were most assuredly on your back when the ultrasound was conducted, right?

First of all, there is only one squeeze. The pelvic diaphragm moves medially to close the sphincters and as it does so shortens the distance between tailbone and pubic bones. Lying on your back, your bladder has fallen away from your abdominal wall and is resting on your front vaginal wall > which rests against your back vaginal wall > which rests against your rectum > which rests against your levator muscles. In shortening your levators while on your back you are in a sense “lifting” your bladder. But as far as prolapse goes, it is totally passive movement and in no way significant. It is simply the entire muscular/visceral structure moving your bladder slightly as it shortens in length.

When you stand up (the only time prolapse counts), your bladder/uterus should fall completely to the front and away from your pelvic diaphragm. No lifting properties exist within these muscles because they have never adapted to a lifting function. This is an old, outdated misconception that originated from the notion that the pelvis is a “bowl” with a “floor” that keeps everything “lifted” into place. The role of the pelvic floor muscles is largely passive.

If gynecology/PT really wanted to settle the issue of kegeling-for-prolapse, they would allow women to be tested by vaginal ultrasound in standing position (women do it all the time with the Kegelmaster) and then measure the “lift”.

Christine

Yes, it's so nice to have an experienced hand actually working through these issues with my body right in front of them; so much of the struggle is to recognize which anecdotes and experiences apply to me and which just don't, and to have better self-awareness (it's amazing how fast coping with pain has totally obliterated my body awareness and my sense of a right equilibrium, which was never that refined to start with).

My pt really de-emphasized the kegels and bladder issues, just took a quick look as part of an overall exam when I mentioned the poor vaginal tone I'd had for so long. My last ultrasound (only 5 weeks ago, the check for ovarian cysts) was so demoralizing, it was when I was really tied up in knots with muscle spasm and constipation and just unable to make anything work correctly anywhere in my abdomen. At that u/s I had just tried to empty my bladder but the u/s tech complained about what a huge distended bladder I had, and couldn't find the left ovary around it and all the colon everywhere that she also kindly pointed out (she ended up having to do an external u/s instead to find the left ovary). So after that experience I was just happy with yesterday's pt ultrasound showing that, hey, I actually had emptied my bladder as intended! And that the muscles I thought were so dead actually did have a prompt response, which I could actually see moving and lifting the bladder (important just because it's the most visible thing on the ultrasound, easy to see muscle motion around). It's not that I think those muscles are so relevant to getting everything supported down there or not, just that they actually can respond when I thought they were long dead. She spent more time looking at the pattern of response in my abdominal muscles, and the most time looking at my gait and watching/feeling my various muscles respond to the many small tasks she gave me. (Sorry, this is my first real exposure to what a pt might do and I'm so impressed with this level of information-gathering and feedback. . .)

For some reason I had thought that the sacroiliac joint problems were all ones of hypermobility, like at the end of pregnancy, and felt that couldn't be my problem as I didn't feel any wobbling or slippage at all in the joints, only a wobble that felt muscular. I wasn't aware of the locked or asymmetric possibilities for problems with those joints.

The history I filled out for her asked for the kinds of exercise I was doing now and I listed my stairstepping and a short prolapse fitness routine. She asked me about the prolapse routine, saying "I hope that's not a lot of kegels!" I showed her just a few of the things from your beginning routine(one back-stretch sequence always feels wonderful to me, the one beginning 'now using only the strength of your arms' an intro that makes me feel happy just to hear it, where belly on ground you curl shoulders and head upward in a nice arch, then shift back to being on hands and knees with forehead on ground, also a nice arching back stretch, then repeat; also some of the pelvic rocking with breathing). She was a lot more receptive to those ideas than kegels!

I'm just feeling happy that I can address what seems more likely a root cause of my problems, with thorough guidance and feedback, and not stab about attacking what seems like a peripheral or downstream consequence (the rectocele, which is only distressing to me when I'm seized up or constipated)

Thanks again, I've been on a steep learning curve and grateful for all the little tidbits everyone has shared from along their learning curves. I tend to catch different things in your postings each time I reread them, Christine, because often it takes me a while to really connect to these contexts that are so new to me.

alphamom

I e-mailed rural_juror directly (using her profile) about my pt's name, as that seems the etiquette here. This is again in Atlanta, GA.

alphamom

I know it’s a huge learning curve, A-mom. Largely because we’ve all been very confused by modern science concerning the anatomy of the female body - even if we’ve never opened an anatomy book, terms like “pelvic floor”, “pelvic basin”, and “pelvic tilt” have given us a rough idea of inaccurate anatomy. I try to correct it every chance I get. Thanks for your understanding and willingness to hang in with us and learn.

Alphamom,

Thanks so much for emailing me the pt's name. I'm adding it to my arsenal! :-)

Take care,
RJ

alphamom
it sounds like this pt has a good handle on what's going on
asymmetries like what you describe really can set you up for pain!
please keep us posted on your progress. I will be following...

thank you so much for fascinating us with your health! I am so so happy for you to be working all sides of the equation. I suspected your pain was not just from prolapse. PTs really are amazing at working with your whole body.
I hope someone else reads this and is encouraged to look at the whole body for pain relief. I really believe that whole body strength and tone can improve prolapse symptoms.